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Don't wait on Death
- Thread starter Brad
- Start date
Wow, what a responce, Thank You all for reading and posting Your thoughts....
I grew up in a family with 3 other Cf siblings, the oldest passed when I was 14 he
was 27, 2 years before the another brother ( the only one out of 5 who was cf free and healthy )
was killed in an accident, I was 12, he was 16 at the time, so hearing about
it and seeing it scared me, so death is real, no dought, just don't fear it or wait
for it to happen,,,,,,, as I read here ( get busy living or get busy dying )....
I to took control Sean, I started lifting weights at a young age, I am now
5'10'' 230 lbs,,,,I can bench much more than my own weight.
Thank You all for sharing Your thoughts . I am new here and you will find that
I don't mind sharing, Something I would not have done when I was Younger
when I was Younger I Never told anyone about Cf, don't know why, I was just Young,,,,
I grew up in a family with 3 other Cf siblings, the oldest passed when I was 14 he
was 27, 2 years before the another brother ( the only one out of 5 who was cf free and healthy )
was killed in an accident, I was 12, he was 16 at the time, so hearing about
it and seeing it scared me, so death is real, no dought, just don't fear it or wait
for it to happen,,,,,,, as I read here ( get busy living or get busy dying )....
I to took control Sean, I started lifting weights at a young age, I am now
5'10'' 230 lbs,,,,I can bench much more than my own weight.
Thank You all for sharing Your thoughts . I am new here and you will find that
I don't mind sharing, Something I would not have done when I was Younger
when I was Younger I Never told anyone about Cf, don't know why, I was just Young,,,,
Wow, what a responce, Thank You all for reading and posting Your thoughts....
I grew up in a family with 3 other Cf siblings, the oldest passed when I was 14 he
was 27, 2 years before the another brother ( the only one out of 5 who was cf free and healthy )
was killed in an accident, I was 12, he was 16 at the time, so hearing about
it and seeing it scared me, so death is real, no dought, just don't fear it or wait
for it to happen,,,,,,, as I read here ( get busy living or get busy dying )....
I to took control Sean, I started lifting weights at a young age, I am now
5'10'' 230 lbs,,,,I can bench much more than my own weight.
Thank You all for sharing Your thoughts . I am new here and you will find that
I don't mind sharing, Something I would not have done when I was Younger
when I was Younger I Never told anyone about Cf, don't know why, I was just Young,,,,
I grew up in a family with 3 other Cf siblings, the oldest passed when I was 14 he
was 27, 2 years before the another brother ( the only one out of 5 who was cf free and healthy )
was killed in an accident, I was 12, he was 16 at the time, so hearing about
it and seeing it scared me, so death is real, no dought, just don't fear it or wait
for it to happen,,,,,,, as I read here ( get busy living or get busy dying )....
I to took control Sean, I started lifting weights at a young age, I am now
5'10'' 230 lbs,,,,I can bench much more than my own weight.
Thank You all for sharing Your thoughts . I am new here and you will find that
I don't mind sharing, Something I would not have done when I was Younger
when I was Younger I Never told anyone about Cf, don't know why, I was just Young,,,,
clairebells
New member
There is nothing wrong with being curious about death when one has a serious life-shortening disease (and that IS the reality of CF, unfortunately). Of course it's not great to obsess about it too much, because then it becomes hard to enjoy life to the max - but to wonder about it is natural and worth due consideration (for all of us, I might add).
People with CF who live into their forties and fifties without transplantation have milder variations of CF than those with full-blown, more serious CF - who are more likely to fall into the category of dying before the mid-thirties median life expectancy. There are unfortunately many young people severely affected by CF; of course they want more information about death in order to prepare themselves and their loved ones, and should not be criticized for doing so.
Jenny (mom to Chrissy 4 w/CF, and Claire 6 no/CF)
People with CF who live into their forties and fifties without transplantation have milder variations of CF than those with full-blown, more serious CF - who are more likely to fall into the category of dying before the mid-thirties median life expectancy. There are unfortunately many young people severely affected by CF; of course they want more information about death in order to prepare themselves and their loved ones, and should not be criticized for doing so.
Jenny (mom to Chrissy 4 w/CF, and Claire 6 no/CF)
clairebells
New member
There is nothing wrong with being curious about death when one has a serious life-shortening disease (and that IS the reality of CF, unfortunately). Of course it's not great to obsess about it too much, because then it becomes hard to enjoy life to the max - but to wonder about it is natural and worth due consideration (for all of us, I might add).
