Enzyme formula suggestions

[Terry]

Marissa was taking 4 Ultrase MT 12 before and right after feeding. We also space hers to go from 8:30pm - 6:30am. She had DIOS a few weeks ago, and I wanted to get a powder to put in her feed, but the doctor said it wasn't necessary. He switched her to Ultrase MT 20, and she takes 4 of them before and after feeding. The doctor also told us to start adding water to her feed nightly, as he feels she may have had a problem because she was not drinking enough water.

I am not a morning person, either! I swear I do most of the morning routine in my sleep. But don't try to get a whole lot of extras in there. My kids like to wait until morning to say they need something signed, and I usually start growling, silly kids thinking I can read AND write before I have been up for at least 2 hours. I ask them every night if they have anything I need to look at/sign.

So, how did you handle your son's mother walking out on the appointment? I am keeping track on a calendar when Riss doesn't get her meds, just in case anything would ever come up court wise, but other than that I am at a loss.

Take Care,
Terry

 

[Terry]

Marissa was taking 4 Ultrase MT 12 before and right after feeding. We also space hers to go from 8:30pm - 6:30am. She had DIOS a few weeks ago, and I wanted to get a powder to put in her feed, but the doctor said it wasn't necessary. He switched her to Ultrase MT 20, and she takes 4 of them before and after feeding. The doctor also told us to start adding water to her feed nightly, as he feels she may have had a problem because she was not drinking enough water.

I am not a morning person, either! I swear I do most of the morning routine in my sleep. But don't try to get a whole lot of extras in there. My kids like to wait until morning to say they need something signed, and I usually start growling, silly kids thinking I can read AND write before I have been up for at least 2 hours. I ask them every night if they have anything I need to look at/sign.

So, how did you handle your son's mother walking out on the appointment? I am keeping track on a calendar when Riss doesn't get her meds, just in case anything would ever come up court wise, but other than that I am at a loss.

Take Care,
Terry

 

[Terry]

Marissa was taking 4 Ultrase MT 12 before and right after feeding. We also space hers to go from 8:30pm - 6:30am. She had DIOS a few weeks ago, and I wanted to get a powder to put in her feed, but the doctor said it wasn't necessary. He switched her to Ultrase MT 20, and she takes 4 of them before and after feeding. The doctor also told us to start adding water to her feed nightly, as he feels she may have had a problem because she was not drinking enough water.

I am not a morning person, either! I swear I do most of the morning routine in my sleep. But don't try to get a whole lot of extras in there. My kids like to wait until morning to say they need something signed, and I usually start growling, silly kids thinking I can read AND write before I have been up for at least 2 hours. I ask them every night if they have anything I need to look at/sign.

So, how did you handle your son's mother walking out on the appointment? I am keeping track on a calendar when Riss doesn't get her meds, just in case anything would ever come up court wise, but other than that I am at a loss.

Take Care,
Terry

 

[Terry]

Marissa was taking 4 Ultrase MT 12 before and right after feeding. We also space hers to go from 8:30pm - 6:30am. She had DIOS a few weeks ago, and I wanted to get a powder to put in her feed, but the doctor said it wasn't necessary. He switched her to Ultrase MT 20, and she takes 4 of them before and after feeding. The doctor also told us to start adding water to her feed nightly, as he feels she may have had a problem because she was not drinking enough water.

I am not a morning person, either! I swear I do most of the morning routine in my sleep. But don't try to get a whole lot of extras in there. My kids like to wait until morning to say they need something signed, and I usually start growling, silly kids thinking I can read AND write before I have been up for at least 2 hours. I ask them every night if they have anything I need to look at/sign.

So, how did you handle your son's mother walking out on the appointment? I am keeping track on a calendar when Riss doesn't get her meds, just in case anything would ever come up court wise, but other than that I am at a loss.

Take Care,
Terry

 

[Terry]

Marissa was taking 4 Ultrase MT 12 before and right after feeding. We also space hers to go from 8:30pm - 6:30am. She had DIOS a few weeks ago, and I wanted to get a powder to put in her feed, but the doctor said it wasn't necessary. He switched her to Ultrase MT 20, and she takes 4 of them before and after feeding. The doctor also told us to start adding water to her feed nightly, as he feels she may have had a problem because she was not drinking enough water.
<br />
<br />I am not a morning person, either! I swear I do most of the morning routine in my sleep. But don't try to get a whole lot of extras in there. My kids like to wait until morning to say they need something signed, and I usually start growling, silly kids thinking I can read AND write before I have been up for at least 2 hours. I ask them every night if they have anything I need to look at/sign.
<br />
<br />So, how did you handle your son's mother walking out on the appointment? I am keeping track on a calendar when Riss doesn't get her meds, just in case anything would ever come up court wise, but other than that I am at a loss.
<br />
<br />Take Care,
<br />Terry

 

[Jane]

My kids do their feeds overnight (8 hours). They take 4 Ultrase MT20s right before and right after. We also put Viokase powder in the formula. Taking enzymes every two hours probably isn't necessary if he's getting the formula pumped at a slow rate. (as opposed to bolus).

Jim, I think there's gotta be a better system for you- you need to get some rest!

