Hi there, My daughter is almost 5 and we have been struggling with constipation for a few years now. My daughters GI had a sweat test (didnt tell us what a sweat test was for....thats a whole other story!!!) done and it came back a 56. She doesnt have ANY pulmonary problems and is never sick. As long as she takes Miralax every day she is fine. We are going in tomorrow for another sweat test and blood work. Anyone go through the same and what was the final outcome??
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digestive only??
- Thread starter Hera
- Start date
Hi there, My daughter is almost 5 and we have been struggling with constipation for a few years now. My daughters GI had a sweat test (didnt tell us what a sweat test was for....thats a whole other story!!!) done and it came back a 56. She doesnt have ANY pulmonary problems and is never sick. As long as she takes Miralax every day she is fine. We are going in tomorrow for another sweat test and blood work. Anyone go through the same and what was the final outcome??
Hi there, My daughter is almost 5 and we have been struggling with constipation for a few years now. My daughters GI had a sweat test (didnt tell us what a sweat test was for....thats a whole other story!!!) done and it came back a 56. She doesnt have ANY pulmonary problems and is never sick. As long as she takes Miralax every day she is fine. We are going in tomorrow for another sweat test and blood work. Anyone go through the same and what was the final outcome??
S
sdelorenzo
Guest
My daughter was diagnosed as an infant. My nephew was four at the time. He had been seeing the GI doctor for a few years for constipation problems. He ended up being tested for cf along with some of my other nieces and nephews when my daughter was diagnosed. He ended up having cf as well. His GI doctor never thought to test him because his only symptom was constipation. He is now 9 and has had some pulmonary issues. It is a good thing they are testing your daughter again and doing genetic testing. Hopefully you will have some answer soon.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
S
sdelorenzo
Guest
My daughter was diagnosed as an infant. My nephew was four at the time. He had been seeing the GI doctor for a few years for constipation problems. He ended up being tested for cf along with some of my other nieces and nephews when my daughter was diagnosed. He ended up having cf as well. His GI doctor never thought to test him because his only symptom was constipation. He is now 9 and has had some pulmonary issues. It is a good thing they are testing your daughter again and doing genetic testing. Hopefully you will have some answer soon.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
S
sdelorenzo
Guest
My daughter was diagnosed as an infant. My nephew was four at the time. He had been seeing the GI doctor for a few years for constipation problems. He ended up being tested for cf along with some of my other nieces and nephews when my daughter was diagnosed. He ended up having cf as well. His GI doctor never thought to test him because his only symptom was constipation. He is now 9 and has had some pulmonary issues. It is a good thing they are testing your daughter again and doing genetic testing. Hopefully you will have some answer soon.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
My daughter was born with maconium illius, and it damaged her bowel and it had to be removed. We went through 2 major surgeries and alot of barium enimas to clear blockages. We got her on miralax and enzymes and she has been great and gaining weight at a reasonable rate. She had no lung problems until 4 yrs old. She beat Sudimonis and has been on inhaled antibiotics and shaker vest 3 times a day for 30 minutes each for the past year. She recently got a staff infection in lungs even though on all the treatment. This got me real scared and got me to get on a few web sites to go deeper with the info and research...just to keep the doctors honest. I was told that all CF patients eventually develope lung issues, some better than others though. Management is key along with constant supervision... Pay attention to even the smallest changes in behavior and health.
Peace to you,
Peace to you,
My daughter was born with maconium illius, and it damaged her bowel and it had to be removed. We went through 2 major surgeries and alot of barium enimas to clear blockages. We got her on miralax and enzymes and she has been great and gaining weight at a reasonable rate. She had no lung problems until 4 yrs old. She beat Sudimonis and has been on inhaled antibiotics and shaker vest 3 times a day for 30 minutes each for the past year. She recently got a staff infection in lungs even though on all the treatment. This got me real scared and got me to get on a few web sites to go deeper with the info and research...just to keep the doctors honest. I was told that all CF patients eventually develope lung issues, some better than others though. Management is key along with constant supervision... Pay attention to even the smallest changes in behavior and health.
