S
semperfiohana
Guest
does anyone know if there are any treatments in the works for cf with stem cells? i'm trying to decide whether or not to have them frozen after i have my baby. just wondering if anyone knew of anything.
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S
semperfiohana
Guest
does anyone know if there are any treatments in the works for cf with stem cells? i'm trying to decide whether or not to have them frozen after i have my baby. just wondering if anyone knew of anything.
S
semperfiohana
Guest
does anyone know if there are any treatments in the works for cf with stem cells? i'm trying to decide whether or not to have them frozen after i have my baby. just wondering if anyone knew of anything.
S
semperfiohana
Guest
does anyone know if there are any treatments in the works for cf with stem cells? i'm trying to decide whether or not to have them frozen after i have my baby. just wondering if anyone knew of anything.
S
semperfiohana
Guest
does anyone know if there are any treatments in the works for cf with stem cells? i'm trying to decide whether or not to have them frozen after i have my baby. just wondering if anyone knew of anything.
MamatoAlexa
New member
We looked into cord blood banking with Alexa but she arrived 6 weeks early and before we made our decision.
I thought for sure we would do it this time. Not that I am having children in the hopes of a cure for my CF or anything but if the technology was ever available...bonus. Of course the piece of mind of having the cord blood available in case God forbid one of them were to get sick with something that stem cells could help is priceless. Anyway, I asked my OB and she feels it is an expensive fad. Yes, there is some technology available to use the stem cells but she said in many cases what is harvested from one child is not enough and you have to use that plus donated. Also, when I asked her opinion on stem cell preservation the first thing she said was that she did not think it would be of benefit to me anytime in the near future. In her opinion the technology is just not there. Of course this is just one person's opinion and I am still not sure where I stand or what we will do. I met with my CF team yesterday and totally forgot to ask their opinions. ARGH!
So, there is my non-answer. I have no idea!
I thought for sure we would do it this time. Not that I am having children in the hopes of a cure for my CF or anything but if the technology was ever available...bonus. Of course the piece of mind of having the cord blood available in case God forbid one of them were to get sick with something that stem cells could help is priceless. Anyway, I asked my OB and she feels it is an expensive fad. Yes, there is some technology available to use the stem cells but she said in many cases what is harvested from one child is not enough and you have to use that plus donated. Also, when I asked her opinion on stem cell preservation the first thing she said was that she did not think it would be of benefit to me anytime in the near future. In her opinion the technology is just not there. Of course this is just one person's opinion and I am still not sure where I stand or what we will do. I met with my CF team yesterday and totally forgot to ask their opinions. ARGH!
So, there is my non-answer. I have no idea!
MamatoAlexa
New member
We looked into cord blood banking with Alexa but she arrived 6 weeks early and before we made our decision.
I thought for sure we would do it this time. Not that I am having children in the hopes of a cure for my CF or anything but if the technology was ever available...bonus. Of course the piece of mind of having the cord blood available in case God forbid one of them were to get sick with something that stem cells could help is priceless. Anyway, I asked my OB and she feels it is an expensive fad. Yes, there is some technology available to use the stem cells but she said in many cases what is harvested from one child is not enough and you have to use that plus donated. Also, when I asked her opinion on stem cell preservation the first thing she said was that she did not think it would be of benefit to me anytime in the near future. In her opinion the technology is just not there. Of course this is just one person's opinion and I am still not sure where I stand or what we will do. I met with my CF team yesterday and totally forgot to ask their opinions. ARGH!
So, there is my non-answer. I have no idea!
I thought for sure we would do it this time. Not that I am having children in the hopes of a cure for my CF or anything but if the technology was ever available...bonus. Of course the piece of mind of having the cord blood available in case God forbid one of them were to get sick with something that stem cells could help is priceless. Anyway, I asked my OB and she feels it is an expensive fad. Yes, there is some technology available to use the stem cells but she said in many cases what is harvested from one child is not enough and you have to use that plus donated. Also, when I asked her opinion on stem cell preservation the first thing she said was that she did not think it would be of benefit to me anytime in the near future. In her opinion the technology is just not there. Of course this is just one person's opinion and I am still not sure where I stand or what we will do. I met with my CF team yesterday and totally forgot to ask their opinions. ARGH!
