sunshine5637
New member
Hmmm. I agree, what's "normal?"
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Do you lead a normal life: Please check the best answer.
- Thread starter eloquent1
- Start date
jsjohnson77
New member
My 5 year old has the CF in the family. I would definately say he is an average boy! He climbs, rides his bikes, digs in the dirt, swims, picks on his sister and brother, and tons of other stuff. The only time CF slows him down is when he has to do his treatments and that is mommy's few minutes of down time. LOL!!!
jsjohnson77
New member
My 5 year old has the CF in the family. I would definately say he is an average boy! He climbs, rides his bikes, digs in the dirt, swims, picks on his sister and brother, and tons of other stuff. The only time CF slows him down is when he has to do his treatments and that is mommy's few minutes of down time. LOL!!!
jsjohnson77
New member
<BR>My 5 year old has the CF in the family. I would definately say he is an average boy! He climbs, rides his bikes, digs in the dirt, swims, picks on his sister and brother, and tons of other stuff. The only time CF slows him down is when he has to do his treatments and that is mommy's few minutes of down time. LOL!!!
StillFighting
New member
I love your post! This is a very interesting question!
I have to say I can answer from both sides as a non-diagnosed CFer to being diagnosed at age 35. Prior to diagnosis, I definitely had a normal life. Post diagnosis, as I adapted to treatments and everything else that comes along with CF, I would say that I still have a normal life. I just have to make allowances to manage my illness and to adapt. But I think I still lead a normal life.
Ana
I have to say I can answer from both sides as a non-diagnosed CFer to being diagnosed at age 35. Prior to diagnosis, I definitely had a normal life. Post diagnosis, as I adapted to treatments and everything else that comes along with CF, I would say that I still have a normal life. I just have to make allowances to manage my illness and to adapt. But I think I still lead a normal life.
Ana
StillFighting
New member
I love your post! This is a very interesting question!
I have to say I can answer from both sides as a non-diagnosed CFer to being diagnosed at age 35. Prior to diagnosis, I definitely had a normal life. Post diagnosis, as I adapted to treatments and everything else that comes along with CF, I would say that I still have a normal life. I just have to make allowances to manage my illness and to adapt. But I think I still lead a normal life.
Ana
I have to say I can answer from both sides as a non-diagnosed CFer to being diagnosed at age 35. Prior to diagnosis, I definitely had a normal life. Post diagnosis, as I adapted to treatments and everything else that comes along with CF, I would say that I still have a normal life. I just have to make allowances to manage my illness and to adapt. But I think I still lead a normal life.
Ana
StillFighting
New member
I love your post! This is a very interesting question!
<br />
<br />I have to say I can answer from both sides as a non-diagnosed CFer to being diagnosed at age 35. Prior to diagnosis, I definitely had a normal life. Post diagnosis, as I adapted to treatments and everything else that comes along with CF, I would say that I still have a normal life. I just have to make allowances to manage my illness and to adapt. But I think I still lead a normal life.
<br />
<br />Ana
<br />
<br />I have to say I can answer from both sides as a non-diagnosed CFer to being diagnosed at age 35. Prior to diagnosis, I definitely had a normal life. Post diagnosis, as I adapted to treatments and everything else that comes along with CF, I would say that I still have a normal life. I just have to make allowances to manage my illness and to adapt. But I think I still lead a normal life.
<br />
<br />Ana
azdesertrat
New member
Fantastic post! I'm glad you're doing well. I've had the same crap dished my way. Sometimes people treat you like a freak when they find out you have CF. I never told anyone until I started having major issues; at that point I could not, NOT answer queries. I'm 47 yrs old & had a double-lung trans at age 41. I drove a semi for a living for 23 years. Because I had to pass a physical, and because if my physical condition had been known I would have been physically disqualified, I just never told anyone. Hang in there and know God never gives us more than we can handle...
