Dr. wants a 2-week tune-up

sullihs

New member
We haven't had the 2 week hospital visit yet so I don't know what it all entails, but I do have a 6 year old boy. My son is very active and would have a difficult time as well. The only things that I know of that keep my son still and busy for long periods of time are board games...he loves battleship, connect 4, card games like go fish and memory type matching games. The one other thing that keeps him occupied for hours is Legos. I don't know if this is something that would work in the hospital, but my son has a lego table that sits over his lap and I will get him one of the hard sets that I have to help with and he will build for hours. He worked on a castle set for 2 straight days at his granparents house when it was storming over Easter. That is all I can think of... Good luck...we will be thinking about you.

I don't know much about the CF clinic there but if it is anything else like the rest of Emory, then they should know what they are talking about.
 

sullihs

New member
We haven't had the 2 week hospital visit yet so I don't know what it all entails, but I do have a 6 year old boy. My son is very active and would have a difficult time as well. The only things that I know of that keep my son still and busy for long periods of time are board games...he loves battleship, connect 4, card games like go fish and memory type matching games. The one other thing that keeps him occupied for hours is Legos. I don't know if this is something that would work in the hospital, but my son has a lego table that sits over his lap and I will get him one of the hard sets that I have to help with and he will build for hours. He worked on a castle set for 2 straight days at his granparents house when it was storming over Easter. That is all I can think of... Good luck...we will be thinking about you.

I don't know much about the CF clinic there but if it is anything else like the rest of Emory, then they should know what they are talking about.
 

sullihs

New member
We haven't had the 2 week hospital visit yet so I don't know what it all entails, but I do have a 6 year old boy. My son is very active and would have a difficult time as well. The only things that I know of that keep my son still and busy for long periods of time are board games...he loves battleship, connect 4, card games like go fish and memory type matching games. The one other thing that keeps him occupied for hours is Legos. I don't know if this is something that would work in the hospital, but my son has a lego table that sits over his lap and I will get him one of the hard sets that I have to help with and he will build for hours. He worked on a castle set for 2 straight days at his granparents house when it was storming over Easter. That is all I can think of... Good luck...we will be thinking about you.

I don't know much about the CF clinic there but if it is anything else like the rest of Emory, then they should know what they are talking about.
 

sullihs

New member
We haven't had the 2 week hospital visit yet so I don't know what it all entails, but I do have a 6 year old boy. My son is very active and would have a difficult time as well. The only things that I know of that keep my son still and busy for long periods of time are board games...he loves battleship, connect 4, card games like go fish and memory type matching games. The one other thing that keeps him occupied for hours is Legos. I don't know if this is something that would work in the hospital, but my son has a lego table that sits over his lap and I will get him one of the hard sets that I have to help with and he will build for hours. He worked on a castle set for 2 straight days at his granparents house when it was storming over Easter. That is all I can think of... Good luck...we will be thinking about you.

I don't know much about the CF clinic there but if it is anything else like the rest of Emory, then they should know what they are talking about.
 

sullihs

New member
We haven't had the 2 week hospital visit yet so I don't know what it all entails, but I do have a 6 year old boy. My son is very active and would have a difficult time as well. The only things that I know of that keep my son still and busy for long periods of time are board games...he loves battleship, connect 4, card games like go fish and memory type matching games. The one other thing that keeps him occupied for hours is Legos. I don't know if this is something that would work in the hospital, but my son has a lego table that sits over his lap and I will get him one of the hard sets that I have to help with and he will build for hours. He worked on a castle set for 2 straight days at his granparents house when it was storming over Easter. That is all I can think of... Good luck...we will be thinking about you.
<br />
<br />I don't know much about the CF clinic there but if it is anything else like the rest of Emory, then they should know what they are talking about.
 

Liza

New member
Oh Tom, it sounds like your poor son has been so neglected not only in his own home but then in foster care as well. It almost seems like there wasn't much of a difference between the two. They both failed in providing him with the proper medical care.