So, there is my non-answer. I have no idea!
MamatoAlexa
New member
We looked into cord blood banking with Alexa but she arrived 6 weeks early and before we made our decision.
I thought for sure we would do it this time. Not that I am having children in the hopes of a cure for my CF or anything but if the technology was ever available...bonus. Of course the piece of mind of having the cord blood available in case God forbid one of them were to get sick with something that stem cells could help is priceless. Anyway, I asked my OB and she feels it is an expensive fad. Yes, there is some technology available to use the stem cells but she said in many cases what is harvested from one child is not enough and you have to use that plus donated. Also, when I asked her opinion on stem cell preservation the first thing she said was that she did not think it would be of benefit to me anytime in the near future. In her opinion the technology is just not there. Of course this is just one person's opinion and I am still not sure where I stand or what we will do. I met with my CF team yesterday and totally forgot to ask their opinions. ARGH!
So, there is my non-answer. I have no idea!
I thought for sure we would do it this time. Not that I am having children in the hopes of a cure for my CF or anything but if the technology was ever available...bonus. Of course the piece of mind of having the cord blood available in case God forbid one of them were to get sick with something that stem cells could help is priceless. Anyway, I asked my OB and she feels it is an expensive fad. Yes, there is some technology available to use the stem cells but she said in many cases what is harvested from one child is not enough and you have to use that plus donated. Also, when I asked her opinion on stem cell preservation the first thing she said was that she did not think it would be of benefit to me anytime in the near future. In her opinion the technology is just not there. Of course this is just one person's opinion and I am still not sure where I stand or what we will do. I met with my CF team yesterday and totally forgot to ask their opinions. ARGH!
So, there is my non-answer. I have no idea!
MamatoAlexa
New member
We looked into cord blood banking with Alexa but she arrived 6 weeks early and before we made our decision.
I thought for sure we would do it this time. Not that I am having children in the hopes of a cure for my CF or anything but if the technology was ever available...bonus. Of course the piece of mind of having the cord blood available in case God forbid one of them were to get sick with something that stem cells could help is priceless. Anyway, I asked my OB and she feels it is an expensive fad. Yes, there is some technology available to use the stem cells but she said in many cases what is harvested from one child is not enough and you have to use that plus donated. Also, when I asked her opinion on stem cell preservation the first thing she said was that she did not think it would be of benefit to me anytime in the near future. In her opinion the technology is just not there. Of course this is just one person's opinion and I am still not sure where I stand or what we will do. I met with my CF team yesterday and totally forgot to ask their opinions. ARGH!
So, there is my non-answer. I have no idea!
I thought for sure we would do it this time. Not that I am having children in the hopes of a cure for my CF or anything but if the technology was ever available...bonus. Of course the piece of mind of having the cord blood available in case God forbid one of them were to get sick with something that stem cells could help is priceless. Anyway, I asked my OB and she feels it is an expensive fad. Yes, there is some technology available to use the stem cells but she said in many cases what is harvested from one child is not enough and you have to use that plus donated. Also, when I asked her opinion on stem cell preservation the first thing she said was that she did not think it would be of benefit to me anytime in the near future. In her opinion the technology is just not there. Of course this is just one person's opinion and I am still not sure where I stand or what we will do. I met with my CF team yesterday and totally forgot to ask their opinions. ARGH!
So, there is my non-answer. I have no idea!
MamatoAlexa
New member
We looked into cord blood banking with Alexa but she arrived 6 weeks early and before we made our decision.
I thought for sure we would do it this time. Not that I am having children in the hopes of a cure for my CF or anything but if the technology was ever available...bonus. Of course the piece of mind of having the cord blood available in case God forbid one of them were to get sick with something that stem cells could help is priceless. Anyway, I asked my OB and she feels it is an expensive fad. Yes, there is some technology available to use the stem cells but she said in many cases what is harvested from one child is not enough and you have to use that plus donated. Also, when I asked her opinion on stem cell preservation the first thing she said was that she did not think it would be of benefit to me anytime in the near future. In her opinion the technology is just not there. Of course this is just one person's opinion and I am still not sure where I stand or what we will do. I met with my CF team yesterday and totally forgot to ask their opinions. ARGH!