Pat, 47 w/CF
Pat, 47 w/CF
azdesertrat
New member
Fantastic post! I'm glad you're doing well. I've had the same crap dished my way. Sometimes people treat you like a freak when they find out you have CF. I never told anyone until I started having major issues; at that point I could not, NOT answer queries. I'm 47 yrs old & had a double-lung trans at age 41. I drove a semi for a living for 23 years. Because I had to pass a physical, and because if my physical condition had been known I would have been physically disqualified, I just never told anyone. Hang in there and know God never gives us more than we can handle...
Pat, 47 w/CF
Pat, 47 w/CF
azdesertrat
New member
Fantastic post! I'm glad you're doing well. I've had the same crap dished my way. Sometimes people treat you like a freak when they find out you have CF. I never told anyone until I started having major issues; at that point I could not, NOT answer queries. I'm 47 yrs old & had a double-lung trans at age 41. I drove a semi for a living for 23 years. Because I had to pass a physical, and because if my physical condition had been known I would have been physically disqualified, I just never told anyone. Hang in there and know God never gives us more than we can handle...
<br />Pat, 47 w/CF
<br />Pat, 47 w/CF
Pat
I understand, i kept the fact that I had Cf to my self until I had major issues. In School only a couple people knew
about it.
I also had people back away from me when they heard Cystic Fibrosis. Some were afraid
they would catch it. I had to explain that They were more of a threat to my health than I was
to their's. .
In Virginia a Person with Cf is automatically disqualified to drive a Semi.
We all have to try and Live the Life we have been given and do the best we can..
You know, Play the Cards that You have been dealt kind of thing..
I understand, i kept the fact that I had Cf to my self until I had major issues. In School only a couple people knew
about it.
I also had people back away from me when they heard Cystic Fibrosis. Some were afraid
they would catch it. I had to explain that They were more of a threat to my health than I was
to their's. .
In Virginia a Person with Cf is automatically disqualified to drive a Semi.
We all have to try and Live the Life we have been given and do the best we can..
You know, Play the Cards that You have been dealt kind of thing..
Pat
I understand, i kept the fact that I had Cf to my self until I had major issues. In School only a couple people knew
about it.
I also had people back away from me when they heard Cystic Fibrosis. Some were afraid
they would catch it. I had to explain that They were more of a threat to my health than I was
to their's. .
In Virginia a Person with Cf is automatically disqualified to drive a Semi.
We all have to try and Live the Life we have been given and do the best we can..
You know, Play the Cards that You have been dealt kind of thing..
I understand, i kept the fact that I had Cf to my self until I had major issues. In School only a couple people knew
about it.
I also had people back away from me when they heard Cystic Fibrosis. Some were afraid
they would catch it. I had to explain that They were more of a threat to my health than I was
to their's. .
In Virginia a Person with Cf is automatically disqualified to drive a Semi.
We all have to try and Live the Life we have been given and do the best we can..
You know, Play the Cards that You have been dealt kind of thing..
Pat
<br /> I understand, i kept the fact that I had Cf to my self until I had major issues. In School only a couple people knew
<br /> about it.
<br />
<br /> I also had people back away from me when they heard Cystic Fibrosis. Some were afraid
<br /> they would catch it. I had to explain that They were more of a threat to my health than I was
<br /> to their's. .
<br /> In Virginia a Person with Cf is automatically disqualified to drive a Semi.
<br />
<br /> We all have to try and Live the Life we have been given and do the best we can..
<br />
<br /> You know, Play the Cards that You have been dealt kind of thing..
<br /> I understand, i kept the fact that I had Cf to my self until I had major issues. In School only a couple people knew
<br /> about it.
<br />
<br /> I also had people back away from me when they heard Cystic Fibrosis. Some were afraid
<br /> they would catch it. I had to explain that They were more of a threat to my health than I was
<br /> to their's. .
<br /> In Virginia a Person with Cf is automatically disqualified to drive a Semi.
<br />
<br /> We all have to try and Live the Life we have been given and do the best we can..
