Excess amniotic fluid (33 weeks pregnant with CF Baby)

anonymous

New member
Hello,I just has an ultrasound today and the doctor told me I have increased amniotic fluid. They don't seem concerned and want to see me back in two weeks for a regular visit. At that time they said we would talk about scheduling another ultrasound. Could the increased fluid could be a sign of Meconium ileus? They said that the bowel looked a little "brighter" on the ultrasound than normal but again they don't seem very concerned. Should I be pushing my md to do another US sooner that three to four weeks? I read the amount of amniotic fluid increases until about 28-32 weeks of pregnancy. At that time you have about one quart of fluid. After that time, the level stays about the same until about 38 to 40 weeks, when the baby is considered full-term. After that, the level begins to decrease. Not sure what to do. Maybe I need to have a little more faith in the doctors but I want to be best prepared for what is to come. Any advice would be appreciated. Thank you. Paula
 

anonymous

New member
My son, who is now 10 months, had "bright bowels" on the pre-natal ultrasounds last summer. We had a two-year old daughter with cf, so we not only now had a cf diagnosis, but a good possibility of meconium illeus. I spoke to a number of doctors trying to prepare ourselves for meconium illeus at birth. He ended up not being able to pass his meconium and his stomach swelled up shortly after birth. He was in ICU for two weeks, but many enemas after 10 days caused him to clear his intestines without surgery. I huge blessing!! If you send me an e-mail at sdelorenzo@sbcglobal.net I will pass on you what I learned from them experience.Sharon
 

docmomma

New member
I had excess amniotic fluid with the birth of my daughter (1 month old) who was just diagnosed with CF. From what my ob and the CF specialist said, the polyhydramnios was not related to CF. My daughter did not have a meconium illeus and has had no digestive problems yet. I would be sure that you are getting a full anatomic ultrasound by the radiologists and not just an ultrasound done in the OB office (unless they are a neonatal specialist).
 

anonymous

New member
I had a lot of fluid too. They took out 2 liters when I was 34 weeks( almost 2 qts) and I has miserable. In the ultrasound they suspected that the baby had a bowel obstruction, they even did the fluid test ( don't know the name in english) and it came back normal...they never told us nothing about CF...it was a real dumb doctor. well, 3 weeks later they were taking more fluid coz of the pressure in my belly and the baby had vomiteds in it so they decided to induce. well, my baby had a MI and had surgery after birth, and of course, like most cases of MI , he has cf. I believe they should check you and baby every week from now on. Hope everything goes ok with your baby.
 

anonymous

New member
Hi, I'm 26 years old and I had meconium ileus, surgically corrected at birth. I also happen to be a sonographer (ultrasound tech) so I know some stuff about these subjects. There are many things that could be contributing to the polyhydramnios (excess fluid) It could be realted to fetal bowel issues but also could be unrelated. Either way, your MD should be following closely. If the fetus is known to have CF, then they should monitor closely for dilated loops of bowel or decreased fetal movement (signs of distress). This will show up on an ultrasound. Many times the polyhydramnios ends up being something we can't explain or find a cause for. I hope this is a little helpful. good luck
 

anonymous

New member
Hello,Thank you to you all for your posts. If I can ask how often do you think they should be doing US at this point? Every 2 weeks? Every week? I have 5 weeks to go. Thanks again for your help!
 

anonymous

New member
Thank you. I went to my doctor today and he didn't think another US was necessary. I have 5 more weeks to go. He said the increased fluid was mild to moderate and nothing on another US would change their course of treatment. Can I ask, does it ever get bad enough that they would consider taking the baby early? I got the impression today that they would deal with any blockage after the baby was born (scheduled c-section four days before my due date). After my husband and I talked more with him he was willing to order another US for two weeks from now (to try to ease some of our anxiety). Are we overreacting here? Thanks..
 

anonymous

New member
I think you should continue to keep an eye on it. Meconium perontisis (sp?), the rupturing of the intestines, although treatable has a lot more complications than just a simple meconium illeus, which is the intestinal blockage. My wife also had swelling and had weekly US after 32 weeks. At 37, the baby's stomach began to swell and the perentoligist ordered an emergency C-section. My daughter was born with a meconium blockage in her small intestines and after concluding the enemas wouldn't clear her they went in and performed surgery to remove the meconium and gave her and illeus ostomy. After a week to heal she was eating, sleeping, and pooping like a normal baby. And maybe on her 3 week birthday next Monday, she will come home for the first time!Brad
 

anonymous

New member
Hi Brad,Thank you for your post. I am glad your baby girl is doing well and will be home soon. I am going to contact my doctor to discuss this in more detail. Best wishes to you and your family.
 

anonymous

New member
absolutely it should be watched closely. If the baby has meconium ileus and it leads to intenstinal rupture it can be very serious. I can't believe your doctor didnt want another ultrasound? Is he a perinatologist?
 

anonymous

New member
My US is this Wednesday. I did contact our CF doctor. I glad I did! He wants to compare the last US to the previous one. He will also be very interested in seeing the results of our next one. We live in Boston and are very lucky to have such wonderful care. I think the pre-natal diagnosis is somewhat new territory for the doctors. I will let you know how the next US goes! Thanks again for all your posts. My doctor is not a perinatologist - he is a high risk obgyn. I asked our CF doc if he felt we needed a peri and he didn't think it was necessary at this time. We are also going to meet with the surgical team just in case we have to go that route so we will know more about the procedure and process. Thanks!
 

anonymous

New member
yeah, i go to childrens (even tho Im 26) its such a great hospital and i have gone there since birth. How old is your son?
 

anonymous

New member
Definitely meet with the surgeon to see what his opinions are about surgery or extended gastographic contrast enemas. We were glad we were prepared and everything has transitioned great for our daughter to come home last week. She's eating fine and put on 1.5lbs. in the last two weeks!Brad
 

anonymous

New member
my son is only 2. we are fairly new to Cf and thakfully haven't experience too much with children's hospital. We go every 3-4 months for weight checks with blood work and chest xrays 1x year. It's good to know you are happy with the care you are recieving there.
 

anonymous

New member
Hi -- My daughter had the MI and did not require surgery. The best thing for you to do is to remain calm. Getting stressed is not going to help you or the baby. I am sure that your DR's are giving you the best care. Just trust in them and God. Keep us posted -- I care!! Good Luck!! Brad, So happy to hear your great news. All the best to you and yours!! Debra
 
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