So, there is my non-answer. I have no idea!
I thought for sure we would do it this time. Not that I am having children in the hopes of a cure for my CF or anything but if the technology was ever available...bonus. Of course the piece of mind of having the cord blood available in case God forbid one of them were to get sick with something that stem cells could help is priceless. Anyway, I asked my OB and she feels it is an expensive fad. Yes, there is some technology available to use the stem cells but she said in many cases what is harvested from one child is not enough and you have to use that plus donated. Also, when I asked her opinion on stem cell preservation the first thing she said was that she did not think it would be of benefit to me anytime in the near future. In her opinion the technology is just not there. Of course this is just one person's opinion and I am still not sure where I stand or what we will do. I met with my CF team yesterday and totally forgot to ask their opinions. ARGH!
So, there is my non-answer. I have no idea!
K
Keepercjr
Guest
As far as I know there isn't anything, at this point in time (or even in the pipeline?) regarding stem cells and CF. And all the other reasons for needing your own stem cells are very rare. I also believe that babies deserve their cord blood and for this next baby we won't be cutting the cord till it stops pulsing (there are benefits to not cutting it right away as is standard in most US births). I also don't agree with the cost associated with it. You could donate it (which I considered with Logan but I didn't know if they would accept it due to my CF) but I still want my baby to get his/her cord blood.
I know that women on here have saved their baby's cord blood but I don't know what their individual reasons were.
I know that women on here have saved their baby's cord blood but I don't know what their individual reasons were.
K
Keepercjr
Guest
As far as I know there isn't anything, at this point in time (or even in the pipeline?) regarding stem cells and CF. And all the other reasons for needing your own stem cells are very rare. I also believe that babies deserve their cord blood and for this next baby we won't be cutting the cord till it stops pulsing (there are benefits to not cutting it right away as is standard in most US births). I also don't agree with the cost associated with it. You could donate it (which I considered with Logan but I didn't know if they would accept it due to my CF) but I still want my baby to get his/her cord blood.
I know that women on here have saved their baby's cord blood but I don't know what their individual reasons were.
I know that women on here have saved their baby's cord blood but I don't know what their individual reasons were.
K
Keepercjr
Guest
As far as I know there isn't anything, at this point in time (or even in the pipeline?) regarding stem cells and CF. And all the other reasons for needing your own stem cells are very rare. I also believe that babies deserve their cord blood and for this next baby we won't be cutting the cord till it stops pulsing (there are benefits to not cutting it right away as is standard in most US births). I also don't agree with the cost associated with it. You could donate it (which I considered with Logan but I didn't know if they would accept it due to my CF) but I still want my baby to get his/her cord blood.
I know that women on here have saved their baby's cord blood but I don't know what their individual reasons were.
I know that women on here have saved their baby's cord blood but I don't know what their individual reasons were.
K
Keepercjr
Guest
As far as I know there isn't anything, at this point in time (or even in the pipeline?) regarding stem cells and CF. And all the other reasons for needing your own stem cells are very rare. I also believe that babies deserve their cord blood and for this next baby we won't be cutting the cord till it stops pulsing (there are benefits to not cutting it right away as is standard in most US births). I also don't agree with the cost associated with it. You could donate it (which I considered with Logan but I didn't know if they would accept it due to my CF) but I still want my baby to get his/her cord blood.
I know that women on here have saved their baby's cord blood but I don't know what their individual reasons were.
I know that women on here have saved their baby's cord blood but I don't know what their individual reasons were.
K
Keepercjr
Guest
As far as I know there isn't anything, at this point in time (or even in the pipeline?) regarding stem cells and CF. And all the other reasons for needing your own stem cells are very rare. I also believe that babies deserve their cord blood and for this next baby we won't be cutting the cord till it stops pulsing (there are benefits to not cutting it right away as is standard in most US births). I also don't agree with the cost associated with it. You could donate it (which I considered with Logan but I didn't know if they would accept it due to my CF) but I still want my baby to get his/her cord blood.
