Do you feel good all the time

[Giggles]

So I just got done with 3 weeks of IV's and even before that I was obviously not feeling well. Increased cough, decreased appetite, tired, normal CF sorta yuckiness. Well now I have been off IV's for a month and I can not seem to feel really good. Each day is different and my nights I cough. I don't know if it is just normal progression of CF at age 37 and I just am not going to feel always great or what. Any opinions? It has been getting harder for me as I have been getting older...


Jennifer 37 with CF and CFRD

 

[Giggles]

So I just got done with 3 weeks of IV's and even before that I was obviously not feeling well. Increased cough, decreased appetite, tired, normal CF sorta yuckiness. Well now I have been off IV's for a month and I can not seem to feel really good. Each day is different and my nights I cough. I don't know if it is just normal progression of CF at age 37 and I just am not going to feel always great or what. Any opinions? It has been getting harder for me as I have been getting older...


Jennifer 37 with CF and CFRD

 

[Giggles]

So I just got done with 3 weeks of IV's and even before that I was obviously not feeling well. Increased cough, decreased appetite, tired, normal CF sorta yuckiness. Well now I have been off IV's for a month and I can not seem to feel really good. Each day is different and my nights I cough. I don't know if it is just normal progression of CF at age 37 and I just am not going to feel always great or what. Any opinions? It has been getting harder for me as I have been getting older...


Jennifer 37 with CF and CFRD

 

[Giggles]

So I just got done with 3 weeks of IV's and even before that I was obviously not feeling well. Increased cough, decreased appetite, tired, normal CF sorta yuckiness. Well now I have been off IV's for a month and I can not seem to feel really good. Each day is different and my nights I cough. I don't know if it is just normal progression of CF at age 37 and I just am not going to feel always great or what. Any opinions? It has been getting harder for me as I have been getting older...


Jennifer 37 with CF and CFRD

 

[Giggles]

So I just got done with 3 weeks of IV's and even before that I was obviously not feeling well. Increased cough, decreased appetite, tired, normal CF sorta yuckiness. Well now I have been off IV's for a month and I can not seem to feel really good. Each day is different and my nights I cough. I don't know if it is just normal progression of CF at age 37 and I just am not going to feel always great or what. Any opinions? It has been getting harder for me as I have been getting older...
<br />
<br />
<br />Jennifer 37 with CF and CFRD

 

[MiddleAgedLady]

I am noticing the same thing. I don't know if maybe it's antibiotic resistance, disease progression, or age. But I remember the days when I felt like Superwoman after a tune-up!

 

[MiddleAgedLady]

I am noticing the same thing. I don't know if maybe it's antibiotic resistance, disease progression, or age. But I remember the days when I felt like Superwoman after a tune-up!

 

[MiddleAgedLady]

I am noticing the same thing. I don't know if maybe it's antibiotic resistance, disease progression, or age. But I remember the days when I felt like Superwoman after a tune-up!

 

[MiddleAgedLady]

I am noticing the same thing. I don't know if maybe it's antibiotic resistance, disease progression, or age. But I remember the days when I felt like Superwoman after a tune-up!

 

[MiddleAgedLady]

I am noticing the same thing. I don't know if maybe it's antibiotic resistance, disease progression, or age. But I remember the days when I felt like Superwoman after a tune-up!

 

[Giggles]

I felt like superwoman too after tuneups when I was young and over the last few years no such luck. And now this whole year I have noticed that each day is so different for me in terms of how I feel. I started to do 3 treatments a day instead of two but that does not always stop me from waking up at 3AM and coughing! My off TOBI months are the hardest. Just started Zithromax so we shall see if that helps at all. I tried HS and I do not really like it.


I am thinking age is a HUGE factor and I just need to roll with this I suppose!

Jennifer

 

[Giggles]

I felt like superwoman too after tuneups when I was young and over the last few years no such luck. And now this whole year I have noticed that each day is so different for me in terms of how I feel. I started to do 3 treatments a day instead of two but that does not always stop me from waking up at 3AM and coughing! My off TOBI months are the hardest. Just started Zithromax so we shall see if that helps at all. I tried HS and I do not really like it.


I am thinking age is a HUGE factor and I just need to roll with this I suppose!

