Tessalonikki
New member
Hello, I am a mother of two kids w/cf (Nicholas 3 and Tessa 14 months). We are going through a pretty rigid routine everyday with our cf care and I am just wondering if anybody out there has had trouble feeding their kids. The doc's at our cf centers always talk about "ravenous appetites" but poor weight gain due to malabsorbtion.
My kids do NOT have "ravenous appetites, just the opposite...it is a daily struggle for me to make meals fun and appealing and sometimes it takes us over a hour to get our food down. And of course I do not want it to become a fight, so I go with the flow and just litterally shove food into them whenever I can with as much distraction as possible, since that seems to be the only way some days.
My daughters weightgain is actually fine, but then she is only 14 months old. My little boy however, who just turned three is very skinny...he is just 29 pounds and when he is in the Bathtub all his ribs stick out. I am just wondering if there are any older people with cf out there that can answer my question. Do you actually get hungry,or is it a part of the cf that doesn't signal hunger to the body?
I usually have a pretty good grip on the cf, but over the last couple of days it seems it does not matter what I cook or prepare, it just does not seem to appeal to my little guy.
Any suggestions or help out there, I would love to get some input.
Tanja (Mom of Nicky 3 and Tessa 14 months both w/cf)
My kids do NOT have "ravenous appetites, just the opposite...it is a daily struggle for me to make meals fun and appealing and sometimes it takes us over a hour to get our food down. And of course I do not want it to become a fight, so I go with the flow and just litterally shove food into them whenever I can with as much distraction as possible, since that seems to be the only way some days.
My daughters weightgain is actually fine, but then she is only 14 months old. My little boy however, who just turned three is very skinny...he is just 29 pounds and when he is in the Bathtub all his ribs stick out. I am just wondering if there are any older people with cf out there that can answer my question. Do you actually get hungry,or is it a part of the cf that doesn't signal hunger to the body?
I usually have a pretty good grip on the cf, but over the last couple of days it seems it does not matter what I cook or prepare, it just does not seem to appeal to my little guy.
Any suggestions or help out there, I would love to get some input.
Tanja (Mom of Nicky 3 and Tessa 14 months both w/cf)