I can certainly see now why they want him in hospital and I have to agree. My oldest daughters first hospital stay was just a couple of weeks after she was diagnosed. She was 3 yrs old. (history: she was diagnosed just one week before our second daughter was born). They admitted her for tests and so she could get used to the hospital environment.

With time your son will learn how to do a pft. They can work wonders on children, teaching them how to do what they need to do. Being at a children's hospital I have every confidence that he will now get excellent attention. Child life has been wonderful at every hospital we have been to. They will teach your son through play about all the different things that are happening. I can remember my daughter making a doll so that she could practice CPT with, they taped a bandage to her arm with an attached line, gave her a needleless syringe and a neb. with mask. So her doll could do everything she was having to do. It had a little hospital gown and everything. I know you have a son but a boy doll is good too.

The nurses are also usually really great. You may encounter one or two that's not so great, we have, but for the most part they are. Here's one thing I always did and still do and you can see how old my girls are now. I bring in their own blanket or comforter and their own pillow. I also would request an egg crate topper to be put on their beds to make it softer. The one time they didn't have them I went out and bought one of those lesser expensive memory foam toppers the 1" size, in the twin or twin XL size. Take it home and bring it in the next time. Our hospital only has VCR's, (they are slowly upgrading) and I purchase old VHS movies at garage sales only for the hospital. How is your son's activity level? Keep this in mind for later if you need to, I mentioned bringing in our daughter's bike and putting it on a trainer, she'd peddle away while playing nintendo. That was when the doctor came in and said "get her out of here, she's not sick". That was on day 7. But if he likes his bike that's an idea to do. Anything to keep him moving because they don't get much exercise in the hospital.

I tend to rattle on, Sorry. Keep us posted on how he's doing. He's so lucky to have you now!
 

Liza

New member
Oh Tom, it sounds like your poor son has been so neglected not only in his own home but then in foster care as well. It almost seems like there wasn't much of a difference between the two. They both failed in providing him with the proper medical care.

I can certainly see now why they want him in hospital and I have to agree. My oldest daughters first hospital stay was just a couple of weeks after she was diagnosed. She was 3 yrs old. (history: she was diagnosed just one week before our second daughter was born). They admitted her for tests and so she could get used to the hospital environment.

With time your son will learn how to do a pft. They can work wonders on children, teaching them how to do what they need to do. Being at a children's hospital I have every confidence that he will now get excellent attention. Child life has been wonderful at every hospital we have been to. They will teach your son through play about all the different things that are happening. I can remember my daughter making a doll so that she could practice CPT with, they taped a bandage to her arm with an attached line, gave her a needleless syringe and a neb. with mask. So her doll could do everything she was having to do. It had a little hospital gown and everything. I know you have a son but a boy doll is good too.

The nurses are also usually really great. You may encounter one or two that's not so great, we have, but for the most part they are. Here's one thing I always did and still do and you can see how old my girls are now. I bring in their own blanket or comforter and their own pillow. I also would request an egg crate topper to be put on their beds to make it softer. The one time they didn't have them I went out and bought one of those lesser expensive memory foam toppers the 1" size, in the twin or twin XL size. Take it home and bring it in the next time. Our hospital only has VCR's, (they are slowly upgrading) and I purchase old VHS movies at garage sales only for the hospital. How is your son's activity level? Keep this in mind for later if you need to, I mentioned bringing in our daughter's bike and putting it on a trainer, she'd peddle away while playing nintendo. That was when the doctor came in and said "get her out of here, she's not sick". That was on day 7. But if he likes his bike that's an idea to do. Anything to keep him moving because they don't get much exercise in the hospital.

I tend to rattle on, Sorry. Keep us posted on how he's doing. He's so lucky to have you now!
 

Liza

New member
Oh Tom, it sounds like your poor son has been so neglected not only in his own home but then in foster care as well. It almost seems like there wasn't much of a difference between the two. They both failed in providing him with the proper medical care.

