I posted this question on the Families board, but really want to see the opinions of any of the adults out there as well. Have you done routine nebulizer treatments for most of your life and why or why not? Thanks!!
I am the mother of a 17 month old daughter, Hayley, who has CF and I posted the question about CPT and the vest in infant/toddler Cfers. Some of the responses now left me with questions about "routine breathing (neb) treatments". I guess I just assumed that it was the norm and that everyone does the neb treatments all the time, even when healthy, but I am starting to learn that is not the case and I am very curious as to why.
My daughter was diagnosed at 3 months and has been on nebs since then. She does Xopenex 3 times per day and Pulmicort one time per day. She was hospitalized at diagnosis (long story but she was very sick, starting with reflux that aspirated into her lungs, had to have a Nissen and G-Tube, then came the CF diagnosis) But she has been fairly healthy since leaving the hospital. She has had about 4 infections in the last year, all treated with oral Augmentin, which cleared them up. But she does the three breathing treatments per day every day (4 if she is sick). She has only had a throat culture once in the hosptial and cultured Staph. (I plan on asking why they are not doing throat cultures at every visit next week at her clinic visit)
So finally, my question is to everyone, especially those of you with smaller children, what kinds of meds, nebs and CPT do you do with your child? And any information anyone can give me as to why those of you who don't do "routine nebs" can give me on why your doctor does not do them. ALso how oftern does your CF clinic to throat cultures on your child?
Thanks in advance for all replies!!!
Becky, Mom to Nathan, 4 w/o CF and Hayley, 17 months w/CF
I am the mother of a 17 month old daughter, Hayley, who has CF and I posted the question about CPT and the vest in infant/toddler Cfers. Some of the responses now left me with questions about "routine breathing (neb) treatments". I guess I just assumed that it was the norm and that everyone does the neb treatments all the time, even when healthy, but I am starting to learn that is not the case and I am very curious as to why.
My daughter was diagnosed at 3 months and has been on nebs since then. She does Xopenex 3 times per day and Pulmicort one time per day. She was hospitalized at diagnosis (long story but she was very sick, starting with reflux that aspirated into her lungs, had to have a Nissen and G-Tube, then came the CF diagnosis) But she has been fairly healthy since leaving the hospital. She has had about 4 infections in the last year, all treated with oral Augmentin, which cleared them up. But she does the three breathing treatments per day every day (4 if she is sick). She has only had a throat culture once in the hosptial and cultured Staph. (I plan on asking why they are not doing throat cultures at every visit next week at her clinic visit)
So finally, my question is to everyone, especially those of you with smaller children, what kinds of meds, nebs and CPT do you do with your child? And any information anyone can give me as to why those of you who don't do "routine nebs" can give me on why your doctor does not do them. ALso how oftern does your CF clinic to throat cultures on your child?
Thanks in advance for all replies!!!
Becky, Mom to Nathan, 4 w/o CF and Hayley, 17 months w/CF