Dying

anonymous

New member
In a wierd way ,as morbid as it sounds , it s great not worrying about pensions,getting old or ultimately all the trivial s**t everyone else worries about
 

Emily65Roses

New member
That's a very good point. I am glad I won't get lose my mind before I die. Or get so old, that I turn into a crotchety cranky woman (ahem... sound like anyone we know, mom?). I wish I could expect more than 30-40 years... but I'm certainly not upset about dying before I hit 80-90. <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

anonymous

New member
Hello.... Kait tells me all of the time that she is not afraid of dying because she cant wait to see Jesus. I am so glad that she has alot of faith and trusts and has accepted the Lord Jesus Christ as her Savior but it is still hard to hear my 9 yr. old talk about dying, but i know that she is saved as well what a BLESSING

Kaitsmom<img src="i/expressions/rose.gif" border="0">
 

anonymous

New member
dresapp
I pray u get ur lungs and ur pains eases. For my brother was almost gone and god sent him some lungs. I am sure he will done the same for u. When you are in pain just think of all the things u will do when ur donation of life comes in .
 

WinAce

New member
Well, that helps us CF-afflicted atheists a ton...

I prefer focusing on the demonstrable and verifiable, thank you very much. <i>Carpe diem</i>, and enjoy whatever you hold most dear to the fullest. :)
 

Emily65Roses

New member
Let's not turn this into another religion argument. I'm an athiest as well, and listening to anything god-related certainly doesn't float my boat. But Kait'smom was only referring to HER child talking about going to heaven and meeting Jesus and all that. I'm sure she doesn't like hearing that I think there is no heaven or Jesus and that I don't believe in any god. We each have a right. And as long as she doesn't start telling everyone about how they need to accept god or they're going to hell, blah blah, there's nothing wrong with it.
 

EmilysMom

New member
Let's see Emily....crotchedy, cranky old woman...do I know anyone like that....HHMMM????AAAAAAAAAAAAAAAHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!!
I never want to be like her...If I turn into her, SHOOT ME!!
<img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/face-icon-small-disgusted.gif" border="0"><img src="i/expressions/face-icon-small-wink.gif" border="0">
 

S

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>In a wierd way ,as morbid as it sounds , it s great not worrying about pensions,getting old or ultimately all the trivial s**t everyone else worries about<hr></blockquote>

with thinking like that there is no way you will live a long life. i thought that way into my early 20's, but it wasn't doing me any good. my doc's have told me over and over, beat it into me, that i'm going to live a full life and i finally started to believe it. then i started worrying about my education, family, career, etc. and it felt really good to do so. the mind is such a powerful thing, i used to basically be able to think myself sick to the point where i'd be in the hospital a couple weeks later. then i said "f*ck it, this isn't the way to live" and got over my self pity and decided to fight and make it as long as possible.
 

anonymous

New member
Hi KIm, I have a 9 month old daughter with CF, it made me feel good knowing that you are 40 with CF. What has been your experiences with CF? kw<img src="i/expressions/face-icon-small-confused.gif" border="0">
 

anonymous

New member
I would like to say that I think everyone has thoughts about when and how they are going to die in the back of their minds. I don't focus and say "I think I am going to die from my CF" cause tomorrow I could get hit by a bus. I don't think that my CF is going to take away my life and if it does that is my lifes course and it is something that I can deal with. Everyone eventually has to leave someone behind it is a fact of life yes it is sad but just make the best out of life as possible. It reminds me of the new Tim McGraw song

He said: "I was in my early forties,
"With a lot of life before me,
"An' a moment came that stopped me on a dime.
"I spent most of the next days,
"Looking at the x-rays,
"An' talking 'bout the options an' talkin bout sweet time."
I asked him when it sank in,
That this might really be the real end?
Hows it hit you when you get that kind of news?
Man whatcha do?

An' he said: "I went sky diving, I went rocky mountain climbing,
"I went two point seven seconds on a bull named Fu Man Chu.
"And I loved deeper and I spoke sweeter,
"And I gave forgiveness I'd been denying."
An' he said: "Some day, I hope you get the chance,
"To live like you were dyin'."
 

anonymous

New member
Hi to the anon poster,
Sorry, I just saw your post. Congratulations on your 9 month old daughter! I assume you are asking what my experiences are as a cf parent? Any specific questions I can answer? For the most part, things have been overwhelmingly positive, although there have been a few rough spots in the road, such as we all experience. I am lucky that I have a supportive husband and my parents live an hour and a half away, so they were able to help when my son was younger. When I am in the hospital my mom comes and stays at my house and fills in for me. She is incredibly helpful! There is always the concern of how my family would manage if something were to happen to me, but I don't spend as much time worrying about it as I used to, I suppose because my son is older. My health, in general, is pretty good, I am in the hospital about once a year and do oral/inhaled abx in between. I'm not as active as I used to be, but I can still do many of the things I want/like to do (fev1~50%). I will be 40 next Tuesday, I am very happy about that! Funny, so many of my friends are sad about getting older, but I guess as a cf patient, I have a different perspective!! Ageing sure beats the alternative!!! I would be glad to chat if you have any questions or just want some parenting support- knunnari@comcast.net. Good luck and enjoy!
 
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