I'm glad you are so happy w/ mass general, I have heard great things about the team there. Childrens (where im treated) is excellent too, and I have heard that Brigham & Women's (where I work) also has a great team. We are lucky to have so many wonderful places to choose from!
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Excess amniotic fluid (33 weeks pregnant with CF Baby)
- Thread starter anonymous
- Start date
Hello - I had another US last Wednesday. Just an update that my fluid levels did not increase any and the US did not show any worse of a blockage so we are going to continue with a planned c-section August 10th. Thanks again to all of you for your postings and support. It helps me so much to have this forum to ask my cf questions to. Paula
HollyCatheryn
New member
I'd like to offer that if your baby is found to have CF and meconium ileus, you should try and breastfeed - at least initially. Even though the baby may not absorb a lot of the calories and may need a supplemental fomula (not always, though) the breastmilk has a special bowel clearing property. It helps to loosen and move through the sticky first bowels. This in conjunction with its infection fighting properties makes it an important part of new life for a baby with CF who is naturally more plugged up and susceptible to infection (especially if he/she must be hospitalized). You might look into seeing a lactation consultant (most hospitals have them) even before the borth so that if your baby needs the ICU, the Lac.Cons. can help you pump and bottlefeed your milk to the baby. Many moms have found that their babies with CF are healthier not only as newborns, but as they get older if they were even partially breastfed because of the infection protection. Just someting to think about.
Hi there, My 19month old was born with meconium peritonitis and vulvus ( twisting of the intestine) and required surgery hours after birth. He was also diagnosised with fluid in his belly in utero at 38 weeks. The neonatolgist wanted to do a C-section then and there but my OB convinced her to at least let me try going vaginally. I had him vaginally with out any difficulty at all. He tolerated the whole procedure with out a problem. In fact that was the easest part!!! He had surgery and an colostomy when he was hours old. The lactation consultant was wonderful. I HIGHLY recemond that you do breast feed. It contains immunity for the baby, breastmilk is already broken down so that the baby's belly will not have to work so hard to break it down. And it will require less enzymes than formula. I to was very concerned that breastmilk would not meet his caloric demands but let me reassure you, he was a VERY chunky baby. 24Lbs at a year old and very healthy. I pumped for 8months because he really wasn't taking anything by mouth until he was 2 months old and had was not about to latch on. If you have any questions or just want to chat please feel free to email me. ~Kim~ 19month old w/cf Kimmer246@msn.com
Hello Everyone - I just wanted to give an update to my original post. Bennett Patrick Regan was born on 8/10. It took him about 40 hours to pass his first stool. We were getting close to beginning procedures to assist him but he did it! He came home from the hospital on time with us and we are thrilled to have him! THanks again for your support. Paula
Mom to Jameson 3.5 w/o cf and Bennett 10 days old with cf.
Mom to Jameson 3.5 w/o cf and Bennett 10 days old with cf.
NoDayButToday
New member
Congratulations! I'm glad all went well <img src="i/expressions/face-icon-small-smile.gif" border="0">