enzymes in hospital

elliesmom

New member
We always take out own meds. This last time we were in the Pharmacy staff came up, labeled all our meds wrote them down and we took our own and they knew it this time, no hiding them. Our motto- Have Drugs will Travel. It ends up being cheaper, why pay double or triple for the meds when i already have my own. We also do our own vest on our schedule. Our hospital only has private rooms on the peds floor, so that is never an issue.
 

pipersmom

New member
Chris, I would say it depends on your insurance coverage. Piper is on medicaid, so they cover all her inhospital meds, etc., and we have no deductible or co-pay. Why use your own supply up? That said, we do take enzymes for the same reason everyone else mentioned, she shouldn't have to eat cold food because of a wait for enzymes.

As far as treatments go, I let the RTs do them and look at it as a mini-vacation for me. If they're more than 15 minutes late, I have the nurse page them and see what the deal is.
I think my biggest piece of advice for anyone going in for an admission would be to remember that the hospital staff are not omnipotent. We do NOT do overnight treatments unless Dr Froh (her CF Doc) truly thinks she needs them, and Dr Froh puts in orders that she is NOT to be woken at night for vitals. If we have time for a nap during the day, we put a "do not disturb" sign on the door. The Residents/Attendings are often wonderful, but we've also had Residents/Attendings who had more of a "my way or the highway" approach, and myself and Dr Froh are pretty up front with them that it isn't necessary, or appreciated. I may sound like a ermm...rhymes with "witch", but when you're stuck inpatient for 3-5 weeks, those things really make a difference. Also, amazingly enough, the nurses usually love us because we're pretty self sufficient. HTH...
 

pipersmom

New member
Chris, I would say it depends on your insurance coverage. Piper is on medicaid, so they cover all her inhospital meds, etc., and we have no deductible or co-pay. Why use your own supply up? That said, we do take enzymes for the same reason everyone else mentioned, she shouldn't have to eat cold food because of a wait for enzymes.

As far as treatments go, I let the RTs do them and look at it as a mini-vacation for me. If they're more than 15 minutes late, I have the nurse page them and see what the deal is.
I think my biggest piece of advice for anyone going in for an admission would be to remember that the hospital staff are not omnipotent. We do NOT do overnight treatments unless Dr Froh (her CF Doc) truly thinks she needs them, and Dr Froh puts in orders that she is NOT to be woken at night for vitals. If we have time for a nap during the day, we put a "do not disturb" sign on the door. The Residents/Attendings are often wonderful, but we've also had Residents/Attendings who had more of a "my way or the highway" approach, and myself and Dr Froh are pretty up front with them that it isn't necessary, or appreciated. I may sound like a ermm...rhymes with "witch", but when you're stuck inpatient for 3-5 weeks, those things really make a difference. Also, amazingly enough, the nurses usually love us because we're pretty self sufficient. HTH...
 

pipersmom

New member
Chris, I would say it depends on your insurance coverage. Piper is on medicaid, so they cover all her inhospital meds, etc., and we have no deductible or co-pay. Why use your own supply up? That said, we do take enzymes for the same reason everyone else mentioned, she shouldn't have to eat cold food because of a wait for enzymes.
<br />
<br /> As far as treatments go, I let the RTs do them and look at it as a mini-vacation for me. If they're more than 15 minutes late, I have the nurse page them and see what the deal is.
<br /> I think my biggest piece of advice for anyone going in for an admission would be to remember that the hospital staff are not omnipotent. We do NOT do overnight treatments unless Dr Froh (her CF Doc) truly thinks she needs them, and Dr Froh puts in orders that she is NOT to be woken at night for vitals. If we have time for a nap during the day, we put a "do not disturb" sign on the door. The Residents/Attendings are often wonderful, but we've also had Residents/Attendings who had more of a "my way or the highway" approach, and myself and Dr Froh are pretty up front with them that it isn't necessary, or appreciated. I may sound like a ermm...rhymes with "witch", but when you're stuck inpatient for 3-5 weeks, those things really make a difference. Also, amazingly enough, the nurses usually love us because we're pretty self sufficient. HTH...
 

jendonl

New member
We take all of our own medicines. The prices the hospital charges are many, many times higher than whan our pharmacy charges. In our case, it doesn't really affect what we pay because our hospital expense is capped but we don't think the insurance company should be charged so much extra for something she normally takes. We figure that it is these kinds of charges that make insurance so expensive for everyone. We take our own Vest for the same reason. They charge a huge fee to have someone come in to administer her treatment. I'd rather do it myself, anyway, on our schedule.

Also, I think it is a lot easier to figure out what extra medicines they are giving her so we can question anything we're not sure about.
 

jendonl

New member
We take all of our own medicines. The prices the hospital charges are many, many times higher than whan our pharmacy charges. In our case, it doesn't really affect what we pay because our hospital expense is capped but we don't think the insurance company should be charged so much extra for something she normally takes. We figure that it is these kinds of charges that make insurance so expensive for everyone. We take our own Vest for the same reason. They charge a huge fee to have someone come in to administer her treatment. I'd rather do it myself, anyway, on our schedule.