I can certainly see now why they want him in hospital and I have to agree. My oldest daughters first hospital stay was just a couple of weeks after she was diagnosed. She was 3 yrs old. (history: she was diagnosed just one week before our second daughter was born). They admitted her for tests and so she could get used to the hospital environment.

With time your son will learn how to do a pft. They can work wonders on children, teaching them how to do what they need to do. Being at a children's hospital I have every confidence that he will now get excellent attention. Child life has been wonderful at every hospital we have been to. They will teach your son through play about all the different things that are happening. I can remember my daughter making a doll so that she could practice CPT with, they taped a bandage to her arm with an attached line, gave her a needleless syringe and a neb. with mask. So her doll could do everything she was having to do. It had a little hospital gown and everything. I know you have a son but a boy doll is good too.

The nurses are also usually really great. You may encounter one or two that's not so great, we have, but for the most part they are. Here's one thing I always did and still do and you can see how old my girls are now. I bring in their own blanket or comforter and their own pillow. I also would request an egg crate topper to be put on their beds to make it softer. The one time they didn't have them I went out and bought one of those lesser expensive memory foam toppers the 1" size, in the twin or twin XL size. Take it home and bring it in the next time. Our hospital only has VCR's, (they are slowly upgrading) and I purchase old VHS movies at garage sales only for the hospital. How is your son's activity level? Keep this in mind for later if you need to, I mentioned bringing in our daughter's bike and putting it on a trainer, she'd peddle away while playing nintendo. That was when the doctor came in and said "get her out of here, she's not sick". That was on day 7. But if he likes his bike that's an idea to do. Anything to keep him moving because they don't get much exercise in the hospital.

I tend to rattle on, Sorry. Keep us posted on how he's doing. He's so lucky to have you now!
 

Liza

New member
Oh Tom, it sounds like your poor son has been so neglected not only in his own home but then in foster care as well. It almost seems like there wasn't much of a difference between the two. They both failed in providing him with the proper medical care.

I can certainly see now why they want him in hospital and I have to agree. My oldest daughters first hospital stay was just a couple of weeks after she was diagnosed. She was 3 yrs old. (history: she was diagnosed just one week before our second daughter was born). They admitted her for tests and so she could get used to the hospital environment.

With time your son will learn how to do a pft. They can work wonders on children, teaching them how to do what they need to do. Being at a children's hospital I have every confidence that he will now get excellent attention. Child life has been wonderful at every hospital we have been to. They will teach your son through play about all the different things that are happening. I can remember my daughter making a doll so that she could practice CPT with, they taped a bandage to her arm with an attached line, gave her a needleless syringe and a neb. with mask. So her doll could do everything she was having to do. It had a little hospital gown and everything. I know you have a son but a boy doll is good too.

The nurses are also usually really great. You may encounter one or two that's not so great, we have, but for the most part they are. Here's one thing I always did and still do and you can see how old my girls are now. I bring in their own blanket or comforter and their own pillow. I also would request an egg crate topper to be put on their beds to make it softer. The one time they didn't have them I went out and bought one of those lesser expensive memory foam toppers the 1" size, in the twin or twin XL size. Take it home and bring it in the next time. Our hospital only has VCR's, (they are slowly upgrading) and I purchase old VHS movies at garage sales only for the hospital. How is your son's activity level? Keep this in mind for later if you need to, I mentioned bringing in our daughter's bike and putting it on a trainer, she'd peddle away while playing nintendo. That was when the doctor came in and said "get her out of here, she's not sick". That was on day 7. But if he likes his bike that's an idea to do. Anything to keep him moving because they don't get much exercise in the hospital.

I tend to rattle on, Sorry. Keep us posted on how he's doing. He's so lucky to have you now!
 

