Ok, that's a considerable amount. Especially if it's happening frequently, like a few times per week. I'd suggest first looking into all the precautionary stuff. I take aquadeks twice daily, mephyton 5mg 2x/day, probiotics twice a day. The probiotics are supposed to help with vitamin K absorption. In the last 2 years we started Tranexemic Acid (Lysteda), it affects the rate of blood clot breakdown. My doc tried it on me first, I read about it on here actually. He's using it on several chronic bleeder patients now with good results. Also learned on this board, about 2ml of cayenne pepper in some warm water seems to dilate the blood vessels and I think has stopped many bleeds within seconds. It's lost it's effect a bit over the years for me. I used to carry cayenne around in my pocket, the bleeds have reduced a lot since starting Lysteda so I haven't needed cayenne lately.
I've had pseudomonas over 30 years now, MRSA in the last 6 or so.
My first embolization was in 2000, I was having severe bleeds a few times a day for a few days straight. After each embolization the bleeds would usually stop for a few months. I had 2 within a month of eachother b/c they realized they didn't block the right vessels after I bled soon after. Over the last 13 years it's added up to 6. But we seem to have it relatively under control in the last 2-3 years. I'm told for many people they just need one embolization and it's fixed for good, or years. I was just a rough case.
They go up your femeral artery with a catheter, in interventional radiology. So it's like a real-time xray. Then they deposit a substance which blocks one of the bronchial arteries that seems inflamed or is bleeding. They don't put you to sleep but your sedated, so you're half asleep and time flies. Afterwards to you have lay on your back and not move your leg for like 6 hours or so. Which is harder than it sounds, I get achy laying still that long.
But that's basically it. We can put our doctors in contact if you're interested in the Lysteda I mentioned.
