Doing Nebs day and night

6

65rosessamurai

Guest
I started this topic last night, but due to a loss for words, and it being late at night, I hit the "cancel" button til I could bring some better words for the topic.

Basically, after visiting the doctor yesterday, there was a discussion about doing neb treatments.

I wondered how those of you with 40 hour + work weeks and long commutes to work find time to fit the treatments into your schedule? Also, if any of you happen to have business trips that would last more than a day, how you handle the hauling of the equipment with you, or what other method you use for that situation?

Currently, my daily routine is to get up at 6 am, get ready for work and be out the door no later than 7:05 to catch the local train. I get to work by about 8:45, and work hours start from 9:00. I could take a later train, but that only is a 15 minute difference, AND I end up standing on the train all the way to work--exhausting!

On the commute back home, I can sometimes make it home by 7:30 at night, but Mondays and Thursdays are my "teaching" days, so I don't usually make it home until 8:30 or 9:00 pm. Those two days are the toughest, but also where my extra O.T. comes in handy.

Ideas and opinions about how you manage this would be greatly appreciated.
 
6

65rosessamurai

Guest
I started this topic last night, but due to a loss for words, and it being late at night, I hit the "cancel" button til I could bring some better words for the topic.

Basically, after visiting the doctor yesterday, there was a discussion about doing neb treatments.

I wondered how those of you with 40 hour + work weeks and long commutes to work find time to fit the treatments into your schedule? Also, if any of you happen to have business trips that would last more than a day, how you handle the hauling of the equipment with you, or what other method you use for that situation?

Currently, my daily routine is to get up at 6 am, get ready for work and be out the door no later than 7:05 to catch the local train. I get to work by about 8:45, and work hours start from 9:00. I could take a later train, but that only is a 15 minute difference, AND I end up standing on the train all the way to work--exhausting!

On the commute back home, I can sometimes make it home by 7:30 at night, but Mondays and Thursdays are my "teaching" days, so I don't usually make it home until 8:30 or 9:00 pm. Those two days are the toughest, but also where my extra O.T. comes in handy.

Ideas and opinions about how you manage this would be greatly appreciated.
 
6

65rosessamurai

Guest
I started this topic last night, but due to a loss for words, and it being late at night, I hit the "cancel" button til I could bring some better words for the topic.

Basically, after visiting the doctor yesterday, there was a discussion about doing neb treatments.

I wondered how those of you with 40 hour + work weeks and long commutes to work find time to fit the treatments into your schedule? Also, if any of you happen to have business trips that would last more than a day, how you handle the hauling of the equipment with you, or what other method you use for that situation?

Currently, my daily routine is to get up at 6 am, get ready for work and be out the door no later than 7:05 to catch the local train. I get to work by about 8:45, and work hours start from 9:00. I could take a later train, but that only is a 15 minute difference, AND I end up standing on the train all the way to work--exhausting!

On the commute back home, I can sometimes make it home by 7:30 at night, but Mondays and Thursdays are my "teaching" days, so I don't usually make it home until 8:30 or 9:00 pm. Those two days are the toughest, but also where my extra O.T. comes in handy.

Ideas and opinions about how you manage this would be greatly appreciated.
 
N

NoExcuses

New member
Just scheduling. For me, doing nebs is like eating. I do no matter what.

Even with my 40+ hour work week.... even when I travel on business for a week...

It just has to happen and alot time every day, twice a day to do so. I wish I had more insight.
 
N

NoExcuses

New member
Just scheduling. For me, doing nebs is like eating. I do no matter what.

Even with my 40+ hour work week.... even when I travel on business for a week...

It just has to happen and alot time every day, twice a day to do so. I wish I had more insight.
 
N

NoExcuses

New member
Just scheduling. For me, doing nebs is like eating. I do no matter what.

Even with my 40+ hour work week.... even when I travel on business for a week...

It just has to happen and alot time every day, twice a day to do so. I wish I had more insight.
 
B

blondelawyer

New member
Is there anything that you can do on the train that will help you free up some time at home? That is really the only thing that I can think of...sorry. Good luck!
 
B

blondelawyer

New member
Is there anything that you can do on the train that will help you free up some time at home? That is really the only thing that I can think of...sorry. Good luck!
 
B

blondelawyer

New member
Is there anything that you can do on the train that will help you free up some time at home? That is really the only thing that I can think of...sorry. Good luck!
 
J

JennifersHope

New member
The eflow is the only thing I can think of that will help you.. I work on average 50 hours a week plus one hour driving each way most of the time... and I am way to tired to do my treatments..

I do the acappela in the car, I do nebs during down time at work if their is any, and if not I try to put them on in the car on the way home.

I am hoping to have the eflow soon.. though I doubt I am going to be able to afford it...

Good luck., you have to put your health first though somehow
Night
 
J

JennifersHope

New member
The eflow is the only thing I can think of that will help you.. I work on average 50 hours a week plus one hour driving each way most of the time... and I am way to tired to do my treatments..

I do the acappela in the car, I do nebs during down time at work if their is any, and if not I try to put them on in the car on the way home.

I am hoping to have the eflow soon.. though I doubt I am going to be able to afford it...

Good luck., you have to put your health first though somehow
Night
 
J

JennifersHope

New member
The eflow is the only thing I can think of that will help you.. I work on average 50 hours a week plus one hour driving each way most of the time... and I am way to tired to do my treatments..

I do the acappela in the car, I do nebs during down time at work if their is any, and if not I try to put them on in the car on the way home.

I am hoping to have the eflow soon.. though I doubt I am going to be able to afford it...

Good luck., you have to put your health first though somehow
Night
 
L

Lilith

New member
The only thing I can think of is adjusting your sleep pattern. When I was going to school, I got up at 5:00 AM in order to do my treatment and be out the door for a 7:15 bus. I usually stayed up until about midnight. For you, you'd probably have to come home, do a treatment, and head straight to sleep.