I know that women on here have saved their baby's cord blood but I don't know what their individual reasons were.
I know that women on here have saved their baby's cord blood but I don't know what their individual reasons were.
MamatoAlexa
New member
I also agree with Caroline that cord blood should stay with baby which means not cutting the cord until it stops pulsing.
I give birth at a large teaching hospital that does stem cell research. I watched the Dr. collect Alexa's cord blood so I know it was put to use in the research dept. and I feel good about that because I did not know then what I know now.
I did a little online research just by typing in stem cell and Cystic Fibrosis. It seems there are ideas on how stem cells could help/cure but nothing ground breaking at this point - at least from what I can tell.
I also have a couple of questions/concerns. I am really not sure our children's stem cells could help us being that they are carriers, the have one copy of a defective gene. Obviously I am not an expert but is seems to me that one defective gene could limit and or cause other hurdles in using the stem cells for CF treatment purposes.
Another concern and I hope I can word this right so it makes sense. Not all people with CF can have children or choose to have children so it seems kind of unlikely to me that medicine would find cure that would not help the majority of people with CF. Let's face it, parents with CF make up a small percentage of the CF population. KWIM??
So, I think my answer will be. Bank cord blood for your children and the piece of mind you have it in the case of a rare medical disorder. Or invest that money in other things that will benefit your children future. Or use that money to buy a treadmill, personal trainer or gym membership to help keep your health the very best it can be!
I give birth at a large teaching hospital that does stem cell research. I watched the Dr. collect Alexa's cord blood so I know it was put to use in the research dept. and I feel good about that because I did not know then what I know now.
I did a little online research just by typing in stem cell and Cystic Fibrosis. It seems there are ideas on how stem cells could help/cure but nothing ground breaking at this point - at least from what I can tell.
I also have a couple of questions/concerns. I am really not sure our children's stem cells could help us being that they are carriers, the have one copy of a defective gene. Obviously I am not an expert but is seems to me that one defective gene could limit and or cause other hurdles in using the stem cells for CF treatment purposes.
Another concern and I hope I can word this right so it makes sense. Not all people with CF can have children or choose to have children so it seems kind of unlikely to me that medicine would find cure that would not help the majority of people with CF. Let's face it, parents with CF make up a small percentage of the CF population. KWIM??
So, I think my answer will be. Bank cord blood for your children and the piece of mind you have it in the case of a rare medical disorder. Or invest that money in other things that will benefit your children future. Or use that money to buy a treadmill, personal trainer or gym membership to help keep your health the very best it can be!
MamatoAlexa
New member
I also agree with Caroline that cord blood should stay with baby which means not cutting the cord until it stops pulsing.
I give birth at a large teaching hospital that does stem cell research. I watched the Dr. collect Alexa's cord blood so I know it was put to use in the research dept. and I feel good about that because I did not know then what I know now.
I did a little online research just by typing in stem cell and Cystic Fibrosis. It seems there are ideas on how stem cells could help/cure but nothing ground breaking at this point - at least from what I can tell.
I also have a couple of questions/concerns. I am really not sure our children's stem cells could help us being that they are carriers, the have one copy of a defective gene. Obviously I am not an expert but is seems to me that one defective gene could limit and or cause other hurdles in using the stem cells for CF treatment purposes.
Another concern and I hope I can word this right so it makes sense. Not all people with CF can have children or choose to have children so it seems kind of unlikely to me that medicine would find cure that would not help the majority of people with CF. Let's face it, parents with CF make up a small percentage of the CF population. KWIM??
So, I think my answer will be. Bank cord blood for your children and the piece of mind you have it in the case of a rare medical disorder. Or invest that money in other things that will benefit your children future. Or use that money to buy a treadmill, personal trainer or gym membership to help keep your health the very best it can be!
