Dylan is going for his G-Tube

H

holmfamily1992

New member
Well, friday is the day. I am scared as hell for him. Everyday we seem to hate this disease even more. After speeking with his surgeon we feel better about it and I know after a few months it will just become normal. But I cant seem to shake the overwhelming sence of saddness that I feel. It has definately been harder since they have decided to do the feeding tube. Looking at him, we know he needs it. Poor little guy. He has been through so much in such a small amount of time, I cant imagine what is going on in his head. He seems alright and we talk to him about everything as much as possible.

It's amazing how different life is for all of now. One year ago Sunday will be the mark when all of this started of us. WOW...I just realized that....Is that a quinky dink or what??? How is it that he surgery is scheduled almost exactly one year since we first found out about CF????

Anyway, all four of our children that have been diagnosed started their vest therapy last week. What a differnce it has made. My oldest daughter who showed no signs of Cf now has a ton of mucas each morning. The Pulmozyme is working. Our doc told us that her X-Rays showed blockages in her small airways. So I guess with the meds and vest its bringing it up...She hates the mucas but loves the vest. Acutally all of them do. My youngest is still trying to get use to it and complains occasionally but for the most part is ok with it.

Onward we march,
Tina
<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 
H

holmfamily1992

New member
Well, friday is the day. I am scared as hell for him. Everyday we seem to hate this disease even more. After speeking with his surgeon we feel better about it and I know after a few months it will just become normal. But I cant seem to shake the overwhelming sence of saddness that I feel. It has definately been harder since they have decided to do the feeding tube. Looking at him, we know he needs it. Poor little guy. He has been through so much in such a small amount of time, I cant imagine what is going on in his head. He seems alright and we talk to him about everything as much as possible.

It's amazing how different life is for all of now. One year ago Sunday will be the mark when all of this started of us. WOW...I just realized that....Is that a quinky dink or what??? How is it that he surgery is scheduled almost exactly one year since we first found out about CF????

Anyway, all four of our children that have been diagnosed started their vest therapy last week. What a differnce it has made. My oldest daughter who showed no signs of Cf now has a ton of mucas each morning. The Pulmozyme is working. Our doc told us that her X-Rays showed blockages in her small airways. So I guess with the meds and vest its bringing it up...She hates the mucas but loves the vest. Acutally all of them do. My youngest is still trying to get use to it and complains occasionally but for the most part is ok with it.

Onward we march,
Tina
<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 
H

holmfamily1992

New member
Well, friday is the day. I am scared as hell for him. Everyday we seem to hate this disease even more. After speeking with his surgeon we feel better about it and I know after a few months it will just become normal. But I cant seem to shake the overwhelming sence of saddness that I feel. It has definately been harder since they have decided to do the feeding tube. Looking at him, we know he needs it. Poor little guy. He has been through so much in such a small amount of time, I cant imagine what is going on in his head. He seems alright and we talk to him about everything as much as possible.

It's amazing how different life is for all of now. One year ago Sunday will be the mark when all of this started of us. WOW...I just realized that....Is that a quinky dink or what??? How is it that he surgery is scheduled almost exactly one year since we first found out about CF????

Anyway, all four of our children that have been diagnosed started their vest therapy last week. What a differnce it has made. My oldest daughter who showed no signs of Cf now has a ton of mucas each morning. The Pulmozyme is working. Our doc told us that her X-Rays showed blockages in her small airways. So I guess with the meds and vest its bringing it up...She hates the mucas but loves the vest. Acutally all of them do. My youngest is still trying to get use to it and complains occasionally but for the most part is ok with it.

Onward we march,
Tina
<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 
H

holmfamily1992

New member
Well, friday is the day. I am scared as hell for him. Everyday we seem to hate this disease even more. After speeking with his surgeon we feel better about it and I know after a few months it will just become normal. But I cant seem to shake the overwhelming sence of saddness that I feel. It has definately been harder since they have decided to do the feeding tube. Looking at him, we know he needs it. Poor little guy. He has been through so much in such a small amount of time, I cant imagine what is going on in his head. He seems alright and we talk to him about everything as much as possible.

