Jennifer1981
New member
I wasn't going to post this, but I'm so excited that I can't help it!!!
Yesterday, Friday, I had a checkup after 4 months. I hadn't been there since November 17th. I knew it would be a good visit, except for my sinuses, but I had no idea it would be that good!!!
I went from 105 lbs to 113 lbs! I'm only 4'11" so that's a BIG difference!
Then, my PFT's were great!!! My FEV1 went from 63% to 68%, despite the terrible sinus situation. My doctor was positive that my number would have been at least 70% if the sinuses could get better mananged. My nose is running non-stop, followed with sneezing. It's constantly dripping into my lungs.
So he wants to put me on some kind of antibiotic that you put into a nebulizer cup and breath in through a mask. It's something brand new that they just recently starting using on other CFers. His head nurse will be calling me Monday so I know more than. I'm not thrilled about an inhaled antibiotic, but I really have NO other option. After 4 sinus surgeries, nothing works anymore.
But on the upside, my PFT's should be amazing in May. I can't wait to break the machine. LOL! Actually, I was surprised about my PFT's. I was kind of expecting them to be the same with all the sinus crap going on. I knew they were doing better but wasn't sure how they would look with the distraction.
OH, I ALMOST FORGOT! My FEV1 was the best in 1.5 years!!! YEAH!<img src="i/expressions/face-icon-small-cool.gif" border="0"> They weren't this good since November 2005!!!
We discussed my lack of conceiving - He said just give it a few more months since my health has clearly excelled. He is convinced that it will happen but that I MUST calm down about it. He thinks that I'm too "caught up in it" and that it won't happen that way. From his standpoint, there is NO CF-related reason why I haven't conceived.
Well, I have to go! I have the HUGE CF meeting tonight. I have tried so hard to calm down about that too. I'm such a nervous person. At least, I have my dress. I'll be sure to take pics and post some - probably Monday! Take care!
<img src="i/expressions/heart.gif" border="0"><img src="i/expressions/face-icon-small-wink.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/sun.gif" border="0"><img src="i/expressions/face-icon-small-tongue.gif" border="0"><img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/face-icon-small-cool.gif" border="0"><img src="i/expressions/present.gif" border="0">
Yesterday, Friday, I had a checkup after 4 months. I hadn't been there since November 17th. I knew it would be a good visit, except for my sinuses, but I had no idea it would be that good!!!
I went from 105 lbs to 113 lbs! I'm only 4'11" so that's a BIG difference!
Then, my PFT's were great!!! My FEV1 went from 63% to 68%, despite the terrible sinus situation. My doctor was positive that my number would have been at least 70% if the sinuses could get better mananged. My nose is running non-stop, followed with sneezing. It's constantly dripping into my lungs.
So he wants to put me on some kind of antibiotic that you put into a nebulizer cup and breath in through a mask. It's something brand new that they just recently starting using on other CFers. His head nurse will be calling me Monday so I know more than. I'm not thrilled about an inhaled antibiotic, but I really have NO other option. After 4 sinus surgeries, nothing works anymore.
But on the upside, my PFT's should be amazing in May. I can't wait to break the machine. LOL! Actually, I was surprised about my PFT's. I was kind of expecting them to be the same with all the sinus crap going on. I knew they were doing better but wasn't sure how they would look with the distraction.
OH, I ALMOST FORGOT! My FEV1 was the best in 1.5 years!!! YEAH!<img src="i/expressions/face-icon-small-cool.gif" border="0"> They weren't this good since November 2005!!!
We discussed my lack of conceiving - He said just give it a few more months since my health has clearly excelled. He is convinced that it will happen but that I MUST calm down about it. He thinks that I'm too "caught up in it" and that it won't happen that way. From his standpoint, there is NO CF-related reason why I haven't conceived.
Well, I have to go! I have the HUGE CF meeting tonight. I have tried so hard to calm down about that too. I'm such a nervous person. At least, I have my dress. I'll be sure to take pics and post some - probably Monday! Take care!
<img src="i/expressions/heart.gif" border="0"><img src="i/expressions/face-icon-small-wink.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/sun.gif" border="0"><img src="i/expressions/face-icon-small-tongue.gif" border="0"><img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/face-icon-small-cool.gif" border="0"><img src="i/expressions/present.gif" border="0">
