My daughter had bowel resection surgery a week ago Monday and they tested part of her colon tissue to try to rule out CF. Does anyone know how long it takes to get the results back? She had to have 28 inches of her colon removed, it was coiled on top of itself. I read a couple of articles about colon testing that was posted on here a while back, but I don't think either one of them said how long the test actually takes.
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Does anyone know how long it takes to get results back from colon tissue test
- Thread starter Mistyjo
- Start date
My daughter had bowel resection surgery a week ago Monday and they tested part of her colon tissue to try to rule out CF. Does anyone know how long it takes to get the results back? She had to have 28 inches of her colon removed, it was coiled on top of itself. I read a couple of articles about colon testing that was posted on here a while back, but I don't think either one of them said how long the test actually takes.
<BR>My daughter had bowel resection surgery a week ago Monday and they tested part of her colon tissue to try to rule out CF. Does anyone know how long it takes to get the results back? She had to have 28 inches of her colon removed, it was coiled on top of itself. I read a couple of articles about colon testing that was posted on here a while back, but I don't think either one of them said how long the test actually takes.
I don't know the answer to your question... I just wanted to post and let you know I empathize with your wait for answers! I wish someone here could help you~ I think I've only heard of someone having this test once here and it was a long time ago. :-(
I will see if I can dig anything up for you. Maybe putting in a call to your dd's dr would help. If you are waiting on any lab/biopsy results they may also be waiting for all of it to come back to discuss everything at once.
I will see if I can dig anything up for you. Maybe putting in a call to your dd's dr would help. If you are waiting on any lab/biopsy results they may also be waiting for all of it to come back to discuss everything at once.
I don't know the answer to your question... I just wanted to post and let you know I empathize with your wait for answers! I wish someone here could help you~ I think I've only heard of someone having this test once here and it was a long time ago. :-(
I will see if I can dig anything up for you. Maybe putting in a call to your dd's dr would help. If you are waiting on any lab/biopsy results they may also be waiting for all of it to come back to discuss everything at once.
I will see if I can dig anything up for you. Maybe putting in a call to your dd's dr would help. If you are waiting on any lab/biopsy results they may also be waiting for all of it to come back to discuss everything at once.
I don't know the answer to your question... I just wanted to post and let you know I empathize with your wait for answers! I wish someone here could help you~ I think I've only heard of someone having this test once here and it was a long time ago. :-(
<br />
<br />I will see if I can dig anything up for you. Maybe putting in a call to your dd's dr would help. If you are waiting on any lab/biopsy results they may also be waiting for all of it to come back to discuss everything at once.
<br />
<br />I will see if I can dig anything up for you. Maybe putting in a call to your dd's dr would help. If you are waiting on any lab/biopsy results they may also be waiting for all of it to come back to discuss everything at once.
When DS had his obstruction a couple years ago --- caused by adhesions from his surgery for meconium illeus as a newborn -- the surgeon and anesthesiologist both commented that his intestines looked as if he'd never ever had enzymes they were so meconium tinged. However, he'd always gotten enzymes, it's just that the area where the adhesion/blockage was located prevented his enzymes from reaching where they were supposed to go.
When DS had his obstruction a couple years ago --- caused by adhesions from his surgery for meconium illeus as a newborn -- the surgeon and anesthesiologist both commented that his intestines looked as if he'd never ever had enzymes they were so meconium tinged. However, he'd always gotten enzymes, it's just that the area where the adhesion/blockage was located prevented his enzymes from reaching where they were supposed to go.
When DS had his obstruction a couple years ago --- caused by adhesions from his surgery for meconium illeus as a newborn -- the surgeon and anesthesiologist both commented that his intestines looked as if he'd never ever had enzymes they were so meconium tinged. However, he'd always gotten enzymes, it's just that the area where the adhesion/blockage was located prevented his enzymes from reaching where they were supposed to go.
