Great! Thanks you guys.
I have found SourceCF, and subdivision of PARI.
Apparently the eFlow is approved by the FDA in the US for use with only CF patients. This is why the eFlow doesn't appear on the US PARI website.
There are only 3 pharmacies in the US that cary the eFlow. Some insurances do cover the eFlow.
PARI people cannot talk about in vitro or in vivo studies that have been done with the eFlow and specific drugs. The pharmacists who work at the 3 pharmacies that cary the eFlow can, however. Apparently these are FDA rules.
So i will get in touch with this special pharmacist who apparently can talk to me about studies that have been done with the eFlow. I have a feeling they aren't very extensive. But I bet many studies have been performed overseas.
So I'll keep you all posted on what I come across. I'm shocked, once again, that my doc didn't inform me that this was a possibility for treatment.
I have found SourceCF, and subdivision of PARI.
Apparently the eFlow is approved by the FDA in the US for use with only CF patients. This is why the eFlow doesn't appear on the US PARI website.
There are only 3 pharmacies in the US that cary the eFlow. Some insurances do cover the eFlow.
PARI people cannot talk about in vitro or in vivo studies that have been done with the eFlow and specific drugs. The pharmacists who work at the 3 pharmacies that cary the eFlow can, however. Apparently these are FDA rules.
So i will get in touch with this special pharmacist who apparently can talk to me about studies that have been done with the eFlow. I have a feeling they aren't very extensive. But I bet many studies have been performed overseas.
So I'll keep you all posted on what I come across. I'm shocked, once again, that my doc didn't inform me that this was a possibility for treatment.