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especially for women
- Thread starter scarlett
- Start date
MidnightShowK
New member
Wow Piper...I'm only 16, but it's nice to hear that you've found a great guy like that. I really believe I have, even at my and his young age. I'm not saying we're getting married, but I've found a guy who accepts my problems..even those nasty ones..like the nasty nasty coughing during movies haha! He's moving though soon, but luckily to the place I'm moving in a couple years..I guess this is the test, hu?
I didn't know some of the things that happen with me were related to CF, like hair loss? I used to have pretty thick hair, but my mom noticed (since she's a hair dresser and cuts my hair) that it's gotten thinner, and I do pull a lot out throughout the day. And the yeast infections! I'm tired as crap of those. I stopped taking Advair because I had an infection pretty much all of the time. I know, I should just suck it up, so I'm going to start it up again, because whenever the nurse goes through my meds and asks if I'm still taking Advair and I say "yep", I feel this surge of guilt go through me. I'm not taking what is appearently a really great drug, and when I get sick (like I am right now) I feel like I didn't do all I could.
Somethings you mentioned I didn't know would be a problem! Now I'm afraid haha, but oh well.
But the main thing that I related to was the belly thing...I've aaaalways had a big belly. I mean, I was born a stick figure except for this huuuge belly! I looked like a pregnant baby... it looks better now since I've filled out and all, but I always will have a big stomach, along with the big barrel chest. I'm still waiting to accept this. I tell myself everything I can. On somedays I feel like "Hey! who cares?? Whoa re you trying to impress? You're you, so be F-ing proud of it!"...but then I see every other girl my size (which is a nice size) with these flat, NORMAL stomachs, and small "rib areas" (lol) and I get depressed about it. Thats the one things I've wanted forver...a flat stomach...won't happen, so like I said...I'm waiting for that feeling of acceptance haha
Well guys, I'm out...love you all, and stay strong, cause even though we may not be normal, we've got eachother to lean on and share our annoyances with (=
I didn't know some of the things that happen with me were related to CF, like hair loss? I used to have pretty thick hair, but my mom noticed (since she's a hair dresser and cuts my hair) that it's gotten thinner, and I do pull a lot out throughout the day. And the yeast infections! I'm tired as crap of those. I stopped taking Advair because I had an infection pretty much all of the time. I know, I should just suck it up, so I'm going to start it up again, because whenever the nurse goes through my meds and asks if I'm still taking Advair and I say "yep", I feel this surge of guilt go through me. I'm not taking what is appearently a really great drug, and when I get sick (like I am right now) I feel like I didn't do all I could.
Somethings you mentioned I didn't know would be a problem! Now I'm afraid haha, but oh well.
But the main thing that I related to was the belly thing...I've aaaalways had a big belly. I mean, I was born a stick figure except for this huuuge belly! I looked like a pregnant baby... it looks better now since I've filled out and all, but I always will have a big stomach, along with the big barrel chest. I'm still waiting to accept this. I tell myself everything I can. On somedays I feel like "Hey! who cares?? Whoa re you trying to impress? You're you, so be F-ing proud of it!"...but then I see every other girl my size (which is a nice size) with these flat, NORMAL stomachs, and small "rib areas" (lol) and I get depressed about it. Thats the one things I've wanted forver...a flat stomach...won't happen, so like I said...I'm waiting for that feeling of acceptance haha
Well guys, I'm out...love you all, and stay strong, cause even though we may not be normal, we've got eachother to lean on and share our annoyances with (=
hi..i too have the bloated belly..when i wake up its perfectly flatand i love it. then by the end of the day i look like i'm ready to pop out a kid..why?!?! this drives me crazy..my doctor has no real answer other then "well, thats CF" so whats a girl to do..i am pretty thin other wise..i have no waist and usually buy the low rise jeans..good luck all you big belly girls..i'm right there with ya!
this is craziness! this belly thing!....i get it all the time, and ill ask my family if they see it, and theyll be like 'no not at all youre crazy'...but i think they say this so not to make me feel bad to tell the truth...but i knwo the truth!...i dont have a 'pregnant belly' all the time, deff more before my period time, and on random times! and after i eat w BIG meal...i always make sure to wear my bigger clothing when im going out to eat so i can 'grow' into my pants haha (wear stretch pants and all or a skirt!) i think i own 3 different sizes in my closet,2,4, and 6...depending on my day i see what i fit into! weird huh?...well i never knew this belly thing wasnt just me!, its common in other CFers
what u found most interesting though, was the peeing in the pants/coughing and peeing a little...omg always happens to me!!...but a lot less now , i think its because i havent coughed too hard lately and maybe yoga has helped it too?...all i rmemebr was in the beginning of yoga, when i just started, id have a little pee come out and now never!....yet when i get into those coughing fits, esp when i was younger...putting ur heel/foot into that area to 'clog' it really helped!