Also, I think it is a lot easier to figure out what extra medicines they are giving her so we can question anything we're not sure about.
 

jendonl

New member
We take all of our own medicines. The prices the hospital charges are many, many times higher than whan our pharmacy charges. In our case, it doesn't really affect what we pay because our hospital expense is capped but we don't think the insurance company should be charged so much extra for something she normally takes. We figure that it is these kinds of charges that make insurance so expensive for everyone. We take our own Vest for the same reason. They charge a huge fee to have someone come in to administer her treatment. I'd rather do it myself, anyway, on our schedule.
<br />
<br />Also, I think it is a lot easier to figure out what extra medicines they are giving her so we can question anything we're not sure about.
 

CJPsMom

New member
We were in Hopkins in January. They will supply the enzymes, we never had a problem with timeliness.

For rooms on the pediatric floor, unless you have RSV, it's 4 to a room. We had one night where there were only 2 of us, but it depends on how full they are.

My son was 2 months old at the time, and we had ages from 2 months to 4 years old in our room.

But, the nursing staff is amazing, so you'll be well-taken care of.
 

CJPsMom

New member
We were in Hopkins in January. They will supply the enzymes, we never had a problem with timeliness.

For rooms on the pediatric floor, unless you have RSV, it's 4 to a room. We had one night where there were only 2 of us, but it depends on how full they are.

My son was 2 months old at the time, and we had ages from 2 months to 4 years old in our room.

But, the nursing staff is amazing, so you'll be well-taken care of.
 

CJPsMom

New member
We were in Hopkins in January. They will supply the enzymes, we never had a problem with timeliness.
<br />
<br />For rooms on the pediatric floor, unless you have RSV, it's 4 to a room. We had one night where there were only 2 of us, but it depends on how full they are.
<br />
<br />My son was 2 months old at the time, and we had ages from 2 months to 4 years old in our room.
<br />
<br />But, the nursing staff is amazing, so you'll be well-taken care of.
 

hmw

New member
I am still flabbergasted over 4 to a room. That seems absolutely archaic in terms of infection control!! I still hope that is protocol largely for babies (who stay in a crib and don't touch things) ...I keep hoping someone with an older child that goes to Hopkins will see this and post. What about MRSA? And cf kids in general should just NOT HAVE ROOMMATES! *shudder*

That would potentially be a deal-breaker for me to go to Hopkins. There is NO WAY I would agree to a hospitalization for Emily with 3 roommates- there is simply no way they could maintain acceptable precautions, and there is also no way she'd get any rest with all the call bells, iv/pump alarms, etc (not to mention other noise!) that 4 patients would be generating.
 

hmw

New member
I am still flabbergasted over 4 to a room. That seems absolutely archaic in terms of infection control!! I still hope that is protocol largely for babies (who stay in a crib and don't touch things) ...I keep hoping someone with an older child that goes to Hopkins will see this and post. What about MRSA? And cf kids in general should just NOT HAVE ROOMMATES! *shudder*

That would potentially be a deal-breaker for me to go to Hopkins. There is NO WAY I would agree to a hospitalization for Emily with 3 roommates- there is simply no way they could maintain acceptable precautions, and there is also no way she'd get any rest with all the call bells, iv/pump alarms, etc (not to mention other noise!) that 4 patients would be generating.
 

hmw

New member
I am still flabbergasted over 4 to a room. That seems absolutely archaic in terms of infection control!! I still hope that is protocol largely for babies (who stay in a crib and don't touch things) ...I keep hoping someone with an older child that goes to Hopkins will see this and post. What about MRSA? And cf kids in general should just NOT HAVE ROOMMATES! *shudder*
<br />
<br />That would potentially be a deal-breaker for me to go to Hopkins. There is NO WAY I would agree to a hospitalization for Emily with 3 roommates- there is simply no way they could maintain acceptable precautions, and there is also no way she'd get any rest with all the call bells, iv/pump alarms, etc (not to mention other noise!) that 4 patients would be generating.
 

CJPsMom

New member
It really wasn't a big deal. We all had different nurses, so there was no cross contamination and each "bed" was sectioned off with curtains.

The worst part was the various bells & whistles going off at various points during the night.

And generally, these were kids who were recovering from surgery or obviously ill enough for a hospital stay, so they weren't up and interacting.

The new Children's Center has private rooms for all peds - including NICU.
 

CJPsMom

New member
It really wasn't a big deal. We all had different nurses, so there was no cross contamination and each "bed" was sectioned off with curtains.

The worst part was the various bells & whistles going off at various points during the night.

And generally, these were kids who were recovering from surgery or obviously ill enough for a hospital stay, so they weren't up and interacting.

The new Children's Center has private rooms for all peds - including NICU.
 

CJPsMom

New member
It really wasn't a big deal. We all had different nurses, so there was no cross contamination and each "bed" was sectioned off with curtains.
<br />
<br />The worst part was the various bells & whistles going off at various points during the night.
<br />
<br />And generally, these were kids who were recovering from surgery or obviously ill enough for a hospital stay, so they weren't up and interacting.
<br />
<br />The new Children's Center has private rooms for all peds - including NICU.
 
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