<br />
<br /> You know, Play the Cards that You have been dealt kind of thing..
imported_Momto2
New member
I dont think I've had a normal life at all, I think I have been unusually blessed to have an incredibly amazing life, even if it got snuffed out tomorrow in a car wreck (god forbid!). I've done everything from marine bio research off the coast of Belize, to competing in the national championships, to being a mom of two wonderful girls. I dont think it could get much better and I think the CF and its accompanying group of varied health issues, while contributing to a very difficult childhood, has made me a very strong person capable of anything I put my mind to. At times I've hated it, blamed it, cursed it, but it has been so instrumental in creating the person that I am, I now have to embrace it. It has taught me to always, always just go for it, with every fiber of my being. It is part of me and one the greatest journey's I have had is learning to love myself for what I am. Normal life? HELL NO! Way, way better than that!
imported_Momto2
New member
I dont think I've had a normal life at all, I think I have been unusually blessed to have an incredibly amazing life, even if it got snuffed out tomorrow in a car wreck (god forbid!). I've done everything from marine bio research off the coast of Belize, to competing in the national championships, to being a mom of two wonderful girls. I dont think it could get much better and I think the CF and its accompanying group of varied health issues, while contributing to a very difficult childhood, has made me a very strong person capable of anything I put my mind to. At times I've hated it, blamed it, cursed it, but it has been so instrumental in creating the person that I am, I now have to embrace it. It has taught me to always, always just go for it, with every fiber of my being. It is part of me and one the greatest journey's I have had is learning to love myself for what I am. Normal life? HELL NO! Way, way better than that!
imported_Momto2
New member
I dont think I've had a normal life at all, I think I have been unusually blessed to have an incredibly amazing life, even if it got snuffed out tomorrow in a car wreck (god forbid!). I've done everything from marine bio research off the coast of Belize, to competing in the national championships, to being a mom of two wonderful girls. I dont think it could get much better and I think the CF and its accompanying group of varied health issues, while contributing to a very difficult childhood, has made me a very strong person capable of anything I put my mind to. At times I've hated it, blamed it, cursed it, but it has been so instrumental in creating the person that I am, I now have to embrace it. It has taught me to always, always just go for it, with every fiber of my being. It is part of me and one the greatest journey's I have had is learning to love myself for what I am. Normal life? HELL NO! Way, way better than that!
mamaScarlett
Active member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momto2</b></i>
I dont think I've had a normal life at all, I think I have been unusually blessed to have an incredibly amazing life, even if it got snuffed out tomorrow in a car wreck (god forbid!). I've done everything from marine bio research off the coast of Belize, to competing in the national championships, to being a mom of two wonderful girls. I dont think it could get much better and I think the CF and its accompanying group of varied health issues, while contributing to a very difficult childhood, has made me a very strong person capable of anything I put my mind to. At times I've hated it, blamed it, cursed it, but it has been so instrumental in creating the person that I am, I now have to embrace it. It has taught me to always, always just go for it, with every fiber of my being. It is part of me and one the greatest journey's I have had is learning to love myself for what I am. Normal life? HELL NO! Way, way better than that!</end quote></div><br>OMG, I love that...I was thinking the same exact thing! <br>do I feel that way every day...NO, but overall...yes I do.<br>
I dont think I've had a normal life at all, I think I have been unusually blessed to have an incredibly amazing life, even if it got snuffed out tomorrow in a car wreck (god forbid!). I've done everything from marine bio research off the coast of Belize, to competing in the national championships, to being a mom of two wonderful girls. I dont think it could get much better and I think the CF and its accompanying group of varied health issues, while contributing to a very difficult childhood, has made me a very strong person capable of anything I put my mind to. At times I've hated it, blamed it, cursed it, but it has been so instrumental in creating the person that I am, I now have to embrace it. It has taught me to always, always just go for it, with every fiber of my being. It is part of me and one the greatest journey's I have had is learning to love myself for what I am. Normal life? HELL NO! Way, way better than that!</end quote></div><br>OMG, I love that...I was thinking the same exact thing! <br>do I feel that way every day...NO, but overall...yes I do.<br>