Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

[julie]

Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

I couldn't fit more in the title and I know I am leaving a few people out so please jump in.... I am putting together the CONTACT/INTERVIEW list for the letter and am requesting that anyone interested in/willing to be interviewed please provide the following information.

1. Name (last names are not necessary but you can include if you wish)
2. Your relationship with CF (you have CF, your spouse has CF, your child has CF....)
3. Your age if you are the one with CF, if you don't have CF, the age of the person with CF
4. A valid email address (I have created a free email address for myself, separate from my personal email... it's a good idea)
and if you wish, but realize others will be able to see it....

5. your phone number and or mailing address
OR, if/when you send out your letters, you can include more specific information that ONLY the people at the recieving stations will be able to see but I would still like to send out "general" contact information for people in this site.

I will "publish" the list to this site along with the letter and the mailing addresses (some are online only-I will provide the webpage) to send story ideas.

Please please please speak up if you would like to be contacted, I am trying to have as many people on this list as possible.

Julie

 

[Diane]

RE: Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

Julie,
forgive my ignorance but what is it for exactly? I miss so much sometimes....lol

 

[senatorgraham]

RE:Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

HI, Julie

I am Steven John Graham, 31 with Cystic Fibrosis and have had a bi-lateral lungtransplant.
You can contact me at:

P.O. Box 692
Kingsburg, CA 93631

or

senatorgraham@yahoo.com

or 559-908-9491, yes my actual phone number.

If I forgot anything just let me know. Thanks again for all your efforts julie.

Sincerely,

"Senatorgraham"

"My friends are my estate. Forgive me the avarice of hoarding them."-Emily Dickinson

 

[anonymous]

RE:Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

Julie,
I applause your effort you are amazing! Here is our information. If you need our address and phone number would you mind if I e-mailed it to you? Just post your e-mail and I will send it to you.

1. Lynsey and Chuck Flatford
2. Daughter, Avery 2yrs. old w/CF
3. My e-mail: lflatford@acs.ac

Thanks,
Lynsey

 

[letsrockcfem]

RE:Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

Emily with Cystic Fibrosis
23 years old
lets_rock_cf@yahoo.com
734.341.5867
21443 HCL Jackson
Grosse Ile,MI
48138

Thanks Julie, You rock!
em

 

[julie]

RE:Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

Diane, it's ok,I can't remember if I ate lunch yesterday or not, so I understand....

It's for the CF awareness letter. I'll refresh it to bring it to the top

Thanks everyone, I am excited about this

oh, and I can be reached at division902@hotmail.com if anybody would prefer to go that route

 

[EmilysMom]

RE:Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

Julie,
You must have no free time to relax with everything else you do!

Barbara Gode Wiles (aged 49 *gasp*)
Mom to Emily, almost 22 with CF

Barbara can be reached c/o 29 Main Street
Cheshire CT 06410
Bwiles@cheshire.k12.ct.us

Emily at:
emily65roses@yahoo.com

 

[WinAce]

RE: Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

1. Richard Allan Glenn
2. Have CF.
3. 20 years old.
4. allan.glenn@gmail.com
5. Prefer not to divulge; those who are interested in contacting me can do so by email, and progress to phone/address through that.

 

[Emily65Roses]

RE:Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

What my mom said. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[lovingBenandCambree]

RE:Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

Emilee
Have CF
25 years old
tigger_babe32@hotmail.com
Contact by email and I can give further info.



Thanks Julie I think you are doing such an amazing thing!

 

[anonymous]

RE:Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

Margaret
I have CF and also received a double lung tx
22
lapsansm@lafayette.edu

Address
Lafayette College
Farinon Center Box 8506
Easton, PA 18042

 

[abloedel]

RE:Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

1. Amy Bloedel
2. I am the one with CF
3. 36 - will be 37 in January
4. abloedel@westwood.edu
5. 21896 E. Powers Drive, Centennial, CO 80015 or (303) 627-2313

I would be specifically interested in discussing issues surrounding being diagnosed as an adult and workplace issues.

Thanks for all of your hard work on this Julie...please let me know if I can help you in any way!

Amy

 

[anonymous]

RE:Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

Lance B. Stillwell
33 w/CF
lbstillwell@yahoo.com
La Jolla, CA

 

[Mockingbird]

RE:Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

Wait, who's gonna do the contacting? Eh, whatever, I guess it wouldn't make any difference to me, anyway. =-) I have to admit, I haven't really been reading the CF awareness thread, so I don't know what's going on, either. =-) It sounds like a good cause anyway, though.

1. Jarod Bulthuis
2. I have CF. =-)
3. 23
4. jarodbulthuis@hotmail.com
5. 1218 Clarkson St. #3
Denver, CO 80218
(303) 861-4006

 

[IG]

RE: Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

1) Candice Fisher
2) I have CF and 2 1/2 years post double lung transplant
3) 19
4) immortalgoddezz@hotmail.com
5) I'll email you later with that Julie

 

[Diane]

RE: Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

1- Diane Hutzel
2 - i have cf
3 -40
4- jinxnick@aol.com
5- ill email that to you

 

[julie]

RE:Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

Just a few things to emphasize on because I don't think I wrote it write the first time,

The email addresses, names, home addresses, phone numbers, age and relationship to CF, <b>INCLUDING those that people email to me-WILL BE put on this site for everyone to view and use to send out with their "awareness letter"</b>. I recieved about 8 emails this afternoon WHICH I AM ABSOLUTELY THRILLED ABOUT!!!!!!!!!!!!!!!!!!!!!!!!!!!! and people gave me home addresses/phone numbers. I just want to make it clear that <b>those will be posted on this site</b>. I have emailed each of you who personally emailed me to verify that you are wanting this information included for everyone to view. I won't post the list until Friday or saturday.

An idea, one of which I WILL be doing when I send my letter is that I will include my personal address and phone number. But I will NOT include that on the list for this site. What I will post on this site, for others to include is the following:
Julie Raysbrook (22 years old), Wife to Mark Raysbrook who is 24 and has CF
division902@hotmail.com

<b>Then in my letter that I personally mail out, I will put my address/phone<b>.

I hope this makes it more clear, I don't think I did a very good job the first time-sorry for any confusion.

I am loving all the participation and hope that it keeps coming!!!! Thank you everyone,

 

[anonymous]

RE:Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

1. Loleta Whitlock
2. Daughter
3. Passed away last year at 23.
4. Loleta22@aol.com
5. 5908 Courtney Lane Burleson,Texas 76028
817-517-6395 daytime # 817-317-3841

 

[Emeraldmirror]

RE:Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

Ashley Webster
Have CF
21
emeraldmirror@hotmail.com.

125 heather ave. apt. 1
kitchener ON
N2B 1M3
519 743 9451

 

[jacobus]

RE:Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More

anyone who posts their email address in this thread should watch out for a sudden influx of emails from african royalty, ex-presidents deposed leaders etc, promising large amounts of money. most of these emails come from nigeria and they are know as '419 scams'. the people who send these emails out use programs that crawl the internet for websites with email address. with so many address on display here it is inevitable that some of you will get similar scam emails. please think very carefully before posting your email address. you can read all about the scams and their various forms <a target=new class=ftalternatingbarlinklarge href="http://www.419eater.com">Here</a>