I give birth at a large teaching hospital that does stem cell research. I watched the Dr. collect Alexa's cord blood so I know it was put to use in the research dept. and I feel good about that because I did not know then what I know now.
I did a little online research just by typing in stem cell and Cystic Fibrosis. It seems there are ideas on how stem cells could help/cure but nothing ground breaking at this point - at least from what I can tell.
I also have a couple of questions/concerns. I am really not sure our children's stem cells could help us being that they are carriers, the have one copy of a defective gene. Obviously I am not an expert but is seems to me that one defective gene could limit and or cause other hurdles in using the stem cells for CF treatment purposes.
Another concern and I hope I can word this right so it makes sense. Not all people with CF can have children or choose to have children so it seems kind of unlikely to me that medicine would find cure that would not help the majority of people with CF. Let's face it, parents with CF make up a small percentage of the CF population. KWIM??
So, I think my answer will be. Bank cord blood for your children and the piece of mind you have it in the case of a rare medical disorder. Or invest that money in other things that will benefit your children future. Or use that money to buy a treadmill, personal trainer or gym membership to help keep your health the very best it can be!
MamatoAlexa
New member
I also agree with Caroline that cord blood should stay with baby which means not cutting the cord until it stops pulsing.
I give birth at a large teaching hospital that does stem cell research. I watched the Dr. collect Alexa's cord blood so I know it was put to use in the research dept. and I feel good about that because I did not know then what I know now.
I did a little online research just by typing in stem cell and Cystic Fibrosis. It seems there are ideas on how stem cells could help/cure but nothing ground breaking at this point - at least from what I can tell.
I also have a couple of questions/concerns. I am really not sure our children's stem cells could help us being that they are carriers, the have one copy of a defective gene. Obviously I am not an expert but is seems to me that one defective gene could limit and or cause other hurdles in using the stem cells for CF treatment purposes.
Another concern and I hope I can word this right so it makes sense. Not all people with CF can have children or choose to have children so it seems kind of unlikely to me that medicine would find cure that would not help the majority of people with CF. Let's face it, parents with CF make up a small percentage of the CF population. KWIM??
So, I think my answer will be. Bank cord blood for your children and the piece of mind you have it in the case of a rare medical disorder. Or invest that money in other things that will benefit your children future. Or use that money to buy a treadmill, personal trainer or gym membership to help keep your health the very best it can be!
I give birth at a large teaching hospital that does stem cell research. I watched the Dr. collect Alexa's cord blood so I know it was put to use in the research dept. and I feel good about that because I did not know then what I know now.
I did a little online research just by typing in stem cell and Cystic Fibrosis. It seems there are ideas on how stem cells could help/cure but nothing ground breaking at this point - at least from what I can tell.
I also have a couple of questions/concerns. I am really not sure our children's stem cells could help us being that they are carriers, the have one copy of a defective gene. Obviously I am not an expert but is seems to me that one defective gene could limit and or cause other hurdles in using the stem cells for CF treatment purposes.
Another concern and I hope I can word this right so it makes sense. Not all people with CF can have children or choose to have children so it seems kind of unlikely to me that medicine would find cure that would not help the majority of people with CF. Let's face it, parents with CF make up a small percentage of the CF population. KWIM??
So, I think my answer will be. Bank cord blood for your children and the piece of mind you have it in the case of a rare medical disorder. Or invest that money in other things that will benefit your children future. Or use that money to buy a treadmill, personal trainer or gym membership to help keep your health the very best it can be!
MamatoAlexa
New member
I also agree with Caroline that cord blood should stay with baby which means not cutting the cord until it stops pulsing.
I give birth at a large teaching hospital that does stem cell research. I watched the Dr. collect Alexa's cord blood so I know it was put to use in the research dept. and I feel good about that because I did not know then what I know now.
I did a little online research just by typing in stem cell and Cystic Fibrosis. It seems there are ideas on how stem cells could help/cure but nothing ground breaking at this point - at least from what I can tell.
I also have a couple of questions/concerns. I am really not sure our children's stem cells could help us being that they are carriers, the have one copy of a defective gene. Obviously I am not an expert but is seems to me that one defective gene could limit and or cause other hurdles in using the stem cells for CF treatment purposes.
