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disability
- Thread starter catboogie
- Start date
Laura,
I tried several years ago, and even went so far as getting a lawyer when it had been denied me again and again. I still lost. I know many on here are on it, but I don't think its an easy task.
One thing I was told at my hearing is that even though I can't do vigorous physical work, I can still do a desk job. Which, obviously is B.S. if I am calling in sick most of the time and have hours of treatments to do a day before and after work. We also said I had to do them throughout the day, and what should I do, bring my vest and nebs to work?!?! They apparently thought so.
Either way, my biggest question with disability is don't you have to have held a full time job to get it? They told me that since I'd never HAD a full time job for an extended period of time, how did I KNOW I couldn't do it? (Another truckload of B.S.).... I have never actually had a full time job, cause I didn't want my health to suffer because of it (which I knew it would), and so I think that makes it really hard for me to get ANY money from the govt. Mostly, because I just haven't paid in very much. Anyone can correct me if I'm wrong.
Either way, my FEV1 was about 55% when I applied AND I had pancreatic insufficiency, hospitalized once a year, depression, and 3 hours of treatments a day, and they STILL denied me over and over again.
I know people will say, "never give up.... etc etc." but frankly, with the days and days of work and effort I put into it, I'm pretty soured by the whole thing.
Good luck. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I tried several years ago, and even went so far as getting a lawyer when it had been denied me again and again. I still lost. I know many on here are on it, but I don't think its an easy task.
One thing I was told at my hearing is that even though I can't do vigorous physical work, I can still do a desk job. Which, obviously is B.S. if I am calling in sick most of the time and have hours of treatments to do a day before and after work. We also said I had to do them throughout the day, and what should I do, bring my vest and nebs to work?!?! They apparently thought so.
Either way, my biggest question with disability is don't you have to have held a full time job to get it? They told me that since I'd never HAD a full time job for an extended period of time, how did I KNOW I couldn't do it? (Another truckload of B.S.).... I have never actually had a full time job, cause I didn't want my health to suffer because of it (which I knew it would), and so I think that makes it really hard for me to get ANY money from the govt. Mostly, because I just haven't paid in very much. Anyone can correct me if I'm wrong.
Either way, my FEV1 was about 55% when I applied AND I had pancreatic insufficiency, hospitalized once a year, depression, and 3 hours of treatments a day, and they STILL denied me over and over again.
I know people will say, "never give up.... etc etc." but frankly, with the days and days of work and effort I put into it, I'm pretty soured by the whole thing.
Good luck. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I got on it first try and the only work i did was fill out the application. i was in the hospital 4 times a year at the time and my fev1 was around 50%. one thing i recall them looking for, which i think is a big factor, is 2 seperate stays in the hospital per year with both including at least 2 days of inpatient care.
Mark and I fought for about 27 months for him to get disablity coverage. It was difficult, but simple in the fact that I wasn't going to stop until we won our case. If anyone needs help or some pointers, I'm more than happy to help.
I don't want this to come off as bragging, but I have some information complied to just simply email to people, kind of a walk through step by step of what information to compile, how to challenge the system, what worked for us after so many denials... About 15 people have contacted me for this information, and I've heard back from 4 so far. Three have won their cases and one is awaiting a hearing. So if you are interested, feel free to email me division902@hotmail.com
I don't want this to come off as bragging, but I have some information complied to just simply email to people, kind of a walk through step by step of what information to compile, how to challenge the system, what worked for us after so many denials... About 15 people have contacted me for this information, and I've heard back from 4 so far. Three have won their cases and one is awaiting a hearing. So if you are interested, feel free to email me division902@hotmail.com
Julie....
How did I know you would come up on this post?!?! lol!
I'd be interested in that info. You still have my email, right? I don't know if I can try again, cause now my FEV1 is over 60% and I only do outpatient hospitalizations every year and 1/2 or so. I also still don't know about the fact I've never actually worked full time. I think my benefits, based on what I've paid in, would MAYBE be $150 a month! lol
Thanks!
How did I know you would come up on this post?!?! lol!
I'd be interested in that info. You still have my email, right? I don't know if I can try again, cause now my FEV1 is over 60% and I only do outpatient hospitalizations every year and 1/2 or so. I also still don't know about the fact I've never actually worked full time. I think my benefits, based on what I've paid in, would MAYBE be $150 a month! lol
Thanks!
lynchmobshredder
New member
i am on SSI...i know thats diff from disability. I was told i had not worked enough to get disability? I am now 24 and have been on SSI sence i was 19. But i worked from when i was 15-19.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lynchmobshredder</b></i>
i am on SSI...i know thats diff from disability. I was told i had not worked enough to get disability? I am now 24 and have been on SSI sence i was 19. But i worked from when i was 15-19.</end quote></div>
Its still a disability, but based on your income level instead of your work history!
i am on SSI...i know thats diff from disability. I was told i had not worked enough to get disability? I am now 24 and have been on SSI sence i was 19. But i worked from when i was 15-19.</end quote></div>
Its still a disability, but based on your income level instead of your work history!
