dwarfism

C

cfdwarfism

New member
Hi,
My son was diagnosed with CF as an infant, and they are saying that he has russell silver syndrome as well. He is 2 now, and I am wondering if there are any other moms out there with a kid with CF and dwarfism. It is hard to keep him growing, and he doesn't like to eat, so we tube feed him.
Thank you!
 
C

cfdwarfism

New member
Hi,
My son was diagnosed with CF as an infant, and they are saying that he has russell silver syndrome as well. He is 2 now, and I am wondering if there are any other moms out there with a kid with CF and dwarfism. It is hard to keep him growing, and he doesn't like to eat, so we tube feed him.
Thank you!
 
C

cfdwarfism

New member
Hi,
My son was diagnosed with CF as an infant, and they are saying that he has russell silver syndrome as well. He is 2 now, and I am wondering if there are any other moms out there with a kid with CF and dwarfism. It is hard to keep him growing, and he doesn't like to eat, so we tube feed him.
Thank you!
 
R

Ratatosk

Administrator
Staff member
There's a person in our state with russel silver syndrome. A couple years ago our state legislature passed a law that would pay all the medical costs that weren't covered by regular insurance for this 4-year old child. She apparently needs growth hormone treatments, which weren't covered by her parents insurance and her parents made too much money to be eligible for state aid. What struck me was the similarity in some of the symptoms. Genetic Disease, poor growth...

<a target=_blank class=ftalternatingbarlinklarge href="http://governor.state.nd.us/media/news-releases/2005/04/050408.html">http://governor.state.nd.us/me...es/2005/04/050408.html</a>
 
R

Ratatosk

Administrator
Staff member
There's a person in our state with russel silver syndrome. A couple years ago our state legislature passed a law that would pay all the medical costs that weren't covered by regular insurance for this 4-year old child. She apparently needs growth hormone treatments, which weren't covered by her parents insurance and her parents made too much money to be eligible for state aid. What struck me was the similarity in some of the symptoms. Genetic Disease, poor growth...

<a target=_blank class=ftalternatingbarlinklarge href="http://governor.state.nd.us/media/news-releases/2005/04/050408.html">http://governor.state.nd.us/me...es/2005/04/050408.html</a>
 
R

Ratatosk

Administrator
Staff member
There's a person in our state with russel silver syndrome. A couple years ago our state legislature passed a law that would pay all the medical costs that weren't covered by regular insurance for this 4-year old child. She apparently needs growth hormone treatments, which weren't covered by her parents insurance and her parents made too much money to be eligible for state aid. What struck me was the similarity in some of the symptoms. Genetic Disease, poor growth...

<a target=_blank class=ftalternatingbarlinklarge href="http://governor.state.nd.us/media/news-releases/2005/04/050408.html">http://governor.state.nd.us/me...es/2005/04/050408.html</a>
 
You must log in or register to reply here.
Top