Don't forget to breathe..

L

LisaV

New member
What with knowing that Pepe is fighting for her life this song has been running through my mind the past few days (as it did during when Rip was having particularly bad days and during my stepniece's wait for her tx)

Alexi Murdoch "Breathe" <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=TtaOyo3YaqI
">http://www.youtube.com/watch?v=TtaOyo3YaqI
</a>

We <i>are</i> all just lifers here, (so best to remember to focus on breathing and enjoying each and every breath, each and every day)...

But sometimes the gods <i>do</i> show mercy and there is an 11-hour reprieve....
 
L

LisaV

New member
What with knowing that Pepe is fighting for her life this song has been running through my mind the past few days (as it did during when Rip was having particularly bad days and during my stepniece's wait for her tx)

Alexi Murdoch "Breathe" <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=TtaOyo3YaqI
">http://www.youtube.com/watch?v=TtaOyo3YaqI
</a>

We <i>are</i> all just lifers here, (so best to remember to focus on breathing and enjoying each and every breath, each and every day)...

But sometimes the gods <i>do</i> show mercy and there is an 11-hour reprieve....
 
L

LisaV

New member
What with knowing that Pepe is fighting for her life this song has been running through my mind the past few days (as it did during when Rip was having particularly bad days and during my stepniece's wait for her tx)

Alexi Murdoch "Breathe" <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=TtaOyo3YaqI
">http://www.youtube.com/watch?v=TtaOyo3YaqI
</a>

We <i>are</i> all just lifers here, (so best to remember to focus on breathing and enjoying each and every breath, each and every day)...

But sometimes the gods <i>do</i> show mercy and there is an 11-hour reprieve....
 
L

LisaV

New member
What with knowing that Pepe is fighting for her life this song has been running through my mind the past few days (as it did during when Rip was having particularly bad days and during my stepniece's wait for her tx)

Alexi Murdoch "Breathe" <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=TtaOyo3YaqI
">http://www.youtube.com/watch?v=TtaOyo3YaqI
</a>

We <i>are</i> all just lifers here, (so best to remember to focus on breathing and enjoying each and every breath, each and every day)...

But sometimes the gods <i>do</i> show mercy and there is an 11-hour reprieve....
 
L

LisaV

New member
What with knowing that Pepe is fighting for her life this song has been running through my mind the past few days (as it did during when Rip was having particularly bad days and during my stepniece's wait for her tx)
<br />
<br />Alexi Murdoch "Breathe" <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=TtaOyo3YaqI
<br />">http://www.youtube.com/watch?v=TtaOyo3YaqI
<br /></a>
<br />
<br />We <i>are</i> all just lifers here, (so best to remember to focus on breathing and enjoying each and every breath, each and every day)...
<br />
<br />But sometimes the gods <i>do</i> show mercy and there is an 11-hour reprieve....
<br />
 
L

lightNlife

New member
The phrase that comes to mind for me is "back from the brink." Even with the good news of lungs for Pepe, I'm still quite angry that this disease rips your life to shreds the way it does. Somehow even a successful transplant sounds like she (and others in her situation) are getting short-changed in return for all the horror that CF has caused.
 
L

lightNlife

New member
The phrase that comes to mind for me is "back from the brink." Even with the good news of lungs for Pepe, I'm still quite angry that this disease rips your life to shreds the way it does. Somehow even a successful transplant sounds like she (and others in her situation) are getting short-changed in return for all the horror that CF has caused.
 
L

lightNlife

New member
The phrase that comes to mind for me is "back from the brink." Even with the good news of lungs for Pepe, I'm still quite angry that this disease rips your life to shreds the way it does. Somehow even a successful transplant sounds like she (and others in her situation) are getting short-changed in return for all the horror that CF has caused.
 
L

lightNlife

New member
The phrase that comes to mind for me is "back from the brink." Even with the good news of lungs for Pepe, I'm still quite angry that this disease rips your life to shreds the way it does. Somehow even a successful transplant sounds like she (and others in her situation) are getting short-changed in return for all the horror that CF has caused.
 
L

lightNlife

New member
The phrase that comes to mind for me is "back from the brink." Even with the good news of lungs for Pepe, I'm still quite angry that this disease rips your life to shreds the way it does. Somehow even a successful transplant sounds like she (and others in her situation) are getting short-changed in return for all the horror that CF has caused.
<br />
 
L

LisaV

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

Dude... this was like the 11th hour, 59th minute, and 59th second. I'm still shocked off my ass.</end quote></div>

Yes, I know Em. Me too.

This is the 2nd time I've witnessed the very last minute thing. My stepniece, Lindsay, was so ill she had been placed on heart/lung when her lungs arrived at Pittsburgh. The docs had already talked to her parents about her being a donor for non-lung stuff.

