Exercise/Heartrate Question

[NYCLawGirl]

So, I am trying to build back up my endurance after being sick so much this winter/spring. This is one of the few areas that I have a little conflict with my doctor on, because she actually thinks I've been working out too much (she's concerned about calories and my O2 level, which I get). She told me 20-30 minutes 3-4 times a week with a target heartrate in the mid 140s - no higher than 160. The problem is, I'm completely beseiged with stories about people who pulled themselves out of a s****y FEV1 and off the trasplant list through exercise, and I really want to be one of those people.

I CAN work out pretty strenuously. Prior to my doctor telling me the whole "25 minutes 3 times a week at 140" thing, I was working out 45 minutes probably 5 times a week at a pretty good pace, with my heartrate normally in the 150s-160s and up to 180 during peak exercise. Which makes sense to me because my HR has lately been around 100 even just resting. Also, I'm careful about it - I wear my O2 all the way up at 3 liters and monitor my levels pretty religiously throughout the workout, so I do slow down a little when I see my levels dropping or if my HR gets too out of control.

How do you guys balance the exercise/heart thing? I'm not AS worried about the calorie problem (although I am currently fighting really hard to raise my weight, but drinking 6 boost plusses per day has to be making up for the exercise!), but I definitely don't want to be damaging my heart. Right now I'm so frustrated with CF that I'm back to working out everyday - as a compromise I only do real cardio 4 times a week (every other day), but I walk at least a mile on my off days. I am also looking into a trainer to build strength which I'm hoping will help. I just need a little guidance on whether I'm striking the right balance between giving my body the rest it needs at this point in my disease and fighting as hard as I can to break this downward trend.

Any advice?

 

[NYCLawGirl]

So, I am trying to build back up my endurance after being sick so much this winter/spring. This is one of the few areas that I have a little conflict with my doctor on, because she actually thinks I've been working out too much (she's concerned about calories and my O2 level, which I get). She told me 20-30 minutes 3-4 times a week with a target heartrate in the mid 140s - no higher than 160. The problem is, I'm completely beseiged with stories about people who pulled themselves out of a s****y FEV1 and off the trasplant list through exercise, and I really want to be one of those people.

I CAN work out pretty strenuously. Prior to my doctor telling me the whole "25 minutes 3 times a week at 140" thing, I was working out 45 minutes probably 5 times a week at a pretty good pace, with my heartrate normally in the 150s-160s and up to 180 during peak exercise. Which makes sense to me because my HR has lately been around 100 even just resting. Also, I'm careful about it - I wear my O2 all the way up at 3 liters and monitor my levels pretty religiously throughout the workout, so I do slow down a little when I see my levels dropping or if my HR gets too out of control.

How do you guys balance the exercise/heart thing? I'm not AS worried about the calorie problem (although I am currently fighting really hard to raise my weight, but drinking 6 boost plusses per day has to be making up for the exercise!), but I definitely don't want to be damaging my heart. Right now I'm so frustrated with CF that I'm back to working out everyday - as a compromise I only do real cardio 4 times a week (every other day), but I walk at least a mile on my off days. I am also looking into a trainer to build strength which I'm hoping will help. I just need a little guidance on whether I'm striking the right balance between giving my body the rest it needs at this point in my disease and fighting as hard as I can to break this downward trend.

Any advice?

 

[NYCLawGirl]

So, I am trying to build back up my endurance after being sick so much this winter/spring. This is one of the few areas that I have a little conflict with my doctor on, because she actually thinks I've been working out too much (she's concerned about calories and my O2 level, which I get). She told me 20-30 minutes 3-4 times a week with a target heartrate in the mid 140s - no higher than 160. The problem is, I'm completely beseiged with stories about people who pulled themselves out of a s****y FEV1 and off the trasplant list through exercise, and I really want to be one of those people.

I CAN work out pretty strenuously. Prior to my doctor telling me the whole "25 minutes 3 times a week at 140" thing, I was working out 45 minutes probably 5 times a week at a pretty good pace, with my heartrate normally in the 150s-160s and up to 180 during peak exercise. Which makes sense to me because my HR has lately been around 100 even just resting. Also, I'm careful about it - I wear my O2 all the way up at 3 liters and monitor my levels pretty religiously throughout the workout, so I do slow down a little when I see my levels dropping or if my HR gets too out of control.

How do you guys balance the exercise/heart thing? I'm not AS worried about the calorie problem (although I am currently fighting really hard to raise my weight, but drinking 6 boost plusses per day has to be making up for the exercise!), but I definitely don't want to be damaging my heart. Right now I'm so frustrated with CF that I'm back to working out everyday - as a compromise I only do real cardio 4 times a week (every other day), but I walk at least a mile on my off days. I am also looking into a trainer to build strength which I'm hoping will help. I just need a little guidance on whether I'm striking the right balance between giving my body the rest it needs at this point in my disease and fighting as hard as I can to break this downward trend.

Any advice?