I'm not sure how it works else where. I am in Canada, I went off work in April of '05 and just found out yesterday that I have been approved for Canada Pension Plan Disability. I filled out and application and my Dr.'s filled out and gave the rest of the info they requseted.
Though I was working full time and I am also waiting to here back from my employers Insurance Disability plan. Which I have applied for as well.
On one side I'm happy I've got something that will start coming in soon, but on the other side I'm still waiting to hear back from them...... It seems easy enough for me.
Though I was working full time and I am also waiting to here back from my employers Insurance Disability plan. Which I have applied for as well.
On one side I'm happy I've got something that will start coming in soon, but on the other side I'm still waiting to hear back from them...... It seems easy enough for me.
Sonia, yes I still have your email <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'll put everything together and send it to you. Might not be tonight though, I've got a big project to work on for our stupid tricare claim and have to send some stuff to the CFF as they are helping us out with info for the case (yeahhhhhhh!)
Do you get lung infections?
If yes, how often? (once a year, twice a year, every 8 months...)
When you get lung infections do you use TOBI or colistin?
When you get lung infections do you ever do home IV's?
Just want to gather some info from you so I pass the right stuff onto you. The FEV1 is the HARDEST critera to meet. I'll help you go for something else.
Jim, it's not necessairly how "long" you worked, but rather how much money you made every quarter, which adds up to a maximum "credit" each quarter towards your SSDI. Depending on the age when you apply for disability (not when you are awarded if you are appealing it) you have to have a certain number of those credits to qualify for SSDI. It gets a bit complicated but I can give you some info if you think they are wrong. They are wrong pretty darn often!
And yes, it's 24 freaking months for medicare to kick in (what a joke) but if you are like us, appeal after appeal after appeal and then a hearing... by the time you get awarded you are way pas that 24 month "wait" period.
If anyone else needs the info, email me, I'm happy to help.
Do you get lung infections?
If yes, how often? (once a year, twice a year, every 8 months...)
When you get lung infections do you use TOBI or colistin?
When you get lung infections do you ever do home IV's?
Just want to gather some info from you so I pass the right stuff onto you. The FEV1 is the HARDEST critera to meet. I'll help you go for something else.
Jim, it's not necessairly how "long" you worked, but rather how much money you made every quarter, which adds up to a maximum "credit" each quarter towards your SSDI. Depending on the age when you apply for disability (not when you are awarded if you are appealing it) you have to have a certain number of those credits to qualify for SSDI. It gets a bit complicated but I can give you some info if you think they are wrong. They are wrong pretty darn often!
And yes, it's 24 freaking months for medicare to kick in (what a joke) but if you are like us, appeal after appeal after appeal and then a hearing... by the time you get awarded you are way pas that 24 month "wait" period.
If anyone else needs the info, email me, I'm happy to help.
I tried a few years back, over a five year span I
i had been in the hospital 20 times, my fev1s were 39
I went to the SS office on a monday and tuesday afternoon
mail . I was denied. guess I just wasent sick enough,
Lucky for me the company I work for now offered me
short and long ters Dis, Ins, I BOUGHT it,,,,,,
Right not I am on short term Dis. 80 % pay with full bennies....
I hate to say it cuz i may need them someday.
F the goverment, I should leave the country and
sneak back in over the border pretend I am mexican,
that way I will get everything free.
i had been in the hospital 20 times, my fev1s were 39
I went to the SS office on a monday and tuesday afternoon
mail . I was denied. guess I just wasent sick enough,
Lucky for me the company I work for now offered me
short and long ters Dis, Ins, I BOUGHT it,,,,,,
Right not I am on short term Dis. 80 % pay with full bennies....
I hate to say it cuz i may need them someday.
F the goverment, I should leave the country and
sneak back in over the border pretend I am mexican,
that way I will get everything free.
I've been on SSI for about 3 years now. It wasn't that hard for me, really, all I did was play the interview a little bit. I told them that, with all the meds I take, the side effects really wear me down. It also helped that I had tried holding a full-time job and had quit after only 2 weeks, ending in a hospital stay for an infection. My FEV1 at the time was in the high 50's, I believe, and I was being hospitalized every 3-4 months.
I've been on SSI for about 5 years now, I was denied twice, once they told me it was because I went to church! I got Beth Sufian. I've never worked full-time and at the time I was pretty healthy, no hospital stays and pft's in the 60-70's. Funny how you have to be bed ridden to get it but then once you do you can work part-time!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Thanks for all the stuff, Julie! YOU RULE!!! I read through most of it. My biggest question right now is, after being denied (after an appeal with a lawyer and trial), do I have to reapply or just re-open my case? It was over 7 years ago that I applied. The bad (well, actually good) thing is that I've gotten healthier with less lung infections and higher FEV1 in the past 5 years. I do do more nebbed treatments and exercise more, so I guess I take more time to do things, but as far as being sick, my records will actually all show an increase in lung function, weight, and overall health. So, is it worth it at this point to pursue it? I just dread jumping in again, and I think it would be better to just start from scratch, ya know?
