wskirchner
New member
It's so funny, I'm going through my own issues this Spring into Summer and now Summer into Fall. My health has drastically declined and myself and my husband have really had to think this over. We had a family meeting at the hospital the last time we really had a good talk about it with me, my husband, my mom and my sister (my dad passed away 3 years ago). We sat down and talked about everything. Transplant, lobectomy, disability, etc. Suffice it to say it was not a fun conversation BUT necessary. My husband and I have been married for 4+ years and he is the optimist and I think this was good for him to come floating back to Earth a little and for my realistic self to grow a little wings (hope doesn't hurt anything). Anyway like everyone is saying; talk, plan, write it down and for goodness sakes get a living will!! And write down everything in your will. I recently started a blog to talk about CF life and the downhill slide and we invested in a video camera so everyone has videos of better days should things slide faster than expected. Plan, plan and LIVE while you can!!