Does anyone work for the CFF?

[jenhum]

I've decided it's time for me to start looking for a job, and there are two positions open (both doing things I am interested in) at my local Cystic Fibrosis Foundation office. Does anyone work for the CFF? Even if you don't, can you think of any reasons that I shouldn't work there (or any benefits to working there?)?

The first position is a fundraiser/event coordinator and the second is an administrative assistant. Those are exactly the two kinds of jobs that I have been looking into, so I'm kind of excited about the possibility of working there. Does anyone know if non-profits have good benefits? Sorry if that's a dumb question, but this'll be my first time working. Luckily my husband has great benefits with his job, so anything I would get is just supplementary. Thanks!

 

[anonymous]

I work for a non-profit association, and our benefits are very good. Full health (the association pays the premium), PTO, Vacation, Retirement. Scheduling is also flexible, which is a big bonus.

I say go for it - worst case, you interview and find out its not a good match.

 

[anonymous]

The only downside I can see is attending events, etc. Since other CF people are there you might have a chance of catching something. I know a few people who work the the CFF and my father is on the board in our chapter so I have been to a lot of events. However, I have b. cepacia so I am not supposed to go. Ironically however, the two women I know who work there (one is the head of the chapter, the other is an events coordinator), are always inviting me and dont seem to understand or care that I have cepacia.

I went to one or two events a few years ago (golf tournaments) and just stayed away from everyone with CF. (Another person had cepacia, one had MRSA)! However, after all this I realized it was stupid for me to go, it was bad for me and bad for other people with CF, so I basically told them this and tried to get them to understand. They still ask me if I am coming to this, to that!

Whatever, the only thing I can think of is that you might have an impact on really educating people who work at the CFF about CF. Surprisingly most of these people dont know much about the disease, at least in my chapter, unless they are resourceful and take the time to find out info on thier own. Just be cautious about any contact you have with other CF'ers, but other than that i think it seems like a positive thing!

Caitlin
22 w/ b. cepacia

 

[shinkdew]

I used to audit a few non-profits when I worked in public accounting. All of them had very good benefits and also allowed for flexilble schedules. They all seemed like a great place to work, every one who worked there, loved being there.

 

[luke]

Jenny,

I applied to a job with the CF foundation once thinking it was a match made in heaven. I was "overqualified" but was prepared to take less financial compensation for a labor of love. Much to my chagrin I couldn't even get someone to call me back. I went through all of the motions, well written cover letter, detailed and job specific resume, impeccable references....no call. I was very surprised...I truly think that my mentioning I had CF to capture the job cost me the job (or at least an interview). I hope you have better luck than I did but this case as all others I would suggest you to "hide" your CF until you can prove yourself.

I will agree with Caitlin though...fieldwork would be risking your health, and maybe others. The administrative assistant gig sounds good though.


Good luck,

Luke

 

[jenhum]

I actually have attended most of the events in the last few years, speaking at many of them. I do not have MRSA or cepacia, and I'm always the only CFer there. I would make sure that was the case if I were to do the fundraising/event planning job.

Luke, I find it so strange that they wouldn't want CFers to work there. I wonder why that is? I was excited when I saw the job listings b/c I thought I would be more likely to get a job there, not less likely. I guess we'll see! I actually have met the director of the chapter here several times at events, so I might contact her first and see her opinion on it.

 

[anonymous]

Hi Jenny! My name is Randi. 22 w/cf. At first thought, we think CF would help your chances with the job. However, you need to prove yourself even more b/c they fully know the downsides that cf presents when working full-time. Do you have any work experience that would help you with the position? I'm not sure I would hide the fact you are a cystic, yet I would reaffirm your strengths and competentcies! Have you made a decision since you last posted?


Good luck,

rAnDi, (self-employed wife & mother of a jack russell terrier ;-)

 

[anonymous]

Hi Jenny! My name is Randi. 22 w/cf. At first thought, we think CF would help your chances with the job. However, you need to prove yourself even more b/c they fully know the downsides that cf presents when working full-time. Do you have any work experience that would help you with the position? I'm not sure I would hide the fact you are a cystic, yet I would reaffirm your strengths and competentcies! Have you made a decision since you last posted?


Good luck,

rAnDi, (self-employed wife & mother of a jack russell terrier ;-)

 

[smoothdave]

just curious hear as well. some on earlier on mentioned some thing about a golf tournament? is there any chance some one could give me any information so i could apply to play in one to raise any money?

would be much appreciated dave....

 

[smoothdave]

just curious hear as well. some on earlier on mentioned some thing about a golf tournament? is there any chance some one could give me any information so i could apply to play in one to raise any money?

would be much appreciated dave....

 

[smoothdave]

i should also say sorry casue it has nothin to do with the origional post! and no sorry i dont no any won that works for them.

 

[smoothdave]

i should also say sorry casue it has nothin to do with the origional post! and no sorry i dont no any won that works for them.

 

[miesl]

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i>However, you need to prove yourself even more b/c they fully know the downsides that cf presents when working full-time. <hr></blockquote>

The CFF should know better than that - as discounting her on the basis of her CF would be considered discrimination.

 

[miesl]

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i>However, you need to prove yourself even more b/c they fully know the downsides that cf presents when working full-time. <hr></blockquote>

The CFF should know better than that - as discounting her on the basis of her CF would be considered discrimination.

 

[anonymous]

I have CF and worked for a short time at a local CFF. THe executive director was a real phony B$$%# and frankly if they gave me double the pay I would never go back. I guess it depends on your boss but CF or any charity is just another job. I rather work somewhere else. It is not a job made in heaven. IF you love the charity so much you are better off starting your own fund raising event.

 

[anonymous]

I have CF and worked for a short time at a local CFF. THe executive director was a real phony B$$%# and frankly if they gave me double the pay I would never go back. I guess it depends on your boss but CF or any charity is just another job. I rather work somewhere else. It is not a job made in heaven. IF you love the charity so much you are better off starting your own fund raising event.

 

[anonymous]

I volunteered for years with the CFF chapter in Arizona. Having CF and college degrees under my belt, I thought I would be a sure in for a job as an events coordinator. Unfortunatly, that never happened. I have learned very quickly that stating you have CF is not a good way to go when applying for a job with the Cystic Fibrosis Foundation.

 

[anonymous]

I volunteered for years with the CFF chapter in Arizona. Having CF and college degrees under my belt, I thought I would be a sure in for a job as an events coordinator. Unfortunatly, that never happened. I have learned very quickly that stating you have CF is not a good way to go when applying for a job with the Cystic Fibrosis Foundation.

 

[JazzysMom]

Is it possible that someone without CF who might be more qualified would yell discrimination if they didnt get the job & a CFer did. Just a thought......reverse discrimination!

 

[JazzysMom]

Is it possible that someone without CF who might be more qualified would yell discrimination if they didnt get the job & a CFer did. Just a thought......reverse discrimination!