Do you think this is possible?

L

lola2038

Guest
I think its horrible that you would have so much time to sit around and ponder this issue, really who are you to judge them. You sit there and figure statistics out...I mean do you really think there are only 50 people that sit there day in a day out on your board? It sounds to me that you are the only one who wants your babies to be diagnosed with CF to get attention. Please Spare yourself the embarrassment and retract such a crazy idea.
 
L

lola2038

Guest
I think its horrible that you would have so much time to sit around and ponder this issue, really who are you to judge them. You sit there and figure statistics out...I mean do you really think there are only 50 people that sit there day in a day out on your board? It sounds to me that you are the only one who wants your babies to be diagnosed with CF to get attention. Please Spare yourself the embarrassment and retract such a crazy idea.
 
L

lola2038

Guest
I think its horrible that you would have so much time to sit around and ponder this issue, really who are you to judge them. You sit there and figure statistics out...I mean do you really think there are only 50 people that sit there day in a day out on your board? It sounds to me that you are the only one who wants your babies to be diagnosed with CF to get attention. Please Spare yourself the embarrassment and retract such a crazy idea.
 
M

Mommafirst

Guest
I don't think my original post said I was judging anyone. I was just asking if the very informed group of CF people on this board thought it was possible. Because I am skeptical. That's all. Its my right. <br>
<br>
And as for why I think about it, I work for the other board as a moderator and its MY JOB to determine if someone might be a fake and a phony. <br>
<br>
BUT thanks sooo much for joining this site for the soul purpose of calling me a horrible person. Its much appreciated.
 
M

Mommafirst

Guest
I don't think my original post said I was judging anyone. I was just asking if the very informed group of CF people on this board thought it was possible. Because I am skeptical. That's all. Its my right. <br>
<br>
And as for why I think about it, I work for the other board as a moderator and its MY JOB to determine if someone might be a fake and a phony. <br>
<br>
BUT thanks sooo much for joining this site for the soul purpose of calling me a horrible person. Its much appreciated.
 
M

Mommafirst

Guest
I don't think my original post said I was judging anyone. I was just asking if the very informed group of CF people on this board thought it was possible. Because I am skeptical. That's all. Its my right. <br>
<br>
And as for why I think about it, I work for the other board as a moderator and its MY JOB to determine if someone might be a fake and a phony. <br>
<br>
BUT thanks sooo much for joining this site for the soul purpose of calling me a horrible person. Its much appreciated.
 
C

Char

New member
I only wish that 13 years ago my baby was tested when he had digestive and respiratory problems. I was questioned about "making" him sick. He was diagnosed 2 years ago at the age of 11. His specialist has told me that now it is routine to rule out CF when certain problems arise in the health of babies and they are trying to make a mandatory new born test like Sickle Cell is. An OB/GYN doctor that I met asked if she could use my story with her patients in trying to get their babies tested at birth. She told me that she offers it and very few have the test done because they feel it doesn't apply to them or they just don't want to know. Just because one is having the test done, doesn't mean that the child will be CF positive, it is to rule out and move on to find the cause. I, myself, don't see why 5 out of 50 babies wouldn't be tested if there are symptoms. There is no case of CF on either side of my family but yet, by chance, my husband and I are carriers and we didn't know it. Thank God my son is healthy, has now gained weight, height and he no longer gets sick since being diagnosed and is being treated.

Char
 
C

Char

New member
I only wish that 13 years ago my baby was tested when he had digestive and respiratory problems. I was questioned about "making" him sick. He was diagnosed 2 years ago at the age of 11. His specialist has told me that now it is routine to rule out CF when certain problems arise in the health of babies and they are trying to make a mandatory new born test like Sickle Cell is. An OB/GYN doctor that I met asked if she could use my story with her patients in trying to get their babies tested at birth. She told me that she offers it and very few have the test done because they feel it doesn't apply to them or they just don't want to know. Just because one is having the test done, doesn't mean that the child will be CF positive, it is to rule out and move on to find the cause. I, myself, don't see why 5 out of 50 babies wouldn't be tested if there are symptoms. There is no case of CF on either side of my family but yet, by chance, my husband and I are carriers and we didn't know it. Thank God my son is healthy, has now gained weight, height and he no longer gets sick since being diagnosed and is being treated.

Char
 
C

Char

New member
I only wish that 13 years ago my baby was tested when he had digestive and respiratory problems. I was questioned about "making" him sick. He was diagnosed 2 years ago at the age of 11. His specialist has told me that now it is routine to rule out CF when certain problems arise in the health of babies and they are trying to make a mandatory new born test like Sickle Cell is. An OB/GYN doctor that I met asked if she could use my story with her patients in trying to get their babies tested at birth. She told me that she offers it and very few have the test done because they feel it doesn't apply to them or they just don't want to know. Just because one is having the test done, doesn't mean that the child will be CF positive, it is to rule out and move on to find the cause. I, myself, don't see why 5 out of 50 babies wouldn't be tested if there are symptoms. There is no case of CF on either side of my family but yet, by chance, my husband and I are carriers and we didn't know it. Thank God my son is healthy, has now gained weight, height and he no longer gets sick since being diagnosed and is being treated.

