hey all
I'm on IVs for M. abscessus and have been for the passed month. Lung wise, I'm feeling good. I feel like these IVs actually got rid of something. I'm supposed to be on these meds for at least another 6 months (ideally for the next year, but we'll see). Everything else wise, I feel horrible! I'm constantly nauseous (even with Reglan) and I haven't pooped normally in about a month (even with Miralax and acidophilous). I feel like I could be back to feeling 100% if these meds were discontinued. I tell the docs this and they just seem to take it with a grain of salt. Or they prescribe me something else and tell me these meds will make me better in the long run. I no longer care about the long run, I hate constantly feeling like puking. Grocery shopping yesterday was awful-everything on my list and in the store made me want to vomit. Again, this is WITH reglan. Coughing makes me gag now. It's like my lungs want to remove the junk and my stomach is saying, "Hold up, we're emptying? I've got stuff!" and then I spend the rest of my treatment time trying NOT to cough because I don't want to throw up.
I feel so awful on these meds now, it seems like they've done their job and since there's nothing else to do, they're now MAKING me sick, in a whole different way. I haven't been eating right in several weeks and I've almost been sent home from work twice already b/c of the nausea. I even skipped class just to try and nap (I know, shame on me).
Does anyone ever feel worse just b/c of side effects? What do you do? I'm nearly in tears because of how crappy these side effects are making me feel.
I was having trouble with my port the other day. It was deaccessed and left like that for most of the day until I could go to clinic in the late afternoon. I didn't do any IVs. I ate everything I could and felt GREAT. My fiance even noticed my eating a ton and mentioned that I must be feeling better. "Yeah," I told him, "because I haven't done any meds today."
I'm on IVs for M. abscessus and have been for the passed month. Lung wise, I'm feeling good. I feel like these IVs actually got rid of something. I'm supposed to be on these meds for at least another 6 months (ideally for the next year, but we'll see). Everything else wise, I feel horrible! I'm constantly nauseous (even with Reglan) and I haven't pooped normally in about a month (even with Miralax and acidophilous). I feel like I could be back to feeling 100% if these meds were discontinued. I tell the docs this and they just seem to take it with a grain of salt. Or they prescribe me something else and tell me these meds will make me better in the long run. I no longer care about the long run, I hate constantly feeling like puking. Grocery shopping yesterday was awful-everything on my list and in the store made me want to vomit. Again, this is WITH reglan. Coughing makes me gag now. It's like my lungs want to remove the junk and my stomach is saying, "Hold up, we're emptying? I've got stuff!" and then I spend the rest of my treatment time trying NOT to cough because I don't want to throw up.
I feel so awful on these meds now, it seems like they've done their job and since there's nothing else to do, they're now MAKING me sick, in a whole different way. I haven't been eating right in several weeks and I've almost been sent home from work twice already b/c of the nausea. I even skipped class just to try and nap (I know, shame on me).
Does anyone ever feel worse just b/c of side effects? What do you do? I'm nearly in tears because of how crappy these side effects are making me feel.
I was having trouble with my port the other day. It was deaccessed and left like that for most of the day until I could go to clinic in the late afternoon. I didn't do any IVs. I ate everything I could and felt GREAT. My fiance even noticed my eating a ton and mentioned that I must be feeling better. "Yeah," I told him, "because I haven't done any meds today."