Peace to you,
Peace to you,
My daughter was born with maconium illius, and it damaged her bowel and it had to be removed. We went through 2 major surgeries and alot of barium enimas to clear blockages. We got her on miralax and enzymes and she has been great and gaining weight at a reasonable rate. She had no lung problems until 4 yrs old. She beat Sudimonis and has been on inhaled antibiotics and shaker vest 3 times a day for 30 minutes each for the past year. She recently got a staff infection in lungs even though on all the treatment. This got me real scared and got me to get on a few web sites to go deeper with the info and research...just to keep the doctors honest. I was told that all CF patients eventually develope lung issues, some better than others though. Management is key along with constant supervision... Pay attention to even the smallest changes in behavior and health.
Peace to you,
Peace to you,
i know some CF kids that started off with only GI issues but developed lung problems later on. There is really no typical CF symptom scale... we all have a different presentation of CF.
I would get a genetic test if i were you. Sweat tests are outdated and genetic tests by Ambry Genetics are infinately more accurate.
I would get a genetic test if i were you. Sweat tests are outdated and genetic tests by Ambry Genetics are infinately more accurate.
i know some CF kids that started off with only GI issues but developed lung problems later on. There is really no typical CF symptom scale... we all have a different presentation of CF.
I would get a genetic test if i were you. Sweat tests are outdated and genetic tests by Ambry Genetics are infinately more accurate.
I would get a genetic test if i were you. Sweat tests are outdated and genetic tests by Ambry Genetics are infinately more accurate.
i know some CF kids that started off with only GI issues but developed lung problems later on. There is really no typical CF symptom scale... we all have a different presentation of CF.
I would get a genetic test if i were you. Sweat tests are outdated and genetic tests by Ambry Genetics are infinately more accurate.
I would get a genetic test if i were you. Sweat tests are outdated and genetic tests by Ambry Genetics are infinately more accurate.
A friend of mine's grandaughter mainly had constipation issues. Respiratory issues they believed were caused by RSV as a newborn. The doctor tested for CF when she was a toddler to rule it out.
Our doctor explained to us that CFers are born with normal lungs; however, with sticky mucus, infections, etc. the lungs can become damaged, lung problems can (will) develop. Thus the importance of proper lung care (CPT) as a preventative even though there aren't any symptoms.
Our doctor explained to us that CFers are born with normal lungs; however, with sticky mucus, infections, etc. the lungs can become damaged, lung problems can (will) develop. Thus the importance of proper lung care (CPT) as a preventative even though there aren't any symptoms.
A friend of mine's grandaughter mainly had constipation issues. Respiratory issues they believed were caused by RSV as a newborn. The doctor tested for CF when she was a toddler to rule it out.
Our doctor explained to us that CFers are born with normal lungs; however, with sticky mucus, infections, etc. the lungs can become damaged, lung problems can (will) develop. Thus the importance of proper lung care (CPT) as a preventative even though there aren't any symptoms.
Our doctor explained to us that CFers are born with normal lungs; however, with sticky mucus, infections, etc. the lungs can become damaged, lung problems can (will) develop. Thus the importance of proper lung care (CPT) as a preventative even though there aren't any symptoms.
A friend of mine's grandaughter mainly had constipation issues. Respiratory issues they believed were caused by RSV as a newborn. The doctor tested for CF when she was a toddler to rule it out.
Our doctor explained to us that CFers are born with normal lungs; however, with sticky mucus, infections, etc. the lungs can become damaged, lung problems can (will) develop. Thus the importance of proper lung care (CPT) as a preventative even though there aren't any symptoms.
Our doctor explained to us that CFers are born with normal lungs; however, with sticky mucus, infections, etc. the lungs can become damaged, lung problems can (will) develop. Thus the importance of proper lung care (CPT) as a preventative even though there aren't any symptoms.