Char
 
2

2perfectboys

Guest
I do not think 5 people getting tested out of 50 is a high number, and u said only 2 r confirmed. I wish u would have said 50 out of 50 were tested. I would recommend anyone with asthma symptoms or digestive issues to be tested. With my second child, his father was tested before hand and was not a carrier. I still had my son tested, just in case they missed something.
 
2

2perfectboys

Guest
I do not think 5 people getting tested out of 50 is a high number, and u said only 2 r confirmed. I wish u would have said 50 out of 50 were tested. I would recommend anyone with asthma symptoms or digestive issues to be tested. With my second child, his father was tested before hand and was not a carrier. I still had my son tested, just in case they missed something.
 
2

2perfectboys

Guest
I do not think 5 people getting tested out of 50 is a high number, and u said only 2 r confirmed. I wish u would have said 50 out of 50 were tested. I would recommend anyone with asthma symptoms or digestive issues to be tested. With my second child, his father was tested before hand and was not a carrier. I still had my son tested, just in case they missed something.
 
O

okok

New member
Hi

I am not trying to be offend you at all but i just wanted to say that i would not want to be a part of any group or forum where the moderator's job is to attempt to decide whether or not i am telling the truth. Unless the individual is blatently trolling (ie using the forum for advertizement or in attempt to sell people items or trying to seduce childern or something), I believe this is just too hard to determine over the internet. I think it is fair for moderators to try to prevent inappropriate use of forums or to stop people who are angry and out of line but i do not think it is their job to assess whether or not statements made by members are true. This is just not possible or realistic. How could you possibly ever know whether or not these individuals are lying or making this up for attention?? What evidence could you acquire over the internet that would prove this? What if they just sincerely wanted some advice and to share their experiences with people who are more knowledgable than themselevees and who are also going through/had gone through similar experiences? How would you feel if you accused them of this and it turned out they were being truthful?


-joanie
 
O

okok

New member
Hi

I am not trying to be offend you at all but i just wanted to say that i would not want to be a part of any group or forum where the moderator's job is to attempt to decide whether or not i am telling the truth. Unless the individual is blatently trolling (ie using the forum for advertizement or in attempt to sell people items or trying to seduce childern or something), I believe this is just too hard to determine over the internet. I think it is fair for moderators to try to prevent inappropriate use of forums or to stop people who are angry and out of line but i do not think it is their job to assess whether or not statements made by members are true. This is just not possible or realistic. How could you possibly ever know whether or not these individuals are lying or making this up for attention?? What evidence could you acquire over the internet that would prove this? What if they just sincerely wanted some advice and to share their experiences with people who are more knowledgable than themselevees and who are also going through/had gone through similar experiences? How would you feel if you accused them of this and it turned out they were being truthful?


-joanie
 
O

okok

New member
Hi

I am not trying to be offend you at all but i just wanted to say that i would not want to be a part of any group or forum where the moderator's job is to attempt to decide whether or not i am telling the truth. Unless the individual is blatently trolling (ie using the forum for advertizement or in attempt to sell people items or trying to seduce childern or something), I believe this is just too hard to determine over the internet. I think it is fair for moderators to try to prevent inappropriate use of forums or to stop people who are angry and out of line but i do not think it is their job to assess whether or not statements made by members are true. This is just not possible or realistic. How could you possibly ever know whether or not these individuals are lying or making this up for attention?? What evidence could you acquire over the internet that would prove this? What if they just sincerely wanted some advice and to share their experiences with people who are more knowledgable than themselevees and who are also going through/had gone through similar experiences? How would you feel if you accused them of this and it turned out they were being truthful?


-joanie
 
M

Mommafirst

Guest
Well, my job isn't specifically to hunt down liars, per se. Its about protecting the real posters from people who come on and take advantage. Either by spamming, soliciting, or by building a sob story and then eventually asking for money. So we'd keep an eye on oddities. That's all. I'm sure there are people on here that must do the same.
 
M

Mommafirst

Guest
Well, my job isn't specifically to hunt down liars, per se. Its about protecting the real posters from people who come on and take advantage. Either by spamming, soliciting, or by building a sob story and then eventually asking for money. So we'd keep an eye on oddities. That's all. I'm sure there are people on here that must do the same.
 
M

Mommafirst

Guest
Well, my job isn't specifically to hunt down liars, per se. Its about protecting the real posters from people who come on and take advantage. Either by spamming, soliciting, or by building a sob story and then eventually asking for money. So we'd keep an eye on oddities. That's all. I'm sure there are people on here that must do the same.
 
You must log in or register to reply here.
Top