Jen,
<br />
<br />My husband was diagnosed with bronchiectasis after our daughter was diagnosed with CF. He developed a severe cough that we could not get under control and was coughing up mucus plugs. His doc did the allergy/asthma route, but treatment didn't help much. He went to an ENT and found out his sinus were FULL of polyps, had them removed. Little to no improvement.
<br />
<br />Still, recently having a daughter diagnosed with CF, and being on CF sites and hearing about adult diagnosis of CF made us want to be sure he does not have CF...so onto the pulmonologists. Lung scans done indicated bronchiectasis, thus his current diagnosis.
<br />
<br />We already knew he was at least a carrier of DDF508, so they preformed a sweat test first. I think it was 18. The doctor was still not convinced that it was not CF so he ordered the Ambry CF Amplified test. He still showed only as a carrier.
<br />
<br />Our daughters CF doctor and nurse were very interested in my husbands case. They set up an appointment for him to see the Adult CF doctor on one of his regular days (not a CF clinic day). He felt (as does my husbands pulmonologist) that although my husband may not have CF, his carrier status could be influencing his symptoms.
<br />
<br />Long story to get to this, his treatment.
<br />
<br />AM
<br />Nebs -Albuterol, Hyper-sal, and Acetylcysteine (Mucomyst)
<br />30 Minute Vest
<br />Advair 500/50
<br />Nasonex
<br />
<br />PM
<br />Nebs - Albuterol, Hyper-Sal, and Pulmozyme
<br />30 Minute Vest
<br />Advair 500/50
<br />Nasonex
<br />
<br />He deals more with inflammation issues rather than infection issues. His go to drug for when he develops his uncontrollable cough is prednisone. Starts at a high dose then tapers down over the next few weeks. Thankfully his treatment regime has been very effective and it has been over a year since he had to take prednisone.
<br />
<br />Let me know if you have any questions. It was a very long process and I'm sure I left a lot of information out.
<br />
<br />Good Luck on your journey!
<br />
<br />P.S. Just some info on sputum test, both he and my daughter culture staph (not MRSA or PA).
<br />
<br />My husband was diagnosed with bronchiectasis after our daughter was diagnosed with CF. He developed a severe cough that we could not get under control and was coughing up mucus plugs. His doc did the allergy/asthma route, but treatment didn't help much. He went to an ENT and found out his sinus were FULL of polyps, had them removed. Little to no improvement.
<br />
<br />Still, recently having a daughter diagnosed with CF, and being on CF sites and hearing about adult diagnosis of CF made us want to be sure he does not have CF...so onto the pulmonologists. Lung scans done indicated bronchiectasis, thus his current diagnosis.
<br />
<br />We already knew he was at least a carrier of DDF508, so they preformed a sweat test first. I think it was 18. The doctor was still not convinced that it was not CF so he ordered the Ambry CF Amplified test. He still showed only as a carrier.
<br />
<br />Our daughters CF doctor and nurse were very interested in my husbands case. They set up an appointment for him to see the Adult CF doctor on one of his regular days (not a CF clinic day). He felt (as does my husbands pulmonologist) that although my husband may not have CF, his carrier status could be influencing his symptoms.
<br />
<br />Long story to get to this, his treatment.
<br />
<br />AM
<br />Nebs -Albuterol, Hyper-sal, and Acetylcysteine (Mucomyst)
<br />30 Minute Vest
<br />Advair 500/50
<br />Nasonex
<br />
<br />PM
<br />Nebs - Albuterol, Hyper-Sal, and Pulmozyme
<br />30 Minute Vest
<br />Advair 500/50
<br />Nasonex
<br />
<br />He deals more with inflammation issues rather than infection issues. His go to drug for when he develops his uncontrollable cough is prednisone. Starts at a high dose then tapers down over the next few weeks. Thankfully his treatment regime has been very effective and it has been over a year since he had to take prednisone.
<br />
<br />Let me know if you have any questions. It was a very long process and I'm sure I left a lot of information out.
<br />
<br />Good Luck on your journey!
<br />
<br />P.S. Just some info on sputum test, both he and my daughter culture staph (not MRSA or PA).