Another concern and I hope I can word this right so it makes sense. Not all people with CF can have children or choose to have children so it seems kind of unlikely to me that medicine would find cure that would not help the majority of people with CF. Let's face it, parents with CF make up a small percentage of the CF population. KWIM??
So, I think my answer will be. Bank cord blood for your children and the piece of mind you have it in the case of a rare medical disorder. Or invest that money in other things that will benefit your children future. Or use that money to buy a treadmill, personal trainer or gym membership to help keep your health the very best it can be!
I give birth at a large teaching hospital that does stem cell research. I watched the Dr. collect Alexa's cord blood so I know it was put to use in the research dept. and I feel good about that because I did not know then what I know now.
I did a little online research just by typing in stem cell and Cystic Fibrosis. It seems there are ideas on how stem cells could help/cure but nothing ground breaking at this point - at least from what I can tell.
I also have a couple of questions/concerns. I am really not sure our children's stem cells could help us being that they are carriers, the have one copy of a defective gene. Obviously I am not an expert but is seems to me that one defective gene could limit and or cause other hurdles in using the stem cells for CF treatment purposes.
Another concern and I hope I can word this right so it makes sense. Not all people with CF can have children or choose to have children so it seems kind of unlikely to me that medicine would find cure that would not help the majority of people with CF. Let's face it, parents with CF make up a small percentage of the CF population. KWIM??
So, I think my answer will be. Bank cord blood for your children and the piece of mind you have it in the case of a rare medical disorder. Or invest that money in other things that will benefit your children future. Or use that money to buy a treadmill, personal trainer or gym membership to help keep your health the very best it can be!
MamatoAlexa
New member
I also agree with Caroline that cord blood should stay with baby which means not cutting the cord until it stops pulsing.
I give birth at a large teaching hospital that does stem cell research. I watched the Dr. collect Alexa's cord blood so I know it was put to use in the research dept. and I feel good about that because I did not know then what I know now.
I did a little online research just by typing in stem cell and Cystic Fibrosis. It seems there are ideas on how stem cells could help/cure but nothing ground breaking at this point - at least from what I can tell.
I also have a couple of questions/concerns. I am really not sure our children's stem cells could help us being that they are carriers, the have one copy of a defective gene. Obviously I am not an expert but is seems to me that one defective gene could limit and or cause other hurdles in using the stem cells for CF treatment purposes.
Another concern and I hope I can word this right so it makes sense. Not all people with CF can have children or choose to have children so it seems kind of unlikely to me that medicine would find cure that would not help the majority of people with CF. Let's face it, parents with CF make up a small percentage of the CF population. KWIM??
So, I think my answer will be. Bank cord blood for your children and the piece of mind you have it in the case of a rare medical disorder. Or invest that money in other things that will benefit your children future. Or use that money to buy a treadmill, personal trainer or gym membership to help keep your health the very best it can be!
I give birth at a large teaching hospital that does stem cell research. I watched the Dr. collect Alexa's cord blood so I know it was put to use in the research dept. and I feel good about that because I did not know then what I know now.
I did a little online research just by typing in stem cell and Cystic Fibrosis. It seems there are ideas on how stem cells could help/cure but nothing ground breaking at this point - at least from what I can tell.
I also have a couple of questions/concerns. I am really not sure our children's stem cells could help us being that they are carriers, the have one copy of a defective gene. Obviously I am not an expert but is seems to me that one defective gene could limit and or cause other hurdles in using the stem cells for CF treatment purposes.
Another concern and I hope I can word this right so it makes sense. Not all people with CF can have children or choose to have children so it seems kind of unlikely to me that medicine would find cure that would not help the majority of people with CF. Let's face it, parents with CF make up a small percentage of the CF population. KWIM??
So, I think my answer will be. Bank cord blood for your children and the piece of mind you have it in the case of a rare medical disorder. Or invest that money in other things that will benefit your children future. Or use that money to buy a treadmill, personal trainer or gym membership to help keep your health the very best it can be!