Hi, I'm 23 w/cf and saw this post and had to read. I find it interesting to hear things from the other side. i am the first in my family with cf. I hope what i'm about to say doesn't offend anyone, but i thought i would throw my opinion out there.
There is nothing wrong with the way you are feeling, but remember to put your child first. I'm sure you do this anyway, but what i mean is be careful about being upset about thier sickness. Your child will be looking at life through different eyes than you. You are probably worried that you won't see your child grow old, or have your grandchildren, and this saddens you. Knowing that they will be missing out on life.
Your child grows up knowing he/she has cf. it is hard, especialy in the teen years. This is when we start to understand what is really going on. Then we accept it, and this doesn't mean give up, it just means we know what is and isn't possable.
Now having said that hopefully you will better understand this next part. Two things are now in play.
The first thing is the child may sense or possably see the parent getting saddened over something he/she had no controll over. Now we both know it's not the childs fault, but how else does the child comprehend this. this is very hard to deal with growing up. When i was about twelve i was going through some things ( ok i was snooping lol) and i found a letter my aunt had written to my mother when i was diagnosed at age 5. I basicaly said that she was so sorry to hear the news, and that i would be in thier prayers. All i could think was, why is she sorry. am I a dissapointment to everyone. and that bring me to the second part.
the second part is that the parent is upset because the child can't be what they had planned for him.her. Now niether of my parents have ever said anything to make me think they were dissapointed, but i know this isn't what they had planned for. it's kind of like the pressure some kids feel when their parents or siblings are great athletes, and it just doesn't come to them naturally. nobody loves them any less, but they still feel like they aren't living up to the standards.
The hardest part of cf for me to deal with has been seeing the people around me hurt. I understand things now, but it made me very depressed growing up. Most of the people i talk to agree that cf is harder on the parents than it is on the patients. this is our lives and it's all we know.
I hope i didn't upset anyone, but rather help you understand that your child (even if he/she is very young) is probably dealing with this on thier own, and that as a parent the best thing you can do is accept it so you can spend more time making memories, and less time upset. I wish my mother would accept things for what they are, and stop being overly optimistic. I guess what i'm trying to say is that when you children are old enough, talk with them. Not about thier lives, but about yours. ask them what they think about thier life, and tell them what bothers you strait up. they will be more adult than you might think. they know they are sick, and they know they won't live as long as others so why hide your feelings. they will probably feel beter about things, and understand thier childhood much better.
Well i'm hesitant to post this but here it goes. I don't mind negative feedback so feel free to vent if i upset you. i would rather hear your opinion than have you hold things in.
Best of health to all of you familys
Ben