People with CF who live into their forties and fifties without transplantation have milder variations of CF than those with full-blown, more serious CF - who are more likely to fall into the category of dying before the mid-thirties median life expectancy. There are unfortunately many young people severely affected by CF; of course they want more information about death in order to prepare themselves and their loved ones, and should not be criticized for doing so.
Jenny (mom to Chrissy 4 w/CF, and Claire 6 no/CF)
People with CF who live into their forties and fifties without transplantation have milder variations of CF than those with full-blown, more serious CF - who are more likely to fall into the category of dying before the mid-thirties median life expectancy. There are unfortunately many young people severely affected by CF; of course they want more information about death in order to prepare themselves and their loved ones, and should not be criticized for doing so.
Jenny (mom to Chrissy 4 w/CF, and Claire 6 no/CF)
S
skh
Guest
Beth, it's ok that your sister thinks towards the future. No, if she didn't have CF she may not have focused on some of the issues that she has. But I think it's healthy for her to face those issues - do I think she should just "settle" and not fight for what she wants - no and I don't believe she will settle. She is a very strong person and she has us (dad, Amanda, you & me and how many aunts, uncles and cousins) to help her with that fight. She is very lucky to have such an awesome support system. Our stubborness is going to finally pay off!
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
S
skh
Guest
Beth, it's ok that your sister thinks towards the future. No, if she didn't have CF she may not have focused on some of the issues that she has. But I think it's healthy for her to face those issues - do I think she should just "settle" and not fight for what she wants - no and I don't believe she will settle. She is a very strong person and she has us (dad, Amanda, you & me and how many aunts, uncles and cousins) to help her with that fight. She is very lucky to have such an awesome support system. Our stubborness is going to finally pay off!
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
S
skh
Guest
Beth, it's ok that your sister thinks towards the future. No, if she didn't have CF she may not have focused on some of the issues that she has. But I think it's healthy for her to face those issues - do I think she should just "settle" and not fight for what she wants - no and I don't believe she will settle. She is a very strong person and she has us (dad, Amanda, you & me and how many aunts, uncles and cousins) to help her with that fight. She is very lucky to have such an awesome support system. Our stubborness is going to finally pay off!
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
S
skh
Guest
Beth, it's ok that your sister thinks towards the future. No, if she didn't have CF she may not have focused on some of the issues that she has. But I think it's healthy for her to face those issues - do I think she should just "settle" and not fight for what she wants - no and I don't believe she will settle. She is a very strong person and she has us (dad, Amanda, you & me and how many aunts, uncles and cousins) to help her with that fight. She is very lucky to have such an awesome support system. Our stubborness is going to finally pay off!
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
S
skh
Guest
Beth, it's ok that your sister thinks towards the future. No, if she didn't have CF she may not have focused on some of the issues that she has. But I think it's healthy for her to face those issues - do I think she should just "settle" and not fight for what she wants - no and I don't believe she will settle. She is a very strong person and she has us (dad, Amanda, you & me and how many aunts, uncles and cousins) to help her with that fight. She is very lucky to have such an awesome support system. Our stubborness is going to finally pay off!
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
S
skh
Guest
Beth, it's ok that your sister thinks towards the future. No, if she didn't have CF she may not have focused on some of the issues that she has. But I think it's healthy for her to face those issues - do I think she should just "settle" and not fight for what she wants - no and I don't believe she will settle. She is a very strong person and she has us (dad, Amanda, you & me and how many aunts, uncles and cousins) to help her with that fight. She is very lucky to have such an awesome support system. Our stubborness is going to finally pay off!
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
S
skh
Guest
Beth, it's ok that your sister thinks towards the future. No, if she didn't have CF she may not have focused on some of the issues that she has. But I think it's healthy for her to face those issues - do I think she should just "settle" and not fight for what she wants - no and I don't believe she will settle. She is a very strong person and she has us (dad, Amanda, you & me and how many aunts, uncles and cousins) to help her with that fight. She is very lucky to have such an awesome support system. Our stubborness is going to finally pay off!