Jennifer

 

[Giggles]

I felt like superwoman too after tuneups when I was young and over the last few years no such luck. And now this whole year I have noticed that each day is so different for me in terms of how I feel. I started to do 3 treatments a day instead of two but that does not always stop me from waking up at 3AM and coughing! My off TOBI months are the hardest. Just started Zithromax so we shall see if that helps at all. I tried HS and I do not really like it.


I am thinking age is a HUGE factor and I just need to roll with this I suppose!

Jennifer

 

[Giggles]

I felt like superwoman too after tuneups when I was young and over the last few years no such luck. And now this whole year I have noticed that each day is so different for me in terms of how I feel. I started to do 3 treatments a day instead of two but that does not always stop me from waking up at 3AM and coughing! My off TOBI months are the hardest. Just started Zithromax so we shall see if that helps at all. I tried HS and I do not really like it.


I am thinking age is a HUGE factor and I just need to roll with this I suppose!

Jennifer

 

[Giggles]

I felt like superwoman too after tuneups when I was young and over the last few years no such luck. And now this whole year I have noticed that each day is so different for me in terms of how I feel. I started to do 3 treatments a day instead of two but that does not always stop me from waking up at 3AM and coughing! My off TOBI months are the hardest. Just started Zithromax so we shall see if that helps at all. I tried HS and I do not really like it.
<br />
<br />
<br />I am thinking age is a HUGE factor and I just need to roll with this I suppose!
<br />
<br />Jennifer

 

[JazzysMom]

I noticed it this time around after my admission. Usually when I leave the hospital (whether on home ivs following it or not) I can say that I feel "good".

Maybe a bit tired but definitely "good". This past time I can say I felt better then when I went in (not hard to do tho <img src="i/expressions/face-icon-small-tongue.gif" border="0"> ), but I couldnt say I felt "good".

I was able to go on my trip to Georgia & enjoy the time, but if I would have felt the same for our cruise last year then I would have been hesitant to to quite honestly.

I dont know what the real difference was except that I lost more lung function & that alone I suppose could do it!

 

[JazzysMom]

I noticed it this time around after my admission. Usually when I leave the hospital (whether on home ivs following it or not) I can say that I feel "good".

Maybe a bit tired but definitely "good". This past time I can say I felt better then when I went in (not hard to do tho <img src="i/expressions/face-icon-small-tongue.gif" border="0"> ), but I couldnt say I felt "good".

I was able to go on my trip to Georgia & enjoy the time, but if I would have felt the same for our cruise last year then I would have been hesitant to to quite honestly.

I dont know what the real difference was except that I lost more lung function & that alone I suppose could do it!

 

[JazzysMom]

I noticed it this time around after my admission. Usually when I leave the hospital (whether on home ivs following it or not) I can say that I feel "good".

Maybe a bit tired but definitely "good". This past time I can say I felt better then when I went in (not hard to do tho <img src="i/expressions/face-icon-small-tongue.gif" border="0"> ), but I couldnt say I felt "good".

I was able to go on my trip to Georgia & enjoy the time, but if I would have felt the same for our cruise last year then I would have been hesitant to to quite honestly.

I dont know what the real difference was except that I lost more lung function & that alone I suppose could do it!

 

[JazzysMom]

I noticed it this time around after my admission. Usually when I leave the hospital (whether on home ivs following it or not) I can say that I feel "good".

Maybe a bit tired but definitely "good". This past time I can say I felt better then when I went in (not hard to do tho <img src="i/expressions/face-icon-small-tongue.gif" border="0"> ), but I couldnt say I felt "good".

I was able to go on my trip to Georgia & enjoy the time, but if I would have felt the same for our cruise last year then I would have been hesitant to to quite honestly.

I dont know what the real difference was except that I lost more lung function & that alone I suppose could do it!

 

[JazzysMom]

I noticed it this time around after my admission. Usually when I leave the hospital (whether on home ivs following it or not) I can say that I feel "good".
<br />
<br />Maybe a bit tired but definitely "good". This past time I can say I felt better then when I went in (not hard to do tho <img src="i/expressions/face-icon-small-tongue.gif" border="0"> ), but I couldnt say I felt "good".
<br />
<br />I was able to go on my trip to Georgia & enjoy the time, but if I would have felt the same for our cruise last year then I would have been hesitant to to quite honestly.
<br />
<br />I dont know what the real difference was except that I lost more lung function & that alone I suppose could do it!
<br />
<br />