Did you notice cold hands???

suni · Nov 21, 2011

I have notice that my doughter with CF(3 year old ) always have cold hands when she is jumping or running...or doing something why she must breathe rapidly.

This is very interesting to me because I havebeen studying the cold hands mean a kind of stress to the organism. 
The fact is that just a lot of exercise recommended for people suffering from CF and I am interested in your experience have you noticed that your CFchild have cold hands whenhe get less air - due to some of mentioned activities.
According to GNMCF patientsshould avoid any situation which couse cold hands again and again.
GNM explanation of progress in CF symptoms: "However, if the healing process is continuously interrupted by <A class=rvts76 href="http://learninggnm.com/documents/secondlaw.html#Tracks" target=_top>relapses</A>, this causes mucoviscidosis in the bronchia or so-called cystic fibrosis."

I would like to see some comments on this topic because if we can do something to controlCF for me is not important what is the name of medicine - alternative or standard.

Suni
mother of 3y old Ena (DDF508)

suni · Nov 21, 2011

I have notice that my doughter with CF(3 year old ) always have cold hands when she is jumping or running...or doing something why she must breathe rapidly.

This is very interesting to me because I havebeen studying the cold hands mean a kind of stress to the organism. 
The fact is that just a lot of exercise recommended for people suffering from CF and I am interested in your experience have you noticed that your CFchild have cold hands whenhe get less air - due to some of mentioned activities.
According to GNMCF patientsshould avoid any situation which couse cold hands again and again.
GNM explanation of progress in CF symptoms: "However, if the healing process is continuously interrupted by <A class=rvts76 href="http://learninggnm.com/documents/secondlaw.html#Tracks" target=_top>relapses</A>, this causes mucoviscidosis in the bronchia or so-called cystic fibrosis."

I would like to see some comments on this topic because if we can do something to controlCF for me is not important what is the name of medicine - alternative or standard.

Suni
mother of 3y old Ena (DDF508)

suni · Nov 21, 2011

I have notice that my doughter with CF(3 year old ) always have cold hands when she is jumping or running...or doing something why she must breathe rapidly.

This is very interesting to me because I havebeen studying the cold hands mean a kind of stress to the organism. 
The fact is that just a lot of exercise recommended for people suffering from CF and I am interested in your experience have you noticed that your CFchild have cold hands whenhe get less air - due to some of mentioned activities.
According to GNMCF patientsshould avoid any situation which couse cold hands again and again.
GNM explanation of progress in CF symptoms: "However, if the healing process is continuously interrupted by <A class=rvts76 href="http://learninggnm.com/documents/secondlaw.html#Tracks" target=_top>relapses</A>, this causes mucoviscidosis in the bronchia or so-called cystic fibrosis."

I would like to see some comments on this topic because if we can do something to controlCF for me is not important what is the name of medicine - alternative or standard.

Suni
mother of 3y old Ena (DDF508)

bethylove · Feb 26, 2012

Hi Suni,

I tend to experience cold hands and especially cold feet sometimes normally, sometimes when exercising. When I do experience this without exercising, I'm usually not feeling so great. I can tell how well I'm feeling by the color of my toes. Pink= normal, purple = sick. Basically when I'm fighting an infection my appendages aren't the most important part of my body that needs oxygen, therefore I experience lack of blood flow to my feet and hands. (Sometimes my feet feel cold all the way up to mid calf!)

Sometimes when exercising the opposite happens to my feet. They get BRIGHT red and swell up. I was told that my body has a hard time pumping the blood back up once it reaches my feet because that's not what my body is focusing on when I exercise; it's focusing on making sure my lungs and brain get enough oxygen.

If it's a real concern I would take her in for an exercise test (or 6 minute walk) where they measure her oxygen levels as she increases exercise. I know my 02 stats drop well into the low 80's when I did my 6 minute walk and I know when I exercise full out they go even lower. It could be she may need supplemental oxygen when she exercises?

bethylove · Feb 26, 2012

Hi Suni,

I tend to experience cold hands and especially cold feet sometimes normally, sometimes when exercising. When I do experience this without exercising, I'm usually not feeling so great. I can tell how well I'm feeling by the color of my toes. Pink= normal, purple = sick. Basically when I'm fighting an infection my appendages aren't the most important part of my body that needs oxygen, therefore I experience lack of blood flow to my feet and hands. (Sometimes my feet feel cold all the way up to mid calf!)

Sometimes when exercising the opposite happens to my feet. They get BRIGHT red and swell up. I was told that my body has a hard time pumping the blood back up once it reaches my feet because that's not what my body is focusing on when I exercise; it's focusing on making sure my lungs and brain get enough oxygen.

If it's a real concern I would take her in for an exercise test (or 6 minute walk) where they measure her oxygen levels as she increases exercise. I know my 02 stats drop well into the low 80's when I did my 6 minute walk and I know when I exercise full out they go even lower. It could be she may need supplemental oxygen when she exercises?

Did you notice cold hands???

suni

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