<P>I am so sorry to hear her result was abnormal. My DDs doctor wrote CFTR related metabolic disorder or Cystic Fibrosis on a few of his letters to our pediatrician. When I asked the CF nurse what it meant she said CFTR related metabolic disorder what was the doctor's write on baby's paperwork when the newborn test came back positive, but they had no symptoms. She did not know how it would be applied to my 11 year old, but said insurance may not cover her needs with it. Please let me know what you find out about that diagnosis. I hope it helps you get the treatment your daughter needs. </P>
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<P>We saw the pulmonologist and he is convinced my DD has a mucus clearning disorder. Her FEV1 is up to a lifetime high after 7 weeks of manuel chest PT while we cut her ashtma meds down to 1/4 her original dose, stopped her reflux meds, and stopped her allergy meds. We go next week for a physical therapy consultation and a trial with the VEST. Next step is bronchoscopy, but I am happy we are not waiting for a specific dx to start a treatment plan. He also did another sputum culture and stated her sputum was still yellow. </P>
<P> </P>
<P>Keep me updated. Your family is in my thoughts and preyers.</P>
<P> </P>
<P>We saw the pulmonologist and he is convinced my DD has a mucus clearning disorder. Her FEV1 is up to a lifetime high after 7 weeks of manuel chest PT while we cut her ashtma meds down to 1/4 her original dose, stopped her reflux meds, and stopped her allergy meds. We go next week for a physical therapy consultation and a trial with the VEST. Next step is bronchoscopy, but I am happy we are not waiting for a specific dx to start a treatment plan. He also did another sputum culture and stated her sputum was still yellow. </P>
<P> </P>
<P>Keep me updated. Your family is in my thoughts and preyers.</P>
<P>I am so sorry to hear her result was abnormal. My DDs doctor wrote CFTR related metabolic disorder or Cystic Fibrosis on a few of his letters to our pediatrician. When I asked the CF nurse what it meant she said CFTR related metabolic disorder what was the doctor's write on baby's paperwork when the newborn test came back positive, but they had no symptoms. She did not know how it would be applied to my 11 year old, but said insurance may not cover her needs with it. Please let me know what you find out about that diagnosis.I hope it helps you get the treatment your daughter needs. </P>
<P></P>
<P>We saw the pulmonologist and he is convinced my DD has a mucus clearning disorder. Her FEV1 is up to a lifetime high after 7 weeks of manuel chest PT while we cut her ashtma meds down to 1/4 her original dose, stopped her reflux meds, and stopped her allergy meds. We go next week for a physical therapy consultation and a trial with the VEST. Next step is bronchoscopy, but I am happy we are not waiting for a specific dx to start a treatment plan. He also did another sputum culture and stated her sputum was still yellow. </P>
<P></P>
<P>Keep me updated. Your family is in my thoughts and preyers.</P>
<P></P>
<P>We saw the pulmonologist and he is convinced my DD has a mucus clearning disorder. Her FEV1 is up to a lifetime high after 7 weeks of manuel chest PT while we cut her ashtma meds down to 1/4 her original dose, stopped her reflux meds, and stopped her allergy meds. We go next week for a physical therapy consultation and a trial with the VEST. Next step is bronchoscopy, but I am happy we are not waiting for a specific dx to start a treatment plan. He also did another sputum culture and stated her sputum was still yellow. </P>
<P></P>
<P>Keep me updated. Your family is in my thoughts and preyers.</P>
<P>I am so sorry to hear her result was abnormal. My DDs doctor wrote CFTR related metabolic disorder or Cystic Fibrosis on a few of his letters to our pediatrician. When I asked the CF nurse what it meant she said CFTR related metabolic disorder what was the doctor's write on baby's paperwork when the newborn test came back positive, but they had no symptoms. She did not know how it would be applied to my 11 year old, but said insurance may not cover her needs with it. Please let me know what you find out about that diagnosis.I hope it helps you get the treatment your daughter needs. </P>
<P></P>
<P>We saw the pulmonologist and he is convinced my DD has a mucus clearning disorder. Her FEV1 is up to a lifetime high after 7 weeks of manuel chest PT while we cut her ashtma meds down to 1/4 her original dose, stopped her reflux meds, and stopped her allergy meds. We go next week for a physical therapy consultation and a trial with the VEST. Next step is bronchoscopy, but I am happy we are not waiting for a specific dx to start a treatment plan. He also did another sputum culture and stated her sputum was still yellow. </P>
<P></P>
<P>Keep me updated. Your family is in my thoughts and preyers.</P>
<P></P>
<P>We saw the pulmonologist and he is convinced my DD has a mucus clearning disorder. Her FEV1 is up to a lifetime high after 7 weeks of manuel chest PT while we cut her ashtma meds down to 1/4 her original dose, stopped her reflux meds, and stopped her allergy meds. We go next week for a physical therapy consultation and a trial with the VEST. Next step is bronchoscopy, but I am happy we are not waiting for a specific dx to start a treatment plan. He also did another sputum culture and stated her sputum was still yellow. </P>
<P></P>
<P>Keep me updated. Your family is in my thoughts and preyers.</P>