(p.s. why are you on bedrest??? i hope you're doing alright!!! email me if you wanna.)
<img src="i/expressions/face-icon-small-smile.gif" border="0">
(p.s. why are you on bedrest??? i hope you're doing alright!!! email me if you wanna.)
<img src="i/expressions/face-icon-small-smile.gif" border="0">
lynchmobshredder
New member
i never have even tried to apply for that SSDI...i was told i would not get it. I was never denied SSI neither. but it did take them over a year to pay me. My FEV1 is in the mid 40%.
Jim, the qualifications for SSI and SSDI are the exact same, only trick they pull is you have to apply for each separately. They really make it INTENTIONALLY difficult. THere are lucky ones who get it right off the bat, but they are few and far inbetween. It's stupid someone told you that, if you meet the criteria for SSI (and you mentioned you are on it) you also meet the criteria for SSDI. The only thing about SSDI is there is one further step involved and they have to calculate your work credits. But if you worked,somewhat substantially from 15-19 you should have enough credits.
Sonia, you have to reapply at this point. The appeal of any denial is only good for 60 days. So say you apply now and they deny you (and it's likely they will, but present ALL this stuff right off the bat), APPEAL immediately, and if they deny you again, appeal again. That way, if it takes a while for them to approve you, you get BACK PAID BENEFITS all the way back to when you first applied. SSDI has a standard 5 month wait from when you apply to when you get paid, regardless if you are owed any back pay or not. But the nice thing about appealing is that you get all that back pay. We got 27 months (minus the first 5 months of "waiting period) of SSDI benefits.
Sonia, you have to reapply at this point. The appeal of any denial is only good for 60 days. So say you apply now and they deny you (and it's likely they will, but present ALL this stuff right off the bat), APPEAL immediately, and if they deny you again, appeal again. That way, if it takes a while for them to approve you, you get BACK PAID BENEFITS all the way back to when you first applied. SSDI has a standard 5 month wait from when you apply to when you get paid, regardless if you are owed any back pay or not. But the nice thing about appealing is that you get all that back pay. We got 27 months (minus the first 5 months of "waiting period) of SSDI benefits.
Julie,
Since ya'll are military, did you have a tough time being residents of one state while living in another when trying to get benefits? I know North Dakota had a lot to do with my claim, but now we rarely get back there, so I wouldn't be able to have an interview and such in the North Dakota office. Yet, we're still residents of ND. So, any suggestions?
HOW ARE YOU FEELING? IM ME IF YOU CAN.... I"M WORRIED.
Since ya'll are military, did you have a tough time being residents of one state while living in another when trying to get benefits? I know North Dakota had a lot to do with my claim, but now we rarely get back there, so I wouldn't be able to have an interview and such in the North Dakota office. Yet, we're still residents of ND. So, any suggestions?
HOW ARE YOU FEELING? IM ME IF YOU CAN.... I"M WORRIED.
lynchmobshredder
New member
they told me i didn't have enough work credits to get the SSDI...but here is what i dont get...well no kidding i dont enough i am to dang sick to work! hello! lol...how am i suposed to get them when i cant work!!!
I was also one of the lucky ones to get SSDI on my first try, but I also had other medical problems, such as my neuro issues. I will say do not give up, alot of people are declined on their first try, forgot the actual percentages, but it is up there. Also, never delay with your appeal, there is a time limit in which you can do so. Julie is also right when she says that they do make it intentionally hard...the application process itself is draining and frustrating. But, my advice to you is that if you have been declined once, get an atty to help you out with the appeal this time. Just take the time to find one who is experienced with SSDI cases. Call around, consult with them...do whatever it takes to find an atty that you are comfortable with. I have many friends who have been appealing for years..that's right, years! Dealing with a chronic medical issue is hard enough alone, but throw in the threat of financial ruin along with it. Stressful, very stressful.
Brad, don't give up..try again...it sounds like you have had a hell of a time, certainly affecting your daily life. I am glad that you have both short term as well as long term, I was lucky to have the long term which helped tremendously while I was waiting on my SSDI case.
Also, for those who have applied for SSDI and are asked to see a SSDI doc, don't...you have the right to see your own doctor. I have heard many horror stories about those who chose to see the SSDI docs rather than their own docs who know them best. I refused to see their docs, all of my documentation was provided by my pulmo, neuro as well as my primary doc who all did a wonderful job.
Sorry for rambling....I know how frustrating this process can be. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
Brad, don't give up..try again...it sounds like you have had a hell of a time, certainly affecting your daily life. I am glad that you have both short term as well as long term, I was lucky to have the long term which helped tremendously while I was waiting on my SSDI case.
Also, for those who have applied for SSDI and are asked to see a SSDI doc, don't...you have the right to see your own doctor. I have heard many horror stories about those who chose to see the SSDI docs rather than their own docs who know them best. I refused to see their docs, all of my documentation was provided by my pulmo, neuro as well as my primary doc who all did a wonderful job.
Sorry for rambling....I know how frustrating this process can be. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">