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
S
skh
Guest
Beth, it's ok that your sister thinks towards the future. No, if she didn't have CF she may not have focused on some of the issues that she has. But I think it's healthy for her to face those issues - do I think she should just "settle" and not fight for what she wants - no and I don't believe she will settle. She is a very strong person and she has us (dad, Amanda, you & me and how many aunts, uncles and cousins) to help her with that fight. She is very lucky to have such an awesome support system. Our stubborness is going to finally pay off!
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
S
skh
Guest
Beth, it's ok that your sister thinks towards the future. No, if she didn't have CF she may not have focused on some of the issues that she has. But I think it's healthy for her to face those issues - do I think she should just "settle" and not fight for what she wants - no and I don't believe she will settle. She is a very strong person and she has us (dad, Amanda, you & me and how many aunts, uncles and cousins) to help her with that fight. She is very lucky to have such an awesome support system. Our stubborness is going to finally pay off!
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
S
skh
Guest
Beth, it's ok that your sister thinks towards the future. No, if she didn't have CF she may not have focused on some of the issues that she has. But I think it's healthy for her to face those issues - do I think she should just "settle" and not fight for what she wants - no and I don't believe she will settle. She is a very strong person and she has us (dad, Amanda, you & me and how many aunts, uncles and cousins) to help her with that fight. She is very lucky to have such an awesome support system. Our stubborness is going to finally pay off!
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
Brad, I can't agree with you more. You were able to take control and look where you're at! I want that for my daughter and I hope that I help instill that determination in her. I think all of you are an inspiration for the younger CF generation.
But that's not saying that just because you take control that death won't happen. That's the natural process of life for all of us. I think about death but I don't obsess about it. Am I scared of it - yes, which I am embarrassed to admit because I feel I shouldn't be. I'll need to work on that. It doesn't hurt to gather as much knowledge as you can, no matter what the subject is.
Sue
Heh 5 posts in a row SKH! I guess the server is actin up lag wise...
Anyways. Yeah I know we all die, and us CF's shouldn't think about living to see our 80's...And I also know that mutation plays a large roll with regards to how we do, and how long we live. BUT, to me the biggest factor is being asertive, and being "hard" mentally. Every single cystic I knew growing up, who were very "soft" mentally, are all dead now. These people were the type to never even try exercising (when they were relatively healthy), who never thought about looking into other options on their own like supplements, better diet, lifting weights, and tons of other examples. They just basically sat there, with a giant "poor me" outlook, did NOTHING for themselves in any way, and basically threw themselves upon the doctors hoping to be fixed from constantl health problems. Don't get me wrong, I wasn't exactly johnny gung ho when it came to my health while growing up, but I was far from a soft person mentally, and I was very active growing up exercise wise. Most of these kids that were soft and died mostly also had very poor parents at home who frankly didn't care about them, so that played a part also. As for mutations, I know I have two, one is the typical delta, the other is a "weird one" that my doctor told me about, but I forget what it is now. While i'm sure it's entirely possible to have much worse mutations, even if I did, and my PFT's were consistently lower than my normal in this life, I wouldn't be passive about the whole thing. It's easy to give up, but by fighting and being tough, you could possibly get atleast a few more years of relatively quality life back.
And no, i'm not saying just because someone died fairly early with CF, that it makes them "soft", i'm not using a wide brush with this statement, I am only calling those who I knew were soft, soft. At my lowest health point, I went through a very brief period of apathy, as soon as that was over I got very angry, and I was determined to fight with everything I had. I was like that all growing up, but even someone who prides themself on being a fighter, can have momentary lapses of apathy. Just don't give up guys, regardless what shape you are in or what mutations you have...Fight against the dying of the light.
Anyways. Yeah I know we all die, and us CF's shouldn't think about living to see our 80's...And I also know that mutation plays a large roll with regards to how we do, and how long we live. BUT, to me the biggest factor is being asertive, and being "hard" mentally. Every single cystic I knew growing up, who were very "soft" mentally, are all dead now. These people were the type to never even try exercising (when they were relatively healthy), who never thought about looking into other options on their own like supplements, better diet, lifting weights, and tons of other examples. They just basically sat there, with a giant "poor me" outlook, did NOTHING for themselves in any way, and basically threw themselves upon the doctors hoping to be fixed from constantl health problems. Don't get me wrong, I wasn't exactly johnny gung ho when it came to my health while growing up, but I was far from a soft person mentally, and I was very active growing up exercise wise. Most of these kids that were soft and died mostly also had very poor parents at home who frankly didn't care about them, so that played a part also. As for mutations, I know I have two, one is the typical delta, the other is a "weird one" that my doctor told me about, but I forget what it is now. While i'm sure it's entirely possible to have much worse mutations, even if I did, and my PFT's were consistently lower than my normal in this life, I wouldn't be passive about the whole thing. It's easy to give up, but by fighting and being tough, you could possibly get atleast a few more years of relatively quality life back.