It's amazing how different life is for all of now. One year ago Sunday will be the mark when all of this started of us. WOW...I just realized that....Is that a quinky dink or what??? How is it that he surgery is scheduled almost exactly one year since we first found out about CF????

Anyway, all four of our children that have been diagnosed started their vest therapy last week. What a differnce it has made. My oldest daughter who showed no signs of Cf now has a ton of mucas each morning. The Pulmozyme is working. Our doc told us that her X-Rays showed blockages in her small airways. So I guess with the meds and vest its bringing it up...She hates the mucas but loves the vest. Acutally all of them do. My youngest is still trying to get use to it and complains occasionally but for the most part is ok with it.

Onward we march,
Tina
<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 
H

holmfamily1992

New member
Well, friday is the day. I am scared as hell for him. Everyday we seem to hate this disease even more. After speeking with his surgeon we feel better about it and I know after a few months it will just become normal. But I cant seem to shake the overwhelming sence of saddness that I feel. It has definately been harder since they have decided to do the feeding tube. Looking at him, we know he needs it. Poor little guy. He has been through so much in such a small amount of time, I cant imagine what is going on in his head. He seems alright and we talk to him about everything as much as possible.
<br />
<br />It's amazing how different life is for all of now. One year ago Sunday will be the mark when all of this started of us. WOW...I just realized that....Is that a quinky dink or what??? How is it that he surgery is scheduled almost exactly one year since we first found out about CF????
<br />
<br />Anyway, all four of our children that have been diagnosed started their vest therapy last week. What a differnce it has made. My oldest daughter who showed no signs of Cf now has a ton of mucas each morning. The Pulmozyme is working. Our doc told us that her X-Rays showed blockages in her small airways. So I guess with the meds and vest its bringing it up...She hates the mucas but loves the vest. Acutally all of them do. My youngest is still trying to get use to it and complains occasionally but for the most part is ok with it.
<br />
<br />Onward we march,
<br />Tina
<br /><img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 
J

JazzysMom

New member
I know that this is a scary time, but from what I hear.....the benefits should be great.

The timing is rather coincidental tho, huh?

Maybe rather then put a "damper" on each month, October will be the only one.

I am glad to hear that the therapies are working. Amazing how someone who doesnt "show" symptoms has a lot going on inside, huh?

It is a lot to get use to so your little one will get better.

Good Luck with all of it!

HUGS

BTW we miss you in night time chat!
 
J

JazzysMom

New member
I know that this is a scary time, but from what I hear.....the benefits should be great.

The timing is rather coincidental tho, huh?

Maybe rather then put a "damper" on each month, October will be the only one.

I am glad to hear that the therapies are working. Amazing how someone who doesnt "show" symptoms has a lot going on inside, huh?

It is a lot to get use to so your little one will get better.

Good Luck with all of it!

HUGS

BTW we miss you in night time chat!
 
J

JazzysMom

New member
I know that this is a scary time, but from what I hear.....the benefits should be great.

The timing is rather coincidental tho, huh?

Maybe rather then put a "damper" on each month, October will be the only one.

I am glad to hear that the therapies are working. Amazing how someone who doesnt "show" symptoms has a lot going on inside, huh?

It is a lot to get use to so your little one will get better.

Good Luck with all of it!

HUGS

BTW we miss you in night time chat!
 
J

JazzysMom

New member
I know that this is a scary time, but from what I hear.....the benefits should be great.

The timing is rather coincidental tho, huh?

Maybe rather then put a "damper" on each month, October will be the only one.

I am glad to hear that the therapies are working. Amazing how someone who doesnt "show" symptoms has a lot going on inside, huh?

It is a lot to get use to so your little one will get better.

Good Luck with all of it!

HUGS

BTW we miss you in night time chat!
 
J

JazzysMom

New member
I know that this is a scary time, but from what I hear.....the benefits should be great.
<br />
<br />The timing is rather coincidental tho, huh?
<br />
<br />Maybe rather then put a "damper" on each month, October will be the only one.
<br />
<br />I am glad to hear that the therapies are working. Amazing how someone who doesnt "show" symptoms has a lot going on inside, huh?
<br />
<br />It is a lot to get use to so your little one will get better.
<br />
<br />Good Luck with all of it!
<br />
<br />HUGS
<br />
<br />BTW we miss you in night time chat!
 