Liza

New member
Oh Tom, it sounds like your poor son has been so neglected not only in his own home but then in foster care as well. It almost seems like there wasn't much of a difference between the two. They both failed in providing him with the proper medical care.
<br />
<br />I can certainly see now why they want him in hospital and I have to agree. My oldest daughters first hospital stay was just a couple of weeks after she was diagnosed. She was 3 yrs old. (history: she was diagnosed just one week before our second daughter was born). They admitted her for tests and so she could get used to the hospital environment.
<br />
<br />With time your son will learn how to do a pft. They can work wonders on children, teaching them how to do what they need to do. Being at a children's hospital I have every confidence that he will now get excellent attention. Child life has been wonderful at every hospital we have been to. They will teach your son through play about all the different things that are happening. I can remember my daughter making a doll so that she could practice CPT with, they taped a bandage to her arm with an attached line, gave her a needleless syringe and a neb. with mask. So her doll could do everything she was having to do. It had a little hospital gown and everything. I know you have a son but a boy doll is good too.
<br />
<br />The nurses are also usually really great. You may encounter one or two that's not so great, we have, but for the most part they are. Here's one thing I always did and still do and you can see how old my girls are now. I bring in their own blanket or comforter and their own pillow. I also would request an egg crate topper to be put on their beds to make it softer. The one time they didn't have them I went out and bought one of those lesser expensive memory foam toppers the 1" size, in the twin or twin XL size. Take it home and bring it in the next time. Our hospital only has VCR's, (they are slowly upgrading) and I purchase old VHS movies at garage sales only for the hospital. How is your son's activity level? Keep this in mind for later if you need to, I mentioned bringing in our daughter's bike and putting it on a trainer, she'd peddle away while playing nintendo. That was when the doctor came in and said "get her out of here, she's not sick". That was on day 7. But if he likes his bike that's an idea to do. Anything to keep him moving because they don't get much exercise in the hospital.
<br />
<br />I tend to rattle on, Sorry. Keep us posted on how he's doing. He's so lucky to have you now!
<br />
<br />
 

Liza

New member
Hi Wife of Tom, I didn't read on until after posting my reply to Tom's. I just wanted to say hi so you didn't think I ignored addressing you and just spoke to your husband.
 

Liza

New member
Hi Wife of Tom, I didn't read on until after posting my reply to Tom's. I just wanted to say hi so you didn't think I ignored addressing you and just spoke to your husband.
 

Liza

New member
Hi Wife of Tom, I didn't read on until after posting my reply to Tom's. I just wanted to say hi so you didn't think I ignored addressing you and just spoke to your husband.
 

Liza

New member
Hi Wife of Tom, I didn't read on until after posting my reply to Tom's. I just wanted to say hi so you didn't think I ignored addressing you and just spoke to your husband.
 

Liza

New member
Hi Wife of Tom, I didn't read on until after posting my reply to Tom's. I just wanted to say hi so you didn't think I ignored addressing you and just spoke to your husband.
<br />
<br />
 

TestifyToLove

New member
LOL, no sweat. Normally, I'm the message board type and Dh makes fun of me.

Thank you for the doll idea! I used to let our son with hemophilia infuse his doll and teddy bears while he learned to deal with his needles and hemophilia. M just got his first doll for his belated birthday when we got him home (all of our children get dolls, regardless of whether they are boys or girls). I will make sure to pack it for the hospital so he can give his doll treatments too.

I'm also trying to finish a fleece no-sew fleece blanket for him before he goes in. Of course, I choose one that has embellishments which require being sewn on and its not exactly a no-sew blanket anymore. I'm hoping to have it done in time for him to go to the hospital. AFAIK, he's never been given lovies to cuddle and find comfort in before now.

Fostermom sent a sippy cup she called his 'bottle' (which he drank pediasure in bed at night without brushing his teeth-great for that bottle rot he's still battling). She said it was the only thing in the house he was attached to. *Sigh* I'm a huge fan of encouraging attachments, especially for kiddos who have medical issues they have to brave.
 

TestifyToLove

New member
LOL, no sweat. Normally, I'm the message board type and Dh makes fun of me.

