The letter mentions having, in the past, a 'special educational evening to discuss the results' and said this yr they are not doing that and instead shares them in this newsletter. This yr they are instead doing something called 'National Meets Local' on the first Saturday of March that I am looking forward to going to. (I am with you, Megan, and want to learn whatever I can; have always been this way about my dd's other health issues and certainly am now about cf, especially given how new we are to it.)
The March program sounds very good, here is the itinerary for it:
<u>'What's in the Drug Discovery Pipeline?'</u> by VP of Drug Discovery, CFF Therapeutics
<u>Breakout Sessions</u>; we can attend the 2 that interest us most:
1/ Preparing high quality, inexpensive meals quickly
2/ Getting the most 'bang for your buck' with airway clearance
3/ Managing conditions secondary to CF
4/ Careers and CF
<u>How to Manage Your Time and Treatments</u>: Panel Discussion led by 3 parents, 2 CF adults and and parent/CFF Quality Coordinator from New Hampshire.
Oh- and Emily went on the first clinic day for the first appt, but then after that she's been scheduled for all afternoon appts (the 2nd clinic day.) I wasn't given a choice for either time slot. She cultures staph. They wear the yellow jackets and gloves, etc when they come in the room, but they may do that no matter what clinic slot it is just in case...
The March program sounds very good, here is the itinerary for it:
<u>'What's in the Drug Discovery Pipeline?'</u> by VP of Drug Discovery, CFF Therapeutics
<u>Breakout Sessions</u>; we can attend the 2 that interest us most:
1/ Preparing high quality, inexpensive meals quickly
2/ Getting the most 'bang for your buck' with airway clearance
3/ Managing conditions secondary to CF
4/ Careers and CF
<u>How to Manage Your Time and Treatments</u>: Panel Discussion led by 3 parents, 2 CF adults and and parent/CFF Quality Coordinator from New Hampshire.
Oh- and Emily went on the first clinic day for the first appt, but then after that she's been scheduled for all afternoon appts (the 2nd clinic day.) I wasn't given a choice for either time slot. She cultures staph. They wear the yellow jackets and gloves, etc when they come in the room, but they may do that no matter what clinic slot it is just in case...