M

Mommafirst

Guest
Hi Tina!!

I'll be thinking of you and Dylan this Friday. It is a scary, emotional, and difficult decision -- and we moms are basically forced to.

Hang in there and know that you (and I and all the others) will get through this. (((HUGS))))
 
M

Mommafirst

Guest
Hi Tina!!

I'll be thinking of you and Dylan this Friday. It is a scary, emotional, and difficult decision -- and we moms are basically forced to.

Hang in there and know that you (and I and all the others) will get through this. (((HUGS))))
 
M

Mommafirst

Guest
Hi Tina!!

I'll be thinking of you and Dylan this Friday. It is a scary, emotional, and difficult decision -- and we moms are basically forced to.

Hang in there and know that you (and I and all the others) will get through this. (((HUGS))))
 
M

Mommafirst

Guest
Hi Tina!!

I'll be thinking of you and Dylan this Friday. It is a scary, emotional, and difficult decision -- and we moms are basically forced to.

Hang in there and know that you (and I and all the others) will get through this. (((HUGS))))
 
M

Mommafirst

Guest
Hi Tina!!
<br />
<br />I'll be thinking of you and Dylan this Friday. It is a scary, emotional, and difficult decision -- and we moms are basically forced to.
<br />
<br />Hang in there and know that you (and I and all the others) will get through this. (((HUGS))))
 
B

BabyBeauty

New member
My Avery had her G-tube placed last week. She is 8 months and I thought it would hinder her development as far as crawling and walking.....NOPE! She was trying to crawl two days after surgery. She acted like it was no big deal! She is doing great and is healing fine. The G-tube is so easy and it doesn't bother her one bit!!

I am sorry it feels overwhelming. I wish sometimes we moms could reach through the computer screen and give big hugs! I will be thinking of you and Dylan this week. We will also be saying prayers for a quick/easy recovery.
 
B

BabyBeauty

New member
My Avery had her G-tube placed last week. She is 8 months and I thought it would hinder her development as far as crawling and walking.....NOPE! She was trying to crawl two days after surgery. She acted like it was no big deal! She is doing great and is healing fine. The G-tube is so easy and it doesn't bother her one bit!!

I am sorry it feels overwhelming. I wish sometimes we moms could reach through the computer screen and give big hugs! I will be thinking of you and Dylan this week. We will also be saying prayers for a quick/easy recovery.
 
B

BabyBeauty

New member
My Avery had her G-tube placed last week. She is 8 months and I thought it would hinder her development as far as crawling and walking.....NOPE! She was trying to crawl two days after surgery. She acted like it was no big deal! She is doing great and is healing fine. The G-tube is so easy and it doesn't bother her one bit!!

I am sorry it feels overwhelming. I wish sometimes we moms could reach through the computer screen and give big hugs! I will be thinking of you and Dylan this week. We will also be saying prayers for a quick/easy recovery.
 
B

BabyBeauty

New member
My Avery had her G-tube placed last week. She is 8 months and I thought it would hinder her development as far as crawling and walking.....NOPE! She was trying to crawl two days after surgery. She acted like it was no big deal! She is doing great and is healing fine. The G-tube is so easy and it doesn't bother her one bit!!

I am sorry it feels overwhelming. I wish sometimes we moms could reach through the computer screen and give big hugs! I will be thinking of you and Dylan this week. We will also be saying prayers for a quick/easy recovery.
 
B

BabyBeauty

New member
My Avery had her G-tube placed last week. She is 8 months and I thought it would hinder her development as far as crawling and walking.....NOPE! She was trying to crawl two days after surgery. She acted like it was no big deal! She is doing great and is healing fine. The G-tube is so easy and it doesn't bother her one bit!!
<br />
<br />I am sorry it feels overwhelming. I wish sometimes we moms could reach through the computer screen and give big hugs! I will be thinking of you and Dylan this week. We will also be saying prayers for a quick/easy recovery.
 
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