Hey guys, my five yr old has been taking her enzymes and swallowing them whole since the age of two, NO WATER< NO HELP!!!!!!!!! She even takes them with food already in her mouth and manovers it all around and doesn't choke. She is amazing!!! She is on creon 10's and she takes four per meals and two per snacks, she is way off the charts for her goal weight and I intend to keep her that way. I was always told that the more enzymes, as in too many per day, per year, per life, time, it can damage her bowels. However, as her mother, my goal is to keep her healthy now, everyday, and hope for the best. I would rather her have an illeostomy later in life (from complications of the bowels) then to see her on a feeding tube at the age of 10 or 12 like her other CF friends, because they can't maintain their goal weight. I have seen it happen, they are on border line for weight, they get a flu, and lose 10pounds, not gona happen with my daughter, she has 10 to 20lbs in excess to lose in case she gets sick. I resent the fact that everyone tells me " oh she is so plump it is unbelievable, she doesn't need boost", then on the flip side, I hear them telling other moms "put some weight on your kid, more boosts or she'll need a feeding tube at night". oh well that's a nice thought. It is frustrating to no end but my daughter has no other complications besides the digestive part of CF, the occasional ventillin puffer and flovent puffer that's it. So I think I'm doing right by her so far. Anyway, take care and good luck. ps she has been taking the same amount of enzymes for the last two years with the occasional peglyte to help bowels but that's it.
