enzymes in hospital

[auntcob]

Hi--Another pretty simple question about hospital stays.... Pre-op called yesterday and said to pack a bag. So--as I am figuring out what all needs to be packed, I am assuming all his meds (including zenpep) would be provided by the hospital.

True? Adam was also asking if he would have his own room..based on previous responses, Hopkins does not always have private rooms, correct?

Thanks for your patience with me.

~Chris

 

[auntcob]

Hi--Another pretty simple question about hospital stays.... Pre-op called yesterday and said to pack a bag. So--as I am figuring out what all needs to be packed, I am assuming all his meds (including zenpep) would be provided by the hospital.

True? Adam was also asking if he would have his own room..based on previous responses, Hopkins does not always have private rooms, correct?

Thanks for your patience with me.

~Chris

 

[auntcob]

Hi--Another pretty simple question about hospital stays.... Pre-op called yesterday and said to pack a bag. So--as I am figuring out what all needs to be packed, I am assuming all his meds (including zenpep) would be provided by the hospital.
<br />
<br />True? Adam was also asking if he would have his own room..based on previous responses, Hopkins does not always have private rooms, correct?
<br />
<br />Thanks for your patience with me.
<br />
<br />~Chris

 

[hmw]

It's good to bring your own enzymes in case they are not always prompt in providing them and/or they don't have all his rx orders right away. However, yes, they SHOULD provide all of his rx medications- including enzymes.

When Emily was inpatient half the time her food arrived before her enzymes and she would sit there hungry wanting to start eating... so I'd give her some from my bottle, and then when the nurse showed up with the enzymes, I'd then take them and add them to my stash. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I would talk to Adam's dr and address the private room issue. It will be up to his dr to ensure he gets his own room. If it's ordered, he should be able to get one. If it's not, it may be up to the draw, unless it's a blanket policy at the hospital for CF kids to get private rooms (which it SHOULD be, but based on posts here, that seems to be in question.)

 

[hmw]

It's good to bring your own enzymes in case they are not always prompt in providing them and/or they don't have all his rx orders right away. However, yes, they SHOULD provide all of his rx medications- including enzymes.

When Emily was inpatient half the time her food arrived before her enzymes and she would sit there hungry wanting to start eating... so I'd give her some from my bottle, and then when the nurse showed up with the enzymes, I'd then take them and add them to my stash. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I would talk to Adam's dr and address the private room issue. It will be up to his dr to ensure he gets his own room. If it's ordered, he should be able to get one. If it's not, it may be up to the draw, unless it's a blanket policy at the hospital for CF kids to get private rooms (which it SHOULD be, but based on posts here, that seems to be in question.)

 

[hmw]

It's good to bring your own enzymes in case they are not always prompt in providing them and/or they don't have all his rx orders right away. However, yes, they SHOULD provide all of his rx medications- including enzymes.
<br />
<br />When Emily was inpatient half the time her food arrived before her enzymes and she would sit there hungry wanting to start eating... so I'd give her some from my bottle, and then when the nurse showed up with the enzymes, I'd then take them and add them to my stash. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />I would talk to Adam's dr and address the private room issue. It will be up to his dr to ensure he gets his own room. If it's ordered, he should be able to get one. If it's not, it may be up to the draw, unless it's a blanket policy at the hospital for CF kids to get private rooms (which it SHOULD be, but based on posts here, that seems to be in question.)

 

[Aspiemom]

When I was in Hopkins they wouldn't let me use any of my at-home meds and they have a policy that CFers have to have a private room. The Adult CF care does, anyway, I wasn't there as a child.

Hope all goes well. I loved Dr. B and the Adult CF staff at Hopkins. I miss them.

 

[Aspiemom]

When I was in Hopkins they wouldn't let me use any of my at-home meds and they have a policy that CFers have to have a private room. The Adult CF care does, anyway, I wasn't there as a child.