 

[NYCLawGirl]

So, I am trying to build back up my endurance after being sick so much this winter/spring. This is one of the few areas that I have a little conflict with my doctor on, because she actually thinks I've been working out too much (she's concerned about calories and my O2 level, which I get). She told me 20-30 minutes 3-4 times a week with a target heartrate in the mid 140s - no higher than 160. The problem is, I'm completely beseiged with stories about people who pulled themselves out of a s****y FEV1 and off the trasplant list through exercise, and I really want to be one of those people.

I CAN work out pretty strenuously. Prior to my doctor telling me the whole "25 minutes 3 times a week at 140" thing, I was working out 45 minutes probably 5 times a week at a pretty good pace, with my heartrate normally in the 150s-160s and up to 180 during peak exercise. Which makes sense to me because my HR has lately been around 100 even just resting. Also, I'm careful about it - I wear my O2 all the way up at 3 liters and monitor my levels pretty religiously throughout the workout, so I do slow down a little when I see my levels dropping or if my HR gets too out of control.

How do you guys balance the exercise/heart thing? I'm not AS worried about the calorie problem (although I am currently fighting really hard to raise my weight, but drinking 6 boost plusses per day has to be making up for the exercise!), but I definitely don't want to be damaging my heart. Right now I'm so frustrated with CF that I'm back to working out everyday - as a compromise I only do real cardio 4 times a week (every other day), but I walk at least a mile on my off days. I am also looking into a trainer to build strength which I'm hoping will help. I just need a little guidance on whether I'm striking the right balance between giving my body the rest it needs at this point in my disease and fighting as hard as I can to break this downward trend.

Any advice?

 

[NYCLawGirl]

So, I am trying to build back up my endurance after being sick so much this winter/spring. This is one of the few areas that I have a little conflict with my doctor on, because she actually thinks I've been working out too much (she's concerned about calories and my O2 level, which I get). She told me 20-30 minutes 3-4 times a week with a target heartrate in the mid 140s - no higher than 160. The problem is, I'm completely beseiged with stories about people who pulled themselves out of a s****y FEV1 and off the trasplant list through exercise, and I really want to be one of those people.
<br />
<br />I CAN work out pretty strenuously. Prior to my doctor telling me the whole "25 minutes 3 times a week at 140" thing, I was working out 45 minutes probably 5 times a week at a pretty good pace, with my heartrate normally in the 150s-160s and up to 180 during peak exercise. Which makes sense to me because my HR has lately been around 100 even just resting. Also, I'm careful about it - I wear my O2 all the way up at 3 liters and monitor my levels pretty religiously throughout the workout, so I do slow down a little when I see my levels dropping or if my HR gets too out of control.
<br />
<br />How do you guys balance the exercise/heart thing? I'm not AS worried about the calorie problem (although I am currently fighting really hard to raise my weight, but drinking 6 boost plusses per day has to be making up for the exercise!), but I definitely don't want to be damaging my heart. Right now I'm so frustrated with CF that I'm back to working out everyday - as a compromise I only do real cardio 4 times a week (every other day), but I walk at least a mile on my off days. I am also looking into a trainer to build strength which I'm hoping will help. I just need a little guidance on whether I'm striking the right balance between giving my body the rest it needs at this point in my disease and fighting as hard as I can to break this downward trend.
<br />
<br />Any advice?

 

[mamaScarlett]

Wow.
I am impressed. And inspired!

Sorry, I can't offer you tips on exercise bc I'm a beginner myself.

But just wanted to say you go girl.

And another thing-you say you are besieged by stories of cfer upping pfts with exercise-I'm not besieged by those stories and I would love to hear them!!! I'm sure there are others here that would too so if you could share that would be really awesome.

 

[mamaScarlett]

Wow.
I am impressed. And inspired!

Sorry, I can't offer you tips on exercise bc I'm a beginner myself.

But just wanted to say you go girl.

And another thing-you say you are besieged by stories of cfer upping pfts with exercise-I'm not besieged by those stories and I would love to hear them!!! I'm sure there are others here that would too so if you could share that would be really awesome.

 

[mamaScarlett]

Wow.
I am impressed. And inspired!

Sorry, I can't offer you tips on exercise bc I'm a beginner myself.

But just wanted to say you go girl.

And another thing-you say you are besieged by stories of cfer upping pfts with exercise-I'm not besieged by those stories and I would love to hear them!!! I'm sure there are others here that would too so if you could share that would be really awesome.

 

[mamaScarlett]

Wow.
I am impressed. And inspired!

Sorry, I can't offer you tips on exercise bc I'm a beginner myself.

But just wanted to say you go girl.

And another thing-you say you are besieged by stories of cfer upping pfts with exercise-I'm not besieged by those stories and I would love to hear them!!! I'm sure there are others here that would too so if you could share that would be really awesome.

 

[mamaScarlett]

Wow.
<br />I am impressed. And inspired!
<br />
<br />Sorry, I can't offer you tips on exercise bc I'm a beginner myself.
<br />
<br />But just wanted to say you go girl.
<br />
<br />And another thing-you say you are besieged by stories of cfer upping pfts with exercise-I'm not besieged by those stories and I would love to hear them!!! I'm sure there are others here that would too so if you could share that would be really awesome.

 

[mamaScarlett]

Forgot to add,
My doc pretty much reccomends 3 workouts a week. They seem to think that running is the best thing for us. But they've never mentioned anything about heart rate.
She brings up overdoing it alot. Thats a concern-not so much to me bc I really lack motivation and energy so I need to push myself.
I don't have any calorie/weight issues. I follow a normal diet. My weight hovers between 120-123.
I'm not doing any shakes. But I eat basically whatever I want without restraint. I don't force myself to eat though.

Not sure if anything here helps at all, just sharing.

you'll always be my appdx buddy! <img src="i/expressions/face-icon-small-tongue.gif" border="0">

 

[mamaScarlett]

Forgot to add,
My doc pretty much reccomends 3 workouts a week. They seem to think that running is the best thing for us. But they've never mentioned anything about heart rate.
She brings up overdoing it alot. Thats a concern-not so much to me bc I really lack motivation and energy so I need to push myself.
I don't have any calorie/weight issues. I follow a normal diet. My weight hovers between 120-123.
I'm not doing any shakes. But I eat basically whatever I want without restraint. I don't force myself to eat though.

Not sure if anything here helps at all, just sharing.

you'll always be my appdx buddy! <img src="i/expressions/face-icon-small-tongue.gif" border="0">

 

[mamaScarlett]

Forgot to add,
My doc pretty much reccomends 3 workouts a week. They seem to think that running is the best thing for us. But they've never mentioned anything about heart rate.
She brings up overdoing it alot. Thats a concern-not so much to me bc I really lack motivation and energy so I need to push myself.
I don't have any calorie/weight issues. I follow a normal diet. My weight hovers between 120-123.
I'm not doing any shakes. But I eat basically whatever I want without restraint. I don't force myself to eat though.

Not sure if anything here helps at all, just sharing.

you'll always be my appdx buddy! <img src="i/expressions/face-icon-small-tongue.gif" border="0">

 

[mamaScarlett]

Forgot to add,
My doc pretty much reccomends 3 workouts a week. They seem to think that running is the best thing for us. But they've never mentioned anything about heart rate.
She brings up overdoing it alot. Thats a concern-not so much to me bc I really lack motivation and energy so I need to push myself.
I don't have any calorie/weight issues. I follow a normal diet. My weight hovers between 120-123.
I'm not doing any shakes. But I eat basically whatever I want without restraint. I don't force myself to eat though.

Not sure if anything here helps at all, just sharing.

you'll always be my appdx buddy! <img src="i/expressions/face-icon-small-tongue.gif" border="0">

 

[mamaScarlett]

Forgot to add,
<br />My doc pretty much reccomends 3 workouts a week. They seem to think that running is the best thing for us. But they've never mentioned anything about heart rate.
<br />She brings up overdoing it alot. Thats a concern-not so much to me bc I really lack motivation and energy so I need to push myself.
<br />I don't have any calorie/weight issues. I follow a normal diet. My weight hovers between 120-123.
<br />I'm not doing any shakes. But I eat basically whatever I want without restraint. I don't force myself to eat though.
<br />
<br />Not sure if anything here helps at all, just sharing.
<br />
<br />you'll always be my appdx buddy! <img src="i/expressions/face-icon-small-tongue.gif" border="0">

 

[NYCLawGirl]

"Besieged" in that context was definitely tongue in cheek - I also love hearing stories about how people get in shape and kick CF's butt. Believe me, I'm not trying to discourage anyone from sharing.

Maybe we should start a CF run between our two clinics? I'd say going from the west village to wash heights would be a pretty impressive workout!

Hope you had a better easter this year Christian <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[NYCLawGirl]

"Besieged" in that context was definitely tongue in cheek - I also love hearing stories about how people get in shape and kick CF's butt. Believe me, I'm not trying to discourage anyone from sharing.

Maybe we should start a CF run between our two clinics? I'd say going from the west village to wash heights would be a pretty impressive workout!

Hope you had a better easter this year Christian <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[NYCLawGirl]

"Besieged" in that context was definitely tongue in cheek - I also love hearing stories about how people get in shape and kick CF's butt. Believe me, I'm not trying to discourage anyone from sharing.

Maybe we should start a CF run between our two clinics? I'd say going from the west village to wash heights would be a pretty impressive workout!

Hope you had a better easter this year Christian <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[NYCLawGirl]

"Besieged" in that context was definitely tongue in cheek - I also love hearing stories about how people get in shape and kick CF's butt. Believe me, I'm not trying to discourage anyone from sharing.

Maybe we should start a CF run between our two clinics? I'd say going from the west village to wash heights would be a pretty impressive workout!

Hope you had a better easter this year Christian <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[NYCLawGirl]

"Besieged" in that context was definitely tongue in cheek - I also love hearing stories about how people get in shape and kick CF's butt. Believe me, I'm not trying to discourage anyone from sharing.
<br />
<br />Maybe we should start a CF run between our two clinics? I'd say going from the west village to wash heights would be a pretty impressive workout!
<br />
<br />Hope you had a better easter this year Christian <img src="i/expressions/face-icon-small-wink.gif" border="0">