Exposure?

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Mommy2Zeke

Guest
My son was diagnosed with CF just last month, when he was 2 weeks old. Since then, in educating myself about CF and talking to my son's doctor I've come to realize I might have CF. We are going to start testing sometime in May. What worries me is that since my last bout with pneumonia (last year) I've had a permanent rattle in my left lung. But I've noticed in the past two weeks it has gotten worse. I normally notice it most when I first wake up in the morning. Now I'm feeling it throughout the day and especially when working out. Wondering if I should go ahead and have my son's doctor culture me to make sure I'm not exposing my son to something???

I have no other pneumonia symptoms- (I don't run fever with pneumonia anyway)... Thoughts?
 
M

Mommy2Zeke

Guest
My son was diagnosed with CF just last month, when he was 2 weeks old. Since then, in educating myself about CF and talking to my son's doctor I've come to realize I might have CF. We are going to start testing sometime in May. What worries me is that since my last bout with pneumonia (last year) I've had a permanent rattle in my left lung. But I've noticed in the past two weeks it has gotten worse. I normally notice it most when I first wake up in the morning. Now I'm feeling it throughout the day and especially when working out. Wondering if I should go ahead and have my son's doctor culture me to make sure I'm not exposing my son to something???

I have no other pneumonia symptoms- (I don't run fever with pneumonia anyway)... Thoughts?
 
M

Mommy2Zeke

Guest
My son was diagnosed with CF just last month, when he was 2 weeks old. Since then, in educating myself about CF and talking to my son's doctor I've come to realize I might have CF. We are going to start testing sometime in May. What worries me is that since my last bout with pneumonia (last year) I've had a permanent rattle in my left lung. But I've noticed in the past two weeks it has gotten worse. I normally notice it most when I first wake up in the morning. Now I'm feeling it throughout the day and especially when working out. Wondering if I should go ahead and have my son's doctor culture me to make sure I'm not exposing my son to something???

I have no other pneumonia symptoms- (I don't run fever with pneumonia anyway)... Thoughts?
 
M

Mommy2Zeke

Guest
My son was diagnosed with CF just last month, when he was 2 weeks old. Since then, in educating myself about CF and talking to my son's doctor I've come to realize I might have CF. We are going to start testing sometime in May. What worries me is that since my last bout with pneumonia (last year) I've had a permanent rattle in my left lung. But I've noticed in the past two weeks it has gotten worse