And no, i'm not saying just because someone died fairly early with CF, that it makes them "soft", i'm not using a wide brush with this statement, I am only calling those who I knew were soft, soft. At my lowest health point, I went through a very brief period of apathy, as soon as that was over I got very angry, and I was determined to fight with everything I had. I was like that all growing up, but even someone who prides themself on being a fighter, can have momentary lapses of apathy. Just don't give up guys, regardless what shape you are in or what mutations you have...Fight against the dying of the light.
Heh 5 posts in a row SKH! I guess the server is actin up lag wise...
Anyways. Yeah I know we all die, and us CF's shouldn't think about living to see our 80's...And I also know that mutation plays a large roll with regards to how we do, and how long we live. BUT, to me the biggest factor is being asertive, and being "hard" mentally. Every single cystic I knew growing up, who were very "soft" mentally, are all dead now. These people were the type to never even try exercising (when they were relatively healthy), who never thought about looking into other options on their own like supplements, better diet, lifting weights, and tons of other examples. They just basically sat there, with a giant "poor me" outlook, did NOTHING for themselves in any way, and basically threw themselves upon the doctors hoping to be fixed from constantl health problems. Don't get me wrong, I wasn't exactly johnny gung ho when it came to my health while growing up, but I was far from a soft person mentally, and I was very active growing up exercise wise. Most of these kids that were soft and died mostly also had very poor parents at home who frankly didn't care about them, so that played a part also. As for mutations, I know I have two, one is the typical delta, the other is a "weird one" that my doctor told me about, but I forget what it is now. While i'm sure it's entirely possible to have much worse mutations, even if I did, and my PFT's were consistently lower than my normal in this life, I wouldn't be passive about the whole thing. It's easy to give up, but by fighting and being tough, you could possibly get atleast a few more years of relatively quality life back.
And no, i'm not saying just because someone died fairly early with CF, that it makes them "soft", i'm not using a wide brush with this statement, I am only calling those who I knew were soft, soft. At my lowest health point, I went through a very brief period of apathy, as soon as that was over I got very angry, and I was determined to fight with everything I had. I was like that all growing up, but even someone who prides themself on being a fighter, can have momentary lapses of apathy. Just don't give up guys, regardless what shape you are in or what mutations you have...Fight against the dying of the light.
Anyways. Yeah I know we all die, and us CF's shouldn't think about living to see our 80's...And I also know that mutation plays a large roll with regards to how we do, and how long we live. BUT, to me the biggest factor is being asertive, and being "hard" mentally. Every single cystic I knew growing up, who were very "soft" mentally, are all dead now. These people were the type to never even try exercising (when they were relatively healthy), who never thought about looking into other options on their own like supplements, better diet, lifting weights, and tons of other examples. They just basically sat there, with a giant "poor me" outlook, did NOTHING for themselves in any way, and basically threw themselves upon the doctors hoping to be fixed from constantl health problems. Don't get me wrong, I wasn't exactly johnny gung ho when it came to my health while growing up, but I was far from a soft person mentally, and I was very active growing up exercise wise. Most of these kids that were soft and died mostly also had very poor parents at home who frankly didn't care about them, so that played a part also. As for mutations, I know I have two, one is the typical delta, the other is a "weird one" that my doctor told me about, but I forget what it is now. While i'm sure it's entirely possible to have much worse mutations, even if I did, and my PFT's were consistently lower than my normal in this life, I wouldn't be passive about the whole thing. It's easy to give up, but by fighting and being tough, you could possibly get atleast a few more years of relatively quality life back.
And no, i'm not saying just because someone died fairly early with CF, that it makes them "soft", i'm not using a wide brush with this statement, I am only calling those who I knew were soft, soft. At my lowest health point, I went through a very brief period of apathy, as soon as that was over I got very angry, and I was determined to fight with everything I had. I was like that all growing up, but even someone who prides themself on being a fighter, can have momentary lapses of apathy. Just don't give up guys, regardless what shape you are in or what mutations you have...Fight against the dying of the light.