Thank you for the doll idea! I used to let our son with hemophilia infuse his doll and teddy bears while he learned to deal with his needles and hemophilia. M just got his first doll for his belated birthday when we got him home (all of our children get dolls, regardless of whether they are boys or girls). I will make sure to pack it for the hospital so he can give his doll treatments too.

I'm also trying to finish a fleece no-sew fleece blanket for him before he goes in. Of course, I choose one that has embellishments which require being sewn on and its not exactly a no-sew blanket anymore. I'm hoping to have it done in time for him to go to the hospital. AFAIK, he's never been given lovies to cuddle and find comfort in before now.

Fostermom sent a sippy cup she called his 'bottle' (which he drank pediasure in bed at night without brushing his teeth-great for that bottle rot he's still battling). She said it was the only thing in the house he was attached to. *Sigh* I'm a huge fan of encouraging attachments, especially for kiddos who have medical issues they have to brave.
 

TestifyToLove

New member
LOL, no sweat. Normally, I'm the message board type and Dh makes fun of me.

Thank you for the doll idea! I used to let our son with hemophilia infuse his doll and teddy bears while he learned to deal with his needles and hemophilia. M just got his first doll for his belated birthday when we got him home (all of our children get dolls, regardless of whether they are boys or girls). I will make sure to pack it for the hospital so he can give his doll treatments too.

I'm also trying to finish a fleece no-sew fleece blanket for him before he goes in. Of course, I choose one that has embellishments which require being sewn on and its not exactly a no-sew blanket anymore. I'm hoping to have it done in time for him to go to the hospital. AFAIK, he's never been given lovies to cuddle and find comfort in before now.

Fostermom sent a sippy cup she called his 'bottle' (which he drank pediasure in bed at night without brushing his teeth-great for that bottle rot he's still battling). She said it was the only thing in the house he was attached to. *Sigh* I'm a huge fan of encouraging attachments, especially for kiddos who have medical issues they have to brave.
 

TestifyToLove

New member
LOL, no sweat. Normally, I'm the message board type and Dh makes fun of me.

Thank you for the doll idea! I used to let our son with hemophilia infuse his doll and teddy bears while he learned to deal with his needles and hemophilia. M just got his first doll for his belated birthday when we got him home (all of our children get dolls, regardless of whether they are boys or girls). I will make sure to pack it for the hospital so he can give his doll treatments too.

I'm also trying to finish a fleece no-sew fleece blanket for him before he goes in. Of course, I choose one that has embellishments which require being sewn on and its not exactly a no-sew blanket anymore. I'm hoping to have it done in time for him to go to the hospital. AFAIK, he's never been given lovies to cuddle and find comfort in before now.

Fostermom sent a sippy cup she called his 'bottle' (which he drank pediasure in bed at night without brushing his teeth-great for that bottle rot he's still battling). She said it was the only thing in the house he was attached to. *Sigh* I'm a huge fan of encouraging attachments, especially for kiddos who have medical issues they have to brave.
 

TestifyToLove

New member
LOL, no sweat. Normally, I'm the message board type and Dh makes fun of me.
<br />
<br />Thank you for the doll idea! I used to let our son with hemophilia infuse his doll and teddy bears while he learned to deal with his needles and hemophilia. M just got his first doll for his belated birthday when we got him home (all of our children get dolls, regardless of whether they are boys or girls). I will make sure to pack it for the hospital so he can give his doll treatments too.
<br />
<br />I'm also trying to finish a fleece no-sew fleece blanket for him before he goes in. Of course, I choose one that has embellishments which require being sewn on and its not exactly a no-sew blanket anymore. I'm hoping to have it done in time for him to go to the hospital. AFAIK, he's never been given lovies to cuddle and find comfort in before now.
<br />
<br />Fostermom sent a sippy cup she called his 'bottle' (which he drank pediasure in bed at night without brushing his teeth-great for that bottle rot he's still battling). She said it was the only thing in the house he was attached to. *Sigh* I'm a huge fan of encouraging attachments, especially for kiddos who have medical issues they have to brave.
 
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