holmfamily1992
New member
Well, friday is the day. I am scared as hell for him. Everyday we seem to hate this disease even more. After speeking with his surgeon we feel better about it and I know after a few months it will just become normal. But I cant seem to shake the overwhelming sence of saddness that I feel. It has definately been harder since they have decided to do the feeding tube. Looking at him, we know he needs it. Poor little guy. He has been through so much in such a small amount of time, I cant imagine what is going on in his head. He seems alright and we talk to him about everything as much as possible.
It's amazing how different life is for all of now. One year ago Sunday will be the mark when all of this started of us. WOW...I just realized that....Is that a quinky dink or what??? How is it that he surgery is scheduled almost exactly one year since we first found out about CF????
Anyway, all four of our children that have been diagnosed started their vest therapy last week. What a differnce it has made. My oldest daughter who showed no signs of Cf now has a ton of mucas each morning. The Pulmozyme is working. Our doc told us that her X-Rays showed blockages in her small airways. So I guess with the meds and vest its bringing it up...She hates the mucas but loves the vest. Acutally all of them do. My youngest is still trying to get use to it and complains occasionally but for the most part is ok with it.
Onward we march,
Tina
<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
It's amazing how different life is for all of now. One year ago Sunday will be the mark when all of this started of us. WOW...I just realized that....Is that a quinky dink or what??? How is it that he surgery is scheduled almost exactly one year since we first found out about CF????
Anyway, all four of our children that have been diagnosed started their vest therapy last week. What a differnce it has made. My oldest daughter who showed no signs of Cf now has a ton of mucas each morning. The Pulmozyme is working. Our doc told us that her X-Rays showed blockages in her small airways. So I guess with the meds and vest its bringing it up...She hates the mucas but loves the vest. Acutally all of them do. My youngest is still trying to get use to it and complains occasionally but for the most part is ok with it.
Onward we march,
Tina
<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">