eflow questions

J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jane</b></i>

Hmmm, thanks Chris. I can't get back to Amy's Jan 22 blog. I can only get back to March. What's the trick?





I wonder if they meant its not approved <i>for children</i>?</end quote></div>

Down at the botton under Catergories. Not the monthly entries!
 
C

Chaggie

New member
Here you go on Amy's blog.


<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/index.cfm?month=1&year=2007">http://blogs.cysticfibrosis.co....cfm?month=1&year=2007</a>

As for being approved for children, it doesn't need to be. Once medical equipment is approved it's approved for everyone.
 
C

Chaggie

New member
Here you go on Amy's blog.


<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/index.cfm?month=1&year=2007">http://blogs.cysticfibrosis.co....cfm?month=1&year=2007</a>

As for being approved for children, it doesn't need to be. Once medical equipment is approved it's approved for everyone.
 
C

Chaggie

New member
Here you go on Amy's blog.


<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/index.cfm?month=1&year=2007">http://blogs.cysticfibrosis.co....cfm?month=1&year=2007</a>

As for being approved for children, it doesn't need to be. Once medical equipment is approved it's approved for everyone.
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jane</b></i>




Where did Amy's eflow blog go? I could only find the post eflow blogs.</end quote></div>

Scroll down to the bottom left of my blog.

Under categories, click "eFlow"

Everyone is write - the eFlow has been FDA approved for 2.5 years. The unfortunate thing is that you're going to have to be proactive about the eFlow because doctors are so ill-informed about the device.

Arm youself with the studies, and go back to your doc. It's going to be up to you to get the device.
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jane</b></i>




Where did Amy's eflow blog go? I could only find the post eflow blogs.</end quote></div>

Scroll down to the bottom left of my blog.

Under categories, click "eFlow"

Everyone is write - the eFlow has been FDA approved for 2.5 years. The unfortunate thing is that you're going to have to be proactive about the eFlow because doctors are so ill-informed about the device.

Arm youself with the studies, and go back to your doc. It's going to be up to you to get the device.
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jane</b></i>




Where did Amy's eflow blog go? I could only find the post eflow blogs.</end quote></div>

Scroll down to the bottom left of my blog.

Under categories, click "eFlow"

Everyone is write - the eFlow has been FDA approved for 2.5 years. The unfortunate thing is that you're going to have to be proactive about the eFlow because doctors are so ill-informed about the device.

Arm youself with the studies, and go back to your doc. It's going to be up to you to get the device.
 
J

Jem

New member
I had my check up last week and asked my doctor about the eflow. He had no problem prescribing it for me. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I got my eflow yesterday through Foundation Care (www.FoundCare.com ~~toll free at 877-291-1122) for free because if you use them to acquire your inhaled antibiotic (I use tobramycin) then they give you the eflow for as long as you continue to receive your inhaled antibiotic from them. They also formulate my 7% Hypertonic Saline for free and supply it in sterile vials as a bonus (again because I am now getting my inhaled antibiotic from them.) I was previously paying them $36 a month for that which I didn't mind because the convenience of having a sterile product was important to me. But now I no longer need to pay for it.<img src="i/expressions/face-icon-small-happy.gif" border="0">

The eflow is sooooooooooo quiet and fast. Just read Amy's blog to get the load down on this very impressive product. It was her blogging about it that inspired me to ask for it...Thank you Amy! I remember Amy mentioning that when she did the HS for the first time with the eflow she was coughing like it was the first time she ever tried it. I too coughed so much I threw up! That hadn't happened for a year, since I first started taking HS. The HS treatment just felt so much more powerful. Maybe it is now reaching areas it didn't get to before.

The only adjustment for me is getting use to cleaning the eflow parts after each treatment session. Before I would let the nebs pile up after a soapy rinse off to sterilize later on. I had enough nebs to go three days but now I need to sterilize the neb pieces and the part called the head after each treatment. I am sure I will adjust. The eflow is definitely a time saver and packs a punch for something that looks so tiny. I am glad that I persued getting it.<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
J

Jem

New member
I had my check up last week and asked my doctor about the eflow. He had no problem prescribing it for me. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I got my eflow yesterday through Foundation Care (www.FoundCare.com ~~toll free at 877-291-1122) for free because if you use them to acquire your inhaled antibiotic (I use tobramycin) then they give you the eflow for as long as you continue to receive your inhaled antibiotic from them. They also formulate my 7% Hypertonic Saline for free and supply it in sterile vials as a bonus (again because I am now getting my inhaled antibiotic from them.) I was previously paying them $36 a month for that which I didn't mind because the convenience of having a sterile product was important to me. But now I no longer need to pay for it.<img src="i/expressions/face-icon-small-happy.gif" border="0">

The eflow is sooooooooooo quiet and fast. Just read Amy's blog to get the load down on this very impressive product. It was her blogging about it that inspired me to ask for it...Thank you Amy! I remember Amy mentioning that when she did the HS for the first time with the eflow she was coughing like it was the first time she ever tried it. I too coughed so much I threw up! That hadn't happened for a year, since I first started taking HS. The HS treatment just felt so much more powerful. Maybe it is now reaching areas it didn't get to before.

