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Diagnosis, I want your details!
- Thread starter anonymous
- Start date
I was diagnosed at 3 years old, because of failure to thrive etc.
What really makes me mad is, the doctor i had then, told my parents that since my cf was so mild, i would eventually "outgrow" it. <img src="i/expressions/face-icon-small-disgusted.gif" border="0"> I was extremely lucky to have had a very healthy childhood, because the doctors lackadasical attitude , made my parents feel that everything was going to be just fine , which meant nothing "special" needed to be done. I know that in the late 60's ( when i was diagnosed) there wasnt much known about cf, so there wasnt the kind of info available that we have now. My poor parents were under the impression i was going to outgrow cf because i had it so mild. Even I myself, thought it wouldnt get any worse, till i got older and changes started happening. Then i went to an adult cf doctor and he enlightened me that cf is chronic progressive. My parents were surprised to hear that since they were led to believe i was going to "outgrow" it someday. They now have a way better understanding of what cf's all about, especially since my getting b.cepacia, things have really changed.
~Diane 40 / cf/ diabetes / b.cepacia
What really makes me mad is, the doctor i had then, told my parents that since my cf was so mild, i would eventually "outgrow" it. <img src="i/expressions/face-icon-small-disgusted.gif" border="0"> I was extremely lucky to have had a very healthy childhood, because the doctors lackadasical attitude , made my parents feel that everything was going to be just fine , which meant nothing "special" needed to be done. I know that in the late 60's ( when i was diagnosed) there wasnt much known about cf, so there wasnt the kind of info available that we have now. My poor parents were under the impression i was going to outgrow cf because i had it so mild. Even I myself, thought it wouldnt get any worse, till i got older and changes started happening. Then i went to an adult cf doctor and he enlightened me that cf is chronic progressive. My parents were surprised to hear that since they were led to believe i was going to "outgrow" it someday. They now have a way better understanding of what cf's all about, especially since my getting b.cepacia, things have really changed.
~Diane 40 / cf/ diabetes / b.cepacia
HI Colette,
We are in Montreal Canada<img src="i/expressions/face-icon-small-smile.gif" border="0">))....Not that far away<img src="i/expressions/face-icon-small-smile.gif" border="0"> My 9yr old step-son w/cf is treated at CHEO in Ottawa.
Nice to see other Canadians out there<img src="i/expressions/face-icon-small-happy.gif" border="0">
We are in Montreal Canada<img src="i/expressions/face-icon-small-smile.gif" border="0">))....Not that far away<img src="i/expressions/face-icon-small-smile.gif" border="0"> My 9yr old step-son w/cf is treated at CHEO in Ottawa.
Nice to see other Canadians out there<img src="i/expressions/face-icon-small-happy.gif" border="0">
RoxyChick2381
New member
I was diagnosised with cysticfibrosis at 2month old at children's hospital in seattle washington.
Magerly111
New member
I was diagnosed a few weeks after birth because my sister who was 2 years older than me had it, so they tested me and the next 3 kids after me <img src="i/expressions/face-icon-small-smile.gif" border="0">
NoDayButToday
New member
Yep, Mom you didn't even get to hold me before I went off to surgery <img src="i/expressions/face-icon-small-sad.gif" border="0">. I think you made up for lost time when you finally could hold me though <img src="i/expressions/face-icon-small-smile.gif" border="0">
I was finally diagnosed at 15 months even though from about 12 months i was sick all the time and before that i was always crying... for most of my baby life i was on very stong muscle relaxers because my family doctor thought i just had colic. Then my mom thought it was a food alergy and took me to another doctor who put me on diet after diet until i was 15 months at 12 lbs and a colloapsed lung. They tested me 5 times for cf and in the end the doctor said i "might have a HINT of CF" and to drive me to the toronto childrens hospital immediatly (we lived 4 hrs away)
Ashley 20w/cf
Ashley 20w/cf
KATHY!! You wrote this but you may have well been talking about me!!! How wierd! (My name is Colleen)
"Coll was diagnosed at birth due to meconium ileus (even had surgery the same day she was born!). "
The only difference is that I had surgery the day after I was born...because I was born at 10:26PM
"Coll was diagnosed at birth due to meconium ileus (even had surgery the same day she was born!). "
The only difference is that I had surgery the day after I was born...because I was born at 10:26PM
Emily65Roses
New member
CheerColl, Kathy was talking about our other Colleen (NoDayButToday). Coll is her daughter. <img src="i/expressions/face-icon-small-wink.gif" border="0">
NoDayButToday
New member
Colleen! Another Colleen! I go by Coll though-- I don't know anyone else named Colleen in my area and age range- there is one Coleen at my school, but the one L spelling doesn't count <img src="i/expressions/face-icon-small-wink.gif" border="0">
My son was diagnosed in his thirties and the doctor says "it's mild and won't cause further problems." How much more enlightened are they now in this century than last. When I look back at his early history he was classic c.f. but I was told it was allergies, or my over concern that was at the base of it. Now it is more difficult to accept and to adjust to the reality that always lay in the back of my mind. Willow