That's about all I can really suggest...sorry, Fred!
 
L

Lilith

New member
The only thing I can think of is adjusting your sleep pattern. When I was going to school, I got up at 5:00 AM in order to do my treatment and be out the door for a 7:15 bus. I usually stayed up until about midnight. For you, you'd probably have to come home, do a treatment, and head straight to sleep.

That's about all I can really suggest...sorry, Fred!
 
L

Lilith

New member
The only thing I can think of is adjusting your sleep pattern. When I was going to school, I got up at 5:00 AM in order to do my treatment and be out the door for a 7:15 bus. I usually stayed up until about midnight. For you, you'd probably have to come home, do a treatment, and head straight to sleep.

That's about all I can really suggest...sorry, Fred!
 
6

65rosessamurai

Guest
Thanks for the comments, so far.

Lilith, my weeknights may sound quite boring, AND, I may be more tired by getting up so much earlier. Maybe 10 or so years ago, I could stay up that late, but not so much anymore!

JennifersHope, as far as I know, eflow is NOT available in Japan. I can't commute by car, I have to go by train, and part of my concern is if getting up extra early and going to bed later than usual to do nebs is actually NOT beneficial for my health. As I stated, the neb is currently an option, so something for me to consider right now.

blondelawyer, It'd be nice to do treatments on the train, but not practical...besides, I'd need QUITE a long extention cord!! Even now, I try to catch up on my sleep on the train, but can only get 15 to 20 minutes maximum!

I was hoping for a little more insight to hear how others manage. I may ask the doc about keeping it at once a day, and see how nighttime would work out. For now, I'm just gonna use the inhaler he gave me and try and use the oxygen compressor the wife bought last year, and see how that system works.
 
6

65rosessamurai

Guest
Thanks for the comments, so far.

Lilith, my weeknights may sound quite boring, AND, I may be more tired by getting up so much earlier. Maybe 10 or so years ago, I could stay up that late, but not so much anymore!

JennifersHope, as far as I know, eflow is NOT available in Japan. I can't commute by car, I have to go by train, and part of my concern is if getting up extra early and going to bed later than usual to do nebs is actually NOT beneficial for my health. As I stated, the neb is currently an option, so something for me to consider right now.

blondelawyer, It'd be nice to do treatments on the train, but not practical...besides, I'd need QUITE a long extention cord!! Even now, I try to catch up on my sleep on the train, but can only get 15 to 20 minutes maximum!

I was hoping for a little more insight to hear how others manage. I may ask the doc about keeping it at once a day, and see how nighttime would work out. For now, I'm just gonna use the inhaler he gave me and try and use the oxygen compressor the wife bought last year, and see how that system works.
 
6

65rosessamurai

Guest
Thanks for the comments, so far.

Lilith, my weeknights may sound quite boring, AND, I may be more tired by getting up so much earlier. Maybe 10 or so years ago, I could stay up that late, but not so much anymore!

JennifersHope, as far as I know, eflow is NOT available in Japan. I can't commute by car, I have to go by train, and part of my concern is if getting up extra early and going to bed later than usual to do nebs is actually NOT beneficial for my health. As I stated, the neb is currently an option, so something for me to consider right now.

blondelawyer, It'd be nice to do treatments on the train, but not practical...besides, I'd need QUITE a long extention cord!! Even now, I try to catch up on my sleep on the train, but can only get 15 to 20 minutes maximum!

I was hoping for a little more insight to hear how others manage. I may ask the doc about keeping it at once a day, and see how nighttime would work out. For now, I'm just gonna use the inhaler he gave me and try and use the oxygen compressor the wife bought last year, and see how that system works.
 
M

mom2lillian

New member
I have changed back my work time from 7-8 and now I have to get up at 4:45am to get to work by 8am. The months I am 'on' TOBI are much harder than the months I am off.

Normally I wake and do my vest and xopenex and TOBI if applicable in the morning then I go to gym 1/2-45min because I feel it is essential now that I see the difference it has made. Then on the way to work I use a portable to do the pulmozyme. If I am not on TOBI then I do pulmozyme in morning.

I used to see 'where I could fit it in' and I got sick alot because I missed alot of treatments. Now I look at it more like Amy, have to do it without question. The results for me have been that for the first time ever I was not sick/in hospital in feb/mar.

I know it sucks but something has to go, sleep or long work hours. Perhaps if you were doing treatments and felt better you would be able to stand up on the train ride?? That owudl save you 15 min. Sometimes if I am pressed for time I will do a few puffs of albuterol instead of xopenex treatment (I never used to use xopenex but tried using every day in am and it really helps with clearance).
 
M

mom2lillian

New member
I have changed back my work time from 7-8 and now I have to get up at 4:45am to get to work by 8am. The months I am 'on' TOBI are much harder than the months I am off.

Normally I wake and do my vest and xopenex and TOBI if applicable in the morning then I go to gym 1/2-45min because I feel it is essential now that I see the difference it has made. Then on the way to work I use a portable to do the pulmozyme. If I am not on TOBI then I do pulmozyme in morning.

I used to see 'where I could fit it in' and I got sick alot because I missed alot of treatments. Now I look at it more like Amy, have to do it without question. The results for me have been that for the first time ever I was not sick/in hospital in feb/mar.

I know it sucks but something has to go, sleep or long work hours. Perhaps if you were doing treatments and felt better you would be able to stand up on the train ride?? That owudl save you 15 min. Sometimes if I am pressed for time I will do a few puffs of albuterol instead of xopenex treatment (I never used to use xopenex but tried using every day in am and it really helps with clearance).
 
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