The only adjustment for me is getting use to cleaning the eflow parts after each treatment session. Before I would let the nebs pile up after a soapy rinse off to sterilize later on. I had enough nebs to go three days but now I need to sterilize the neb pieces and the part called the head after each treatment. I am sure I will adjust. The eflow is definitely a time saver and packs a punch for something that looks so tiny. I am glad that I persued getting it.<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
J

Jem

New member
I had my check up last week and asked my doctor about the eflow. He had no problem prescribing it for me. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I got my eflow yesterday through Foundation Care (www.FoundCare.com ~~toll free at 877-291-1122) for free because if you use them to acquire your inhaled antibiotic (I use tobramycin) then they give you the eflow for as long as you continue to receive your inhaled antibiotic from them. They also formulate my 7% Hypertonic Saline for free and supply it in sterile vials as a bonus (again because I am now getting my inhaled antibiotic from them.) I was previously paying them $36 a month for that which I didn't mind because the convenience of having a sterile product was important to me. But now I no longer need to pay for it.<img src="i/expressions/face-icon-small-happy.gif" border="0">

The eflow is sooooooooooo quiet and fast. Just read Amy's blog to get the load down on this very impressive product. It was her blogging about it that inspired me to ask for it...Thank you Amy! I remember Amy mentioning that when she did the HS for the first time with the eflow she was coughing like it was the first time she ever tried it. I too coughed so much I threw up! That hadn't happened for a year, since I first started taking HS. The HS treatment just felt so much more powerful. Maybe it is now reaching areas it didn't get to before.

The only adjustment for me is getting use to cleaning the eflow parts after each treatment session. Before I would let the nebs pile up after a soapy rinse off to sterilize later on. I had enough nebs to go three days but now I need to sterilize the neb pieces and the part called the head after each treatment. I am sure I will adjust. The eflow is definitely a time saver and packs a punch for something that looks so tiny. I am glad that I persued getting it.<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
M

Mommafirst

Guest
Hi Jane,

I asked our center about e-flow and was told that we could go that way if we wanted, but they were waiting for another year of it on the market before they make a decision about it and support it. The CF nurse said that if we were interested in minimizing treatment times there were other things coming onto the market that would also make a difference. Including the new TIPS -- which is TOBI in a powdered inhaler (like advair I think) and will take only 30 seconds to administer the entire dose!!!!! I think its in stage three clinical trials right now and is expected on the market soon.

I've also spoken with two different CF patients at our center who used the e-flow in clinical studies and both said they didn't really feel it was as good as their old nebulizer/compressors.
 
M

Mommafirst

Guest
Hi Jane,

I asked our center about e-flow and was told that we could go that way if we wanted, but they were waiting for another year of it on the market before they make a decision about it and support it. The CF nurse said that if we were interested in minimizing treatment times there were other things coming onto the market that would also make a difference. Including the new TIPS -- which is TOBI in a powdered inhaler (like advair I think) and will take only 30 seconds to administer the entire dose!!!!! I think its in stage three clinical trials right now and is expected on the market soon.

I've also spoken with two different CF patients at our center who used the e-flow in clinical studies and both said they didn't really feel it was as good as their old nebulizer/compressors.
 
M

Mommafirst

Guest
Hi Jane,

I asked our center about e-flow and was told that we could go that way if we wanted, but they were waiting for another year of it on the market before they make a decision about it and support it. The CF nurse said that if we were interested in minimizing treatment times there were other things coming onto the market that would also make a difference. Including the new TIPS -- which is TOBI in a powdered inhaler (like advair I think) and will take only 30 seconds to administer the entire dose!!!!! I think its in stage three clinical trials right now and is expected on the market soon.

I've also spoken with two different CF patients at our center who used the e-flow in clinical studies and both said they didn't really feel it was as good as their old nebulizer/compressors.
 
J

jfarel

New member
I told my doctor I stopped the eflow because of SOB and they were ticked off. Said to go back and try again, so I guess I 'll give it one more go round.
 
J

jfarel

New member
I told my doctor I stopped the eflow because of SOB and they were ticked off. Said to go back and try again, so I guess I 'll give it one more go round.
 
J

jfarel

New member
I told my doctor I stopped the eflow because of SOB and they were ticked off. Said to go back and try again, so I guess I 'll give it one more go round.
 
J

Jem

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jfarel</b></i>

I told my doctor I stopped the eflow because of SOB and they were ticked off. Said to go back and try again, so I guess I 'll give it one more go round.</end quote></div>

I would be interested to hear how it goes for you after trying the eflow again. I've only done it three times since getting it yesterday but so far so good.
 
J

Jem

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jfarel</b></i>

I told my doctor I stopped the eflow because of SOB and they were ticked off. Said to go back and try again, so I guess I 'll give it one more go round.</end quote></div>

I would be interested to hear how it goes for you after trying the eflow again. I've only done it three times since getting it yesterday but so far so good.
 
J

Jem

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jfarel</b></i>

I told my doctor I stopped the eflow because of SOB and they were ticked off. Said to go back and try again, so I guess I 'll give it one more go round.</end quote></div>

I would be interested to hear how it goes for you after trying the eflow again. I've only done it three times since getting it yesterday but so far so good.
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

Hi Jane,



I asked our center about e-flow and was told that we could go that way if we wanted, but they were waiting for another year of it on the market before they make a decision about it and support it.
</end quote></div>

Funny....it's been on the market for over 2 years....

<div class="FTQUOTE"><begin quote>

I've also spoken with two different CF patients at our center who used the e-flow in clinical studies and both said they didn't really feel it was as good as their old nebulizer/compressors.</end quote></div>


If i gave you a study that was composed of 2 patients, would you consider the study valid?

Collect a larger sample size on this board of those who use the eFlow..... make a decision after that
 
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