I am not pleased with this suffering and last minute stuff. Don't think I posted this song because I feel that way. CF sucks. Having to suffer and wait until you are basically dead to get a tx sucks. I quite understand why Rip didn't want a tx even.

It's just that the song always used to remind me of the sound of the mechanical (or final) breath of no more chances left--of no 11th hour reprieve. I used to run it in my mind as Rip fought for breath through really bad exacerbations, thinking "just breathe". I wanted you all to hear that song, but now with both Lindsay and Gina getting the last minute reprieve I felt I needed to "soften" that line of the lyrics.

Keeping you all in my heart,
LisaV
 
L

LisaV

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

Dude... this was like the 11th hour, 59th minute, and 59th second. I'm still shocked off my ass.</end quote></div>

Yes, I know Em. Me too.

This is the 2nd time I've witnessed the very last minute thing. My stepniece, Lindsay, was so ill she had been placed on heart/lung when her lungs arrived at Pittsburgh. The docs had already talked to her parents about her being a donor for non-lung stuff.

I am not pleased with this suffering and last minute stuff. Don't think I posted this song because I feel that way. CF sucks. Having to suffer and wait until you are basically dead to get a tx sucks. I quite understand why Rip didn't want a tx even.

It's just that the song always used to remind me of the sound of the mechanical (or final) breath of no more chances left--of no 11th hour reprieve. I used to run it in my mind as Rip fought for breath through really bad exacerbations, thinking "just breathe". I wanted you all to hear that song, but now with both Lindsay and Gina getting the last minute reprieve I felt I needed to "soften" that line of the lyrics.

Keeping you all in my heart,
LisaV
 
L

LisaV

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

Dude... this was like the 11th hour, 59th minute, and 59th second. I'm still shocked off my ass.</end quote></div>

Yes, I know Em. Me too.

This is the 2nd time I've witnessed the very last minute thing. My stepniece, Lindsay, was so ill she had been placed on heart/lung when her lungs arrived at Pittsburgh. The docs had already talked to her parents about her being a donor for non-lung stuff.

I am not pleased with this suffering and last minute stuff. Don't think I posted this song because I feel that way. CF sucks. Having to suffer and wait until you are basically dead to get a tx sucks. I quite understand why Rip didn't want a tx even.

It's just that the song always used to remind me of the sound of the mechanical (or final) breath of no more chances left--of no 11th hour reprieve. I used to run it in my mind as Rip fought for breath through really bad exacerbations, thinking "just breathe". I wanted you all to hear that song, but now with both Lindsay and Gina getting the last minute reprieve I felt I needed to "soften" that line of the lyrics.

Keeping you all in my heart,
LisaV
 
L

LisaV

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

Dude... this was like the 11th hour, 59th minute, and 59th second. I'm still shocked off my ass.</end quote>

Yes, I know Em. Me too.

This is the 2nd time I've witnessed the very last minute thing. My stepniece, Lindsay, was so ill she had been placed on heart/lung when her lungs arrived at Pittsburgh. The docs had already talked to her parents about her being a donor for non-lung stuff.

I am not pleased with this suffering and last minute stuff. Don't think I posted this song because I feel that way. CF sucks. Having to suffer and wait until you are basically dead to get a tx sucks. I quite understand why Rip didn't want a tx even.

It's just that the song always used to remind me of the sound of the mechanical (or final) breath of no more chances left--of no 11th hour reprieve. I used to run it in my mind as Rip fought for breath through really bad exacerbations, thinking "just breathe". I wanted you all to hear that song, but now with both Lindsay and Gina getting the last minute reprieve I felt I needed to "soften" that line of the lyrics.

Keeping you all in my heart,
LisaV
 
L

LisaV

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>
<br />
<br />Dude... this was like the 11th hour, 59th minute, and 59th second. I'm still shocked off my ass.</end quote>
<br />
<br />Yes, I know Em. Me too.
<br />
<br />This is the 2nd time I've witnessed the very last minute thing. My stepniece, Lindsay, was so ill she had been placed on heart/lung when her lungs arrived at Pittsburgh. The docs had already talked to her parents about her being a donor for non-lung stuff.
<br />
<br />I am not pleased with this suffering and last minute stuff. Don't think I posted this song because I feel that way. CF sucks. Having to suffer and wait until you are basically dead to get a tx sucks. I quite understand why Rip didn't want a tx even.
<br />
<br />It's just that the song always used to remind me of the sound of the mechanical (or final) breath of no more chances left--of no 11th hour reprieve. I used to run it in my mind as Rip fought for breath through really bad exacerbations, thinking "just breathe". I wanted you all to hear that song, but now with both Lindsay and Gina getting the last minute reprieve I felt I needed to "soften" that line of the lyrics.
<br />
<br />Keeping you all in my heart,
<br />LisaV
 
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