the low rise jeans? see i LOVE low rise, and i never realized y, and i think i know y...the belly!!....see when u have low rise jeans it makes it look more like its muscle somewhat, ...i just bought s GREAT pair of jeans! tight on the legs (bc always hard to find jeans that fit my legs, butt and waist!....and this pair, tight ont he legs and fits the butt...and a bit big/comfortable on the waist (and its low rise) so that when i eat a big meal its awesome i have soo much room to 'grow;
and i took can go from 120-125lbs in one day, throughout the day depending on the time of day!....most of my weight is due to excersise--trust me girls its works!! build muscle and u can gain a lot of weight...and if your shy of coughing at the gym (which when i dont feel well i feel this way, or ive felt this way too before i joined the gym as well) i have done taebo in the house, w a video! and OMG the first 5 minutes i couldnt get through it i couldnt breath, and now i can do an hour!! (took me a good yr i think to get ot that though) try it!...ok i think im going to go to bed now, soo tired! and the more i sleep, the more i find the better i feel!! the less sleep, the worse i feel!!
k well this is sooo cool, great forum we got going on here
19 girl w CF
what u found most interesting though, was the peeing in the pants/coughing and peeing a little...omg always happens to me!!...but a lot less now , i think its because i havent coughed too hard lately and maybe yoga has helped it too?...all i rmemebr was in the beginning of yoga, when i just started, id have a little pee come out and now never!....yet when i get into those coughing fits, esp when i was younger...putting ur heel/foot into that area to 'clog' it really helped!
the low rise jeans? see i LOVE low rise, and i never realized y, and i think i know y...the belly!!....see when u have low rise jeans it makes it look more like its muscle somewhat, ...i just bought s GREAT pair of jeans! tight on the legs (bc always hard to find jeans that fit my legs, butt and waist!....and this pair, tight ont he legs and fits the butt...and a bit big/comfortable on the waist (and its low rise) so that when i eat a big meal its awesome i have soo much room to 'grow;
and i took can go from 120-125lbs in one day, throughout the day depending on the time of day!....most of my weight is due to excersise--trust me girls its works!! build muscle and u can gain a lot of weight...and if your shy of coughing at the gym (which when i dont feel well i feel this way, or ive felt this way too before i joined the gym as well) i have done taebo in the house, w a video! and OMG the first 5 minutes i couldnt get through it i couldnt breath, and now i can do an hour!! (took me a good yr i think to get ot that though) try it!...ok i think im going to go to bed now, soo tired! and the more i sleep, the more i find the better i feel!! the less sleep, the worse i feel!!
k well this is sooo cool, great forum we got going on here
19 girl w CF
I've been away from this board for a year and am so impressed and delighted with how this topic has grown!! As it says in my first post, I started this thread because I had this dream that there could be a place online for specific problems faced by women with cf. Then real life intervened, and I could barely get through my classes, much less design and maintain a web site! Yet I so appreciate that everyone has taken the time to participate in this discussion. Let's keep it going.
I am awed by Piper's ABCs (Does anyone know if Piper still reads this board?) Especially this one:
<blockquote>Quote<br><hr>v) HAIR LOSS: Anyone else have this? I have VERY thin hair (didn't when I was younger), I noticed it start coming out a lot in my early 20s. Now, I have basically areas so thin they are pretty much bald. I always thought it was my meds but my docs said no and no other person had complained of this. I finally found out Atrovent (Ipatropium Bromide) can cause it. Anyone else have hair loss issues? I'm trying to pinpoint if it's medications, health, or what.<hr></blockquote>Unfortunately this happens to a lot of women with cf. I have been losing hair and have asked in other online communities, and many other gals said their hair had also gotten significantly thinner as they grew up. I have lost a ton of hair this year. I just got blood drawn on friday so my thyroid can be checked. I was using Garnier fortifying products and it was still falling out like crazy; now when I wear one braid it's the thickness of what 2 used to be. My hairdresser said my hair wasn't breaking, which meant it had to be coming out at the roots.
