Does this make sense?

[tammykrumrey]

We were told that my daughters rectal prolapses were caused by malabsorbtion. She was at normal weight until she started eating more high fat foods at about the age of 1, although she ate all of the time. Seeing she was my first child, I foolishly thought that all babies drank a 6+ ounce bottle in one sitting at the age of TWO WEEKS (every 2 hours). Now I tease all my friends who had babies within a month of mine being born that I thought it was THEIR babies that were abnormal in drinking only about 2-3 ounces (every 3 hours) at the same age! She was simply not absorbing the vitamins and nutrients needed to keep those muscles around the rectum strong enough to hold it up, especially when having 10 bowel movements a day!

Anyways, I get passionate about it because it makes me angry that it was missed for so long...but it can be caused by malabsorbtion. I really thought Kayla looked really good, just very small and petite. But when I look at the pictures of her just prior to her dx and then again after enzymes and vitamins, I realize that she was simply not that healthy. She looked very pale and when naked, we always joked that she looked like ET, with the big belly and skinny legs and arms! Sometimes I feel so bad for it not even crossing my mind that she could possibly have CF because she had to go trough so much for a few years after losing that first 14 months of nutrients.

 

[mbuehler]

Thanks so much to all who replied. My son's second sweat test came back negative and again the specialist said with his lack of symptoms and the negative result, a diagnosis of cystic fibrosis wasn't supported. Then, when my daughter was born on Jan. 5th, we had her cord blood tested for cf and it came back negative as well, but she does have sickle cell anemia trait, which is weird because my husband and I are both caucasion, but we could have some Mediterranean (Greek or Turkish) members in our geneology. Anyway, we had decided that if she had ANY cf mutations we were going to have our son genetically tested, but since she was negative we're just going to keep an eye out for any other cf symptoms in him. Until he presents symptoms, we're going to assume that the positive sweat test was a fluke. Also, the pedi put him on a stool softner in early January and he hasn't had any rectal prolapse episodes since (knock on wood). Thanks again to everyone who replied. I'll never forget this scare, so all of you will be in my mind, heart, and prayers for the rest of my life. God Bless.

 

[mbuehler]

Thanks so much to all who replied. My son's second sweat test came back negative and again the specialist said with his lack of symptoms and the negative result, a diagnosis of cystic fibrosis wasn't supported. Then, when my daughter was born on Jan. 5th, we had her cord blood tested for cf and it came back negative as well, but she does have sickle cell anemia trait, which is weird because my husband and I are both caucasion, but we could have some Mediterranean (Greek or Turkish) members in our geneology. Anyway, we had decided that if she had ANY cf mutations we were going to have our son genetically tested, but since she was negative we're just going to keep an eye out for any other cf symptoms in him. Until he presents symptoms, we're going to assume that the positive sweat test was a fluke. Also, the pedi put him on a stool softner in early January and he hasn't had any rectal prolapse episodes since (knock on wood). Thanks again to everyone who replied. I'll never forget this scare, so all of you will be in my mind, heart, and prayers for the rest of my life. God Bless.

 

[mbuehler]

Thanks so much to all who replied. My son's second sweat test came back negative and again the specialist said with his lack of symptoms and the negative result, a diagnosis of cystic fibrosis wasn't supported. Then, when my daughter was born on Jan. 5th, we had her cord blood tested for cf and it came back negative as well, but she does have sickle cell anemia trait, which is weird because my husband and I are both caucasion, but we could have some Mediterranean (Greek or Turkish) members in our geneology. Anyway, we had decided that if she had ANY cf mutations we were going to have our son genetically tested, but since she was negative we're just going to keep an eye out for any other cf symptoms in him. Until he presents symptoms, we're going to assume that the positive sweat test was a fluke. Also, the pedi put him on a stool softner in early January and he hasn't had any rectal prolapse episodes since (knock on wood). Thanks again to everyone who replied. I'll never forget this scare, so all of you will be in my mind, heart, and prayers for the rest of my life. God Bless.

 

[okok]

I hope both your childern continue to do well and that you don't have any more CF scares or other health scares for that matter. Thanks for gettting back to us about your son!

 

[okok]

I hope both your childern continue to do well and that you don't have any more CF scares or other health scares for that matter. Thanks for gettting back to us about your son!

 

[okok]

I hope both your childern continue to do well and that you don't have any more CF scares or other health scares for that matter. Thanks for gettting back to us about your son!