Hope all goes well. I loved Dr. B and the Adult CF staff at Hopkins. I miss them.

 

[Aspiemom]

When I was in Hopkins they wouldn't let me use any of my at-home meds and they have a policy that CFers have to have a private room. The Adult CF care does, anyway, I wasn't there as a child.
<br />
<br />Hope all goes well. I loved Dr. B and the Adult CF staff at Hopkins. I miss them.

 

[TonyaH]

I agree with Harriet, take enzymes. If you attend a cff accredited center your hospital should have all three brands of pancreatic enzymes currently available. However, like Harriet mentioned, they don't always dose at the correct time. UNC actually leaves some of Andrew's meds in the room for us and I keep a chart of when I give them to him. This is because they would rather we use the hospital's enzymes, but realize that Andrew eats often throughout the day it just makes more sense to give him full access to the meds. They do the same for his rhinocort.

And while we are on the topic of schedules...I often do Andrew's CPT myself when we are inpatient. I don't know how it works at your hospital, but at ours the RTs will come in to administer nebs and inhalers, and then PT comes in to handle airway clearance. But as you can imagine, keeping that schedule working for all of your CF admits is nearly impossible and PT never arrives within a decent amount of time after hypertonic saline or pulmozyme. So, I am just in the habit of doing it myself after those nebs. (That also prevents PT from walking in the room at 10:00 wanting to start CPT! <img src="i/expressions/face-icon-small-smile.gif" border="0"> By that time we are in jammies and calling it a day.

Oh, and pack tennis shoes because PT will want to get him up and moving if he is able. Once when we had a summer admit Andrew went in wearing sandals. I had only packed slippers, no additional shoes. My husband had to bring up a pair of tennis shoes for us.

 

[TonyaH]

I agree with Harriet, take enzymes. If you attend a cff accredited center your hospital should have all three brands of pancreatic enzymes currently available. However, like Harriet mentioned, they don't always dose at the correct time. UNC actually leaves some of Andrew's meds in the room for us and I keep a chart of when I give them to him. This is because they would rather we use the hospital's enzymes, but realize that Andrew eats often throughout the day it just makes more sense to give him full access to the meds. They do the same for his rhinocort.

And while we are on the topic of schedules...I often do Andrew's CPT myself when we are inpatient. I don't know how it works at your hospital, but at ours the RTs will come in to administer nebs and inhalers, and then PT comes in to handle airway clearance. But as you can imagine, keeping that schedule working for all of your CF admits is nearly impossible and PT never arrives within a decent amount of time after hypertonic saline or pulmozyme. So, I am just in the habit of doing it myself after those nebs. (That also prevents PT from walking in the room at 10:00 wanting to start CPT! <img src="i/expressions/face-icon-small-smile.gif" border="0"> By that time we are in jammies and calling it a day.

Oh, and pack tennis shoes because PT will want to get him up and moving if he is able. Once when we had a summer admit Andrew went in wearing sandals. I had only packed slippers, no additional shoes. My husband had to bring up a pair of tennis shoes for us.

 

[TonyaH]

I agree with Harriet, take enzymes. If you attend a cff accredited center your hospital should have all three brands of pancreatic enzymes currently available. However, like Harriet mentioned, they don't always dose at the correct time. UNC actually leaves some of Andrew's meds in the room for us and I keep a chart of when I give them to him. This is because they would rather we use the hospital's enzymes, but realize that Andrew eats often throughout the day it just makes more sense to give him full access to the meds. They do the same for his rhinocort.
<br />
<br />And while we are on the topic of schedules...I often do Andrew's CPT myself when we are inpatient. I don't know how it works at your hospital, but at ours the RTs will come in to administer nebs and inhalers, and then PT comes in to handle airway clearance. But as you can imagine, keeping that schedule working for all of your CF admits is nearly impossible and PT never arrives within a decent amount of time after hypertonic saline or pulmozyme. So, I am just in the habit of doing it myself after those nebs. (That also prevents PT from walking in the room at 10:00 wanting to start CPT! <img src="i/expressions/face-icon-small-smile.gif" border="0"> By that time we are in jammies and calling it a day.
<br />
<br />Oh, and pack tennis shoes because PT will want to get him up and moving if he is able. Once when we had a summer admit Andrew went in wearing sandals. I had only packed slippers, no additional shoes. My husband had to bring up a pair of tennis shoes for us.