In general, the most obvious reason why women with cf lose hair is because of a vitamin defienciency. But if you aren't malnourished (I'm not), it might be a medication issue. My doctor said it could possibly have to do with taking flovent, advair, or pulmicort (I'm not on any of those, however, so that's not what it is for me.) Has anyone tried anything for this? I really hope there is something up with my thyroid so I can get a quick fix (but then again, this is cf. when is there ever a 1 pill solution? wishful thinking, huh) If not I'm totally looking into rogaine.
<b>if anyone knows what I can do about this, let me know!! </b> It's very distressing (dis-tressed, I guess you could say. ha ha) I hate it so much!!<img src="i/expressions/face-icon-small-mad.gif" border="0">
I am awed by Piper's ABCs (Does anyone know if Piper still reads this board?) Especially this one:
<blockquote>Quote<br><hr>v) HAIR LOSS: Anyone else have this? I have VERY thin hair (didn't when I was younger), I noticed it start coming out a lot in my early 20s. Now, I have basically areas so thin they are pretty much bald. I always thought it was my meds but my docs said no and no other person had complained of this. I finally found out Atrovent (Ipatropium Bromide) can cause it. Anyone else have hair loss issues? I'm trying to pinpoint if it's medications, health, or what.<hr></blockquote>Unfortunately this happens to a lot of women with cf. I have been losing hair and have asked in other online communities, and many other gals said their hair had also gotten significantly thinner as they grew up. I have lost a ton of hair this year. I just got blood drawn on friday so my thyroid can be checked. I was using Garnier fortifying products and it was still falling out like crazy; now when I wear one braid it's the thickness of what 2 used to be. My hairdresser said my hair wasn't breaking, which meant it had to be coming out at the roots.
In general, the most obvious reason why women with cf lose hair is because of a vitamin defienciency. But if you aren't malnourished (I'm not), it might be a medication issue. My doctor said it could possibly have to do with taking flovent, advair, or pulmicort (I'm not on any of those, however, so that's not what it is for me.) Has anyone tried anything for this? I really hope there is something up with my thyroid so I can get a quick fix (but then again, this is cf. when is there ever a 1 pill solution? wishful thinking, huh) If not I'm totally looking into rogaine.
<b>if anyone knows what I can do about this, let me know!! </b> It's very distressing (dis-tressed, I guess you could say. ha ha) I hate it so much!!<img src="i/expressions/face-icon-small-mad.gif" border="0">
I am a 20 year old female living with CF, and yes, it's hard! It does effect every aspect of life. Constant coughing causes all sorts of questions, which I'm not shy about answering, but when your infront of a hot guy and your explaining that your not "normal" a lot of times it turns them off. Guess they aren't worth the hassle than. Apperance is probably the hardest thing. From the outside you can't tell I have Cf, but I'm significantly small for my age. I'm 5'1 and 97lbs. I don't think I look young, but to everyone else who sees me and doesn't know, I range anywhere from 12 to 18! I have no real womenly curves. Small boobs, small butt, practically no hips or thighs. Most women say they'd kill to look like this, but no, they wouldn't! I can't even find pants that fit me I'm so small. I still fit in kids clothing. I don't get asked out very often and it hurts. I look at celebrities and know that I'll never have a body like that. I've also sort of got the whole "rounded" chest thing going on, which makes me very self concious.<img src="i/expressions/face-icon-small-blush.gif" border="0">
I am 20 years old and I have always hated the way my body looks. For one, I hate my chest. I am not sure but I have really not gone through puberty with my breasts. My nipples have not changed, so it looks like a little kids chest. I have my period and I grow hair and everything else but just not the breast thing!!! I am wondering what I could do to make them develope? The next thing is my barrell chest! I hate it so much! I am 5'3" and am 100lbs so i am pretty small everyone says, which i have a self esteem issue about my body and thinking that I am fat!!! But the whole barrell chest makes me feel fat... I live in hawaii so yah it is swimming suit season all year round and I hate the way i fit into a swimsuit. I need some boobs, a butt, and toes that look normal not like big thumbs or frog toes!!! Anyways, if there is anyone who went through this or has any info on the none development on breasts and what I could do to make them develope that would be greatly appreciated!!!
Cariann 20 w/ cf cfrd mrsa
Cariann 20 w/ cf cfrd mrsa