 

[Jane]

My kids do their feeds overnight (8 hours). They take 4 Ultrase MT20s right before and right after. We also put Viokase powder in the formula. Taking enzymes every two hours probably isn't necessary if he's getting the formula pumped at a slow rate. (as opposed to bolus).

Jim, I think there's gotta be a better system for you- you need to get some rest!

 

[Jane]

My kids do their feeds overnight (8 hours). They take 4 Ultrase MT20s right before and right after. We also put Viokase powder in the formula. Taking enzymes every two hours probably isn't necessary if he's getting the formula pumped at a slow rate. (as opposed to bolus).

Jim, I think there's gotta be a better system for you- you need to get some rest!

 

[Jane]

My kids do their feeds overnight (8 hours). They take 4 Ultrase MT20s right before and right after. We also put Viokase powder in the formula. Taking enzymes every two hours probably isn't necessary if he's getting the formula pumped at a slow rate. (as opposed to bolus).

Jim, I think there's gotta be a better system for you- you need to get some rest!

 

[Jane]

My kids do their feeds overnight (8 hours). They take 4 Ultrase MT20s right before and right after. We also put Viokase powder in the formula. Taking enzymes every two hours probably isn't necessary if he's getting the formula pumped at a slow rate. (as opposed to bolus).
<br />
<br />Jim, I think there's gotta be a better system for you- you need to get some rest!

 

[jimiv]

Terry, I am keeping lists that you would not believe. Finances and e-mails of everything I can address instead of making decisions by phone. That way there is a record. After getting a message that his doctor and nutritionist did not think that Viokase was a good idea, I was able to get the Nutritionist on the phone and we worked out a plan to try the Viokase for a week and see how it does in the overnight feedings. They seemed mostly concerned about the enzymes not being mixed properly or irritation the tube or the skin around it. What we are going to do is for one week, Parker will get his evening feed with the powder mixed into it. I will weigh him at the end of the week and compare it to previous weeks to see if it helps. I am going to try to make the plan in place to start this trial on Sunday so I have a full week with me to compare it. I guess I am going to have to check out the bathroom some this week. FUN FUN FUN

 

[jimiv]

Terry, I am keeping lists that you would not believe. Finances and e-mails of everything I can address instead of making decisions by phone. That way there is a record. After getting a message that his doctor and nutritionist did not think that Viokase was a good idea, I was able to get the Nutritionist on the phone and we worked out a plan to try the Viokase for a week and see how it does in the overnight feedings. They seemed mostly concerned about the enzymes not being mixed properly or irritation the tube or the skin around it. What we are going to do is for one week, Parker will get his evening feed with the powder mixed into it. I will weigh him at the end of the week and compare it to previous weeks to see if it helps. I am going to try to make the plan in place to start this trial on Sunday so I have a full week with me to compare it. I guess I am going to have to check out the bathroom some this week. FUN FUN FUN

 

[jimiv]

Terry, I am keeping lists that you would not believe. Finances and e-mails of everything I can address instead of making decisions by phone. That way there is a record. After getting a message that his doctor and nutritionist did not think that Viokase was a good idea, I was able to get the Nutritionist on the phone and we worked out a plan to try the Viokase for a week and see how it does in the overnight feedings. They seemed mostly concerned about the enzymes not being mixed properly or irritation the tube or the skin around it. What we are going to do is for one week, Parker will get his evening feed with the powder mixed into it. I will weigh him at the end of the week and compare it to previous weeks to see if it helps. I am going to try to make the plan in place to start this trial on Sunday so I have a full week with me to compare it. I guess I am going to have to check out the bathroom some this week. FUN FUN FUN

 

[jimiv]

Terry, I am keeping lists that you would not believe. Finances and e-mails of everything I can address instead of making decisions by phone. That way there is a record. After getting a message that his doctor and nutritionist did not think that Viokase was a good idea, I was able to get the Nutritionist on the phone and we worked out a plan to try the Viokase for a week and see how it does in the overnight feedings. They seemed mostly concerned about the enzymes not being mixed properly or irritation the tube or the skin around it. What we are going to do is for one week, Parker will get his evening feed with the powder mixed into it. I will weigh him at the end of the week and compare it to previous weeks to see if it helps. I am going to try to make the plan in place to start this trial on Sunday so I have a full week with me to compare it. I guess I am going to have to check out the bathroom some this week. FUN FUN FUN

 

[jimiv]

Terry, I am keeping lists that you would not believe. Finances and e-mails of everything I can address instead of making decisions by phone. That way there is a record. After getting a message that his doctor and nutritionist did not think that Viokase was a good idea, I was able to get the Nutritionist on the phone and we worked out a plan to try the Viokase for a week and see how it does in the overnight feedings. They seemed mostly concerned about the enzymes not being mixed properly or irritation the tube or the skin around it. What we are going to do is for one week, Parker will get his evening feed with the powder mixed into it. I will weigh him at the end of the week and compare it to previous weeks to see if it helps. I am going to try to make the plan in place to start this trial on Sunday so I have a full week with me to compare it. I guess I am going to have to check out the bathroom some this week. FUN FUN FUN