 

[Ratatosk]

I always take enzymes -- our local hospital only had generic when DS was a baby. Two years ago they had a different brand at the hospital at the City -- Pancreacarb instead of Pancrease, but he was able to take those.

Also because we travel 250 miles to our cf clinic/hospital, I make sure I have enough meds. Usually keep his medication in weekly pill keeper. Also take along albuterol and atrovent. A couple of times RT was delayed or DS order hadn't come up in time for CPT.

We had a private room. Policy for all people wcf and we were not allowed to use our own vest machine. Had to use theirs, but DS didn't like the white disposable vest, so we used our own.

 

[Ratatosk]

I always take enzymes -- our local hospital only had generic when DS was a baby. Two years ago they had a different brand at the hospital at the City -- Pancreacarb instead of Pancrease, but he was able to take those.

Also because we travel 250 miles to our cf clinic/hospital, I make sure I have enough meds. Usually keep his medication in weekly pill keeper. Also take along albuterol and atrovent. A couple of times RT was delayed or DS order hadn't come up in time for CPT.

We had a private room. Policy for all people wcf and we were not allowed to use our own vest machine. Had to use theirs, but DS didn't like the white disposable vest, so we used our own.

 

[Ratatosk]

I always take enzymes -- our local hospital only had generic when DS was a baby. Two years ago they had a different brand at the hospital at the City -- Pancreacarb instead of Pancrease, but he was able to take those.
<br />
<br />Also because we travel 250 miles to our cf clinic/hospital, I make sure I have enough meds. Usually keep his medication in weekly pill keeper. Also take along albuterol and atrovent. A couple of times RT was delayed or DS order hadn't come up in time for CPT.
<br />
<br />We had a private room. Policy for all people wcf and we were not allowed to use our own vest machine. Had to use theirs, but DS didn't like the white disposable vest, so we used our own.

 

[Printer]

I bring my enzymes because I find that the nurses are too busy to ALWAYS get them to me on time. I take 5 before eating and another 5 after. If I had to wait my food would almost always be cold.

I take those that they bring and put them into my bottle. Its just a matter of eating "hot" food.

Bill

 

[Printer]

I bring my enzymes because I find that the nurses are too busy to ALWAYS get them to me on time. I take 5 before eating and another 5 after. If I had to wait my food would almost always be cold.

I take those that they bring and put them into my bottle. Its just a matter of eating "hot" food.

Bill

 

[Printer]

I bring my enzymes because I find that the nurses are too busy to ALWAYS get them to me on time. I take 5 before eating and another 5 after. If I had to wait my food would almost always be cold.
<br />
<br />I take those that they bring and put them into my bottle. Its just a matter of eating "hot" food.
<br />
<br />Bill

 

[elliesmom]

We always take out own meds. This last time we were in the Pharmacy staff came up, labeled all our meds wrote them down and we took our own and they knew it this time, no hiding them. Our motto- Have Drugs will Travel. It ends up being cheaper, why pay double or triple for the meds when i already have my own. We also do our own vest on our schedule. Our hospital only has private rooms on the peds floor, so that is never an issue.

 

[elliesmom]

We always take out own meds. This last time we were in the Pharmacy staff came up, labeled all our meds wrote them down and we took our own and they knew it this time, no hiding them. Our motto- Have Drugs will Travel. It ends up being cheaper, why pay double or triple for the meds when i already have my own. We also do our own vest on our schedule. Our hospital only has private rooms on the peds floor, so that is never an issue.