Exercise

[beckysue]

I'm new to the site and am hoping I can get some advice/ideas.

Exercise is the hardest part of CF for me. I loathe exercise and am very hit and miss with it even though I know that is the best thing I can do for myself. I have back problems (an old back injury from 12 years of gymnastics), shin splints, and I have to wear 02 so I am very limited in what I can do.

I wanted to find out how other CFers do it. How do you exercise? How often do you exercise? How do you get yourself to do it on days when you're exhausted (which is nearly every day for me)?

Thanks for any advice and/or ideas you can offer!

 

[beckysue]

I'm new to the site and am hoping I can get some advice/ideas.

Exercise is the hardest part of CF for me. I loathe exercise and am very hit and miss with it even though I know that is the best thing I can do for myself. I have back problems (an old back injury from 12 years of gymnastics), shin splints, and I have to wear 02 so I am very limited in what I can do.

I wanted to find out how other CFers do it. How do you exercise? How often do you exercise? How do you get yourself to do it on days when you're exhausted (which is nearly every day for me)?

Thanks for any advice and/or ideas you can offer!

 

[beckysue]

I'm new to the site and am hoping I can get some advice/ideas.

Exercise is the hardest part of CF for me. I loathe exercise and am very hit and miss with it even though I know that is the best thing I can do for myself. I have back problems (an old back injury from 12 years of gymnastics), shin splints, and I have to wear 02 so I am very limited in what I can do.

I wanted to find out how other CFers do it. How do you exercise? How often do you exercise? How do you get yourself to do it on days when you're exhausted (which is nearly every day for me)?

Thanks for any advice and/or ideas you can offer!

 

[beckysue]

I'm new to the site and am hoping I can get some advice/ideas.

Exercise is the hardest part of CF for me. I loathe exercise and am very hit and miss with it even though I know that is the best thing I can do for myself. I have back problems (an old back injury from 12 years of gymnastics), shin splints, and I have to wear 02 so I am very limited in what I can do.

I wanted to find out how other CFers do it. How do you exercise? How often do you exercise? How do you get yourself to do it on days when you're exhausted (which is nearly every day for me)?

Thanks for any advice and/or ideas you can offer!

 

[beckysue]

I'm new to the site and am hoping I can get some advice/ideas.
<br />
<br />Exercise is the hardest part of CF for me. I loathe exercise and am very hit and miss with it even though I know that is the best thing I can do for myself. I have back problems (an old back injury from 12 years of gymnastics), shin splints, and I have to wear 02 so I am very limited in what I can do.
<br />
<br />I wanted to find out how other CFers do it. How do you exercise? How often do you exercise? How do you get yourself to do it on days when you're exhausted (which is nearly every day for me)?
<br />
<br />Thanks for any advice and/or ideas you can offer!

 

[lightNlife]

Hi Beckysue, welcome to the group. Exercising can be tough for CFers, especially when they, like you, have oxygen requirements and are tired a lot of the time.

I used to think that exercising meant I needed to be running/jumping/bending/pedaling on some sort of machine at a vigorous pace. That's simply not true. My goals when I exercise are to 1) increase stamina 2) build muscle 3)improve overall lung function. You don't have to be sweating bullets in order to have a beneficial workout. One of the things I do every time I'm at the gym is use one of those big inflatable balls. I work with a personal trainer who has helped me develop some moves with that ball. Next time I'm at the gym I'll see if I can get him to take some pictures of me in various positions so that you can see what I do. It doesn't have to be a high impact activity in order for it to make a difference.

As to the exhaustion you're experiencing--are you getting the right amount of O2? Do you desat when you exercise or move around? If so then maybe pilates would be a better fit for you. I hope that you'll be inspired by some of the other responses I'm sure you'll get on this topic.

 

[lightNlife]

Hi Beckysue, welcome to the group. Exercising can be tough for CFers, especially when they, like you, have oxygen requirements and are tired a lot of the time.

I used to think that exercising meant I needed to be running/jumping/bending/pedaling on some sort of machine at a vigorous pace. That's simply not true. My goals when I exercise are to 1) increase stamina 2) build muscle 3)improve overall lung function. You don't have to be sweating bullets in order to have a beneficial workout. One of the things I do every time I'm at the gym is use one of those big inflatable balls. I work with a personal trainer who has helped me develop some moves with that ball. Next time I'm at the gym I'll see if I can get him to take some pictures of me in various positions so that you can see what I do. It doesn't have to be a high impact activity in order for it to make a difference.

As to the exhaustion you're experiencing--are you getting the right amount of O2? Do you desat when you exercise or move around? If so then maybe pilates would be a better fit for you. I hope that you'll be inspired by some of the other responses I'm sure you'll get on this topic.

 

[lightNlife]

Hi Beckysue, welcome to the group. Exercising can be tough for CFers, especially when they, like you, have oxygen requirements and are tired a lot of the time.

I used to think that exercising meant I needed to be running/jumping/bending/pedaling on some sort of machine at a vigorous pace. That's simply not true. My goals when I exercise are to 1) increase stamina 2) build muscle 3)improve overall lung function. You don't have to be sweating bullets in order to have a beneficial workout. One of the things I do every time I'm at the gym is use one of those big inflatable balls. I work with a personal trainer who has helped me develop some moves with that ball. Next time I'm at the gym I'll see if I can get him to take some pictures of me in various positions so that you can see what I do. It doesn't have to be a high impact activity in order for it to make a difference.

As to the exhaustion you're experiencing--are you getting the right amount of O2? Do you desat when you exercise or move around? If so then maybe pilates would be a better fit for you. I hope that you'll be inspired by some of the other responses I'm sure you'll get on this topic.

 

[lightNlife]

Hi Beckysue, welcome to the group. Exercising can be tough for CFers, especially when they, like you, have oxygen requirements and are tired a lot of the time.

I used to think that exercising meant I needed to be running/jumping/bending/pedaling on some sort of machine at a vigorous pace. That's simply not true. My goals when I exercise are to 1) increase stamina 2) build muscle 3)improve overall lung function. You don't have to be sweating bullets in order to have a beneficial workout. One of the things I do every time I'm at the gym is use one of those big inflatable balls. I work with a personal trainer who has helped me develop some moves with that ball. Next time I'm at the gym I'll see if I can get him to take some pictures of me in various positions so that you can see what I do. It doesn't have to be a high impact activity in order for it to make a difference.

As to the exhaustion you're experiencing--are you getting the right amount of O2? Do you desat when you exercise or move around? If so then maybe pilates would be a better fit for you. I hope that you'll be inspired by some of the other responses I'm sure you'll get on this topic.

 

[lightNlife]

Hi Beckysue, welcome to the group. Exercising can be tough for CFers, especially when they, like you, have oxygen requirements and are tired a lot of the time.
<br />
<br />I used to think that exercising meant I needed to be running/jumping/bending/pedaling on some sort of machine at a vigorous pace. That's simply not true. My goals when I exercise are to 1) increase stamina 2) build muscle 3)improve overall lung function. You don't have to be sweating bullets in order to have a beneficial workout. One of the things I do every time I'm at the gym is use one of those big inflatable balls. I work with a personal trainer who has helped me develop some moves with that ball. Next time I'm at the gym I'll see if I can get him to take some pictures of me in various positions so that you can see what I do. It doesn't have to be a high impact activity in order for it to make a difference.
<br />
<br />As to the exhaustion you're experiencing--are you getting the right amount of O2? Do you desat when you exercise or move around? If so then maybe pilates would be a better fit for you. I hope that you'll be inspired by some of the other responses I'm sure you'll get on this topic.
<br />
<br />

 

[MicheleGazelle]

For most of my life, I have found that walking is the most sustainable form of exercise for me. It doesn't overstress my body the way jogging, biking, or swimming does. It's gentle. I can do as much or as little as my body can take.

 

[MicheleGazelle]

For most of my life, I have found that walking is the most sustainable form of exercise for me. It doesn't overstress my body the way jogging, biking, or swimming does. It's gentle. I can do as much or as little as my body can take.

 

[MicheleGazelle]

For most of my life, I have found that walking is the most sustainable form of exercise for me. It doesn't overstress my body the way jogging, biking, or swimming does. It's gentle. I can do as much or as little as my body can take.

 

[MicheleGazelle]

For most of my life, I have found that walking is the most sustainable form of exercise for me. It doesn't overstress my body the way jogging, biking, or swimming does. It's gentle. I can do as much or as little as my body can take.

 

[MicheleGazelle]

For most of my life, I have found that walking is the most sustainable form of exercise for me. It doesn't overstress my body the way jogging, biking, or swimming does. It's gentle. I can do as much or as little as my body can take.

 

[Lamp]

In the past I've tried to do about 3-4 days a week of cardio. This has proven to be really hard for me all the sudden. I'm tired alot. So I kinda keep goals in mind to motivate me. ie. having or adopting kids, and keeping a lung transplant far at bay!! Lately I have been doing the Jillian Michaels 30 day shred tape, wow!!! This is kicking my butt! I can't even get past level one, but thats good, it will last me awhile! lol I like the fact that I can be at home and do it and pause it for coughing fits and such. Although I don't know that it has the same overall effect as running for 20 minutes does. When I ran I would walk for 5 minutes at about 3.5 mph and run for 15 @ 4-4.5 mph then walk another 5 minutes and try to run another ten at the same 4-4.5 and then walk for cool down. Like I said its kept me pretty healthy all these years and I hope to build up the stamina to do it again. =) In the meantime I'm being hospitalized on March 5th so hopefully when I get out I'll be feeling more up to par.
I hope this helps some....

 

[Lamp]

In the past I've tried to do about 3-4 days a week of cardio. This has proven to be really hard for me all the sudden. I'm tired alot. So I kinda keep goals in mind to motivate me. ie. having or adopting kids, and keeping a lung transplant far at bay!! Lately I have been doing the Jillian Michaels 30 day shred tape, wow!!! This is kicking my butt! I can't even get past level one, but thats good, it will last me awhile! lol I like the fact that I can be at home and do it and pause it for coughing fits and such. Although I don't know that it has the same overall effect as running for 20 minutes does. When I ran I would walk for 5 minutes at about 3.5 mph and run for 15 @ 4-4.5 mph then walk another 5 minutes and try to run another ten at the same 4-4.5 and then walk for cool down. Like I said its kept me pretty healthy all these years and I hope to build up the stamina to do it again. =) In the meantime I'm being hospitalized on March 5th so hopefully when I get out I'll be feeling more up to par.
I hope this helps some....

 

[Lamp]

In the past I've tried to do about 3-4 days a week of cardio. This has proven to be really hard for me all the sudden. I'm tired alot. So I kinda keep goals in mind to motivate me. ie. having or adopting kids, and keeping a lung transplant far at bay!! Lately I have been doing the Jillian Michaels 30 day shred tape, wow!!! This is kicking my butt! I can't even get past level one, but thats good, it will last me awhile! lol I like the fact that I can be at home and do it and pause it for coughing fits and such. Although I don't know that it has the same overall effect as running for 20 minutes does. When I ran I would walk for 5 minutes at about 3.5 mph and run for 15 @ 4-4.5 mph then walk another 5 minutes and try to run another ten at the same 4-4.5 and then walk for cool down. Like I said its kept me pretty healthy all these years and I hope to build up the stamina to do it again. =) In the meantime I'm being hospitalized on March 5th so hopefully when I get out I'll be feeling more up to par.
I hope this helps some....

 

[Lamp]

In the past I've tried to do about 3-4 days a week of cardio. This has proven to be really hard for me all the sudden. I'm tired alot. So I kinda keep goals in mind to motivate me. ie. having or adopting kids, and keeping a lung transplant far at bay!! Lately I have been doing the Jillian Michaels 30 day shred tape, wow!!! This is kicking my butt! I can't even get past level one, but thats good, it will last me awhile! lol I like the fact that I can be at home and do it and pause it for coughing fits and such. Although I don't know that it has the same overall effect as running for 20 minutes does. When I ran I would walk for 5 minutes at about 3.5 mph and run for 15 @ 4-4.5 mph then walk another 5 minutes and try to run another ten at the same 4-4.5 and then walk for cool down. Like I said its kept me pretty healthy all these years and I hope to build up the stamina to do it again. =) In the meantime I'm being hospitalized on March 5th so hopefully when I get out I'll be feeling more up to par.
I hope this helps some....

 

[Lamp]

In the past I've tried to do about 3-4 days a week of cardio. This has proven to be really hard for me all the sudden. I'm tired alot. So I kinda keep goals in mind to motivate me. ie. having or adopting kids, and keeping a lung transplant far at bay!! Lately I have been doing the Jillian Michaels 30 day shred tape, wow!!! This is kicking my butt! I can't even get past level one, but thats good, it will last me awhile! lol I like the fact that I can be at home and do it and pause it for coughing fits and such. Although I don't know that it has the same overall effect as running for 20 minutes does. When I ran I would walk for 5 minutes at about 3.5 mph and run for 15 @ 4-4.5 mph then walk another 5 minutes and try to run another ten at the same 4-4.5 and then walk for cool down. Like I said its kept me pretty healthy all these years and I hope to build up the stamina to do it again. =) In the meantime I'm being hospitalized on March 5th so hopefully when I get out I'll be feeling more up to par.
<br />I hope this helps some....