Do-over

[Milla21]

Just a question, mainly out of curiosity.
I know that most people don't like having CF, I'm definitely one of them. But if I had my time over, I'd do it no other way. I say this to people and they think I'm some kind of freak but because of the things I know and have done because of CF if I had a do-over I'd choose to have CF again.
What would others do??

 

[Milla21]

I just wanted to add, my brother has CF and is doing not too good at the moment...I know there's no way he'd wish to have CF again and there's no way I'd wish for him to have it again. Not that I've had it easy but he's had it very very hard.

 

[Joblazer86]

I am not doing as well either but if I would do it over I would have CF just b/c of the fact that you look at things differently when you have cf. you do not take advantage of things and you live for that day. If I did not have this disease I might of not had as much fun as I did when I was growing up. I'm very easy going, I don't stress out and I always try to laugh. If I was normal I probably would not be the same way I am now.

 

[Starfall99]

I agree with you, I've told people if I could choose to be cured this instant I'd do it, but if I could choose to never have had CF I wouldn't do that. Though I am not my CF, having to deal with CF has definitely had an impact on me and made me the person I am today. I know I'm very lucky in that my case is not too severe and my health hasn't held me back from most things that I really want to do, maybe if it were sicker I'd see things differently... but then, I had a friend who also had CF who was very sick his entire life and went through so many difficulties, and he told me once that when he compared himself to other people HE was the lucky one because he knew how to appreciate life and see what's really important, while other people take things for granted.

So, you are definitely not a freak -- or maybe you are a freak, but there are other similar freaks out there and we can all be freaks together. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Eliana
25 w/ cf

 

[IG]

Wow, I'd love to reply to this topic. It's something that I've definitely thought about before. I agree with the rest of you.

I'd keep my CF. I wouldn't be the same person I am today without it. Like somebody said before, if I could be cured in an instant... I'd snap it up, but only if I could live with the memories, and knowledge of what it was like. Besides I can't help but wonder what are the chance of my brother or sister having it if I didn't ( I know the odds are the same for each person but you have to wonder...) Some silly little thought of mine. I thank god every day that I have it and not one of them, it's a crappy disease that's for sure, but I'd live with it willingly even passively if knowing that I was the one to have it and not one of them. I'm not trying to Martyr myself, anything but... I love my family. It's a difficult emotion to express adequately. *shrugs* even if I knew that none of them would get CF I still wouldn't change anything. I wouldn't be the same person...

 

[Emily65Roses]

If there was a cure now, would I take it? Yes. Would I go back and be born without CF at all if I could? No. Generally, the same opinion as everyone else. CF has a lot to do with who I am. And I like what it's done to shape my personality. To agree with Candice, I'm soooo glad it was me and not someone else in my family. Or even someone else I know at all... I know the whole genetic thing doesn't make sense here, but hypothetically, I'd rather it be me than Mike, stuff like that. I'd rather it be me any day than my sister, or my parents, or cousins or whoever. I have a much easier time being the one going through tests and treatments and hospitalizations and surgeries and junk than watching other people go through it. <img src="i/expressions/rose.gif" border="0">

 

[anonymous]

Ok, I'll be the odd ball here. If given the choice, I think I would choose to be CF free. I am a mom & would love to not have the worry of "how long am I going to be here for my child". I am not bitter about my CF at all, but you asked a hypothetical question & I think I answered it honestly.
I bet I wouldn't be the same person, though, with out CF. I would probably take life for granted & not appreciate & cherish every moment I have. Probably wouldn't be as compassionate and loving either, so I know that I am a better person w/ the CF.<img src="i/expressions/rose.gif" border="0">

 

[dresapp]

I hate this disease with a passion. I hate what it has done to me and the people I know or knew with it. However it has shaped who i am and im grateful for what it has taught me. Luckily it brought my family closer together since my sis and I both have it. I have met some incredible people through having it and it has given me strenghth and taught me compassion for others. Would I take a cure? Most definatly but I would not change what It has taught me. I feel like a better person for having it. I am now going through the reality of waiting for transplant and again, yes I hate whats happening to me but again its making me stronger, bringing me closer to my friends and family and I have met some amazing ppl while going through this.

Kris
22/CFRD, CFR liver disease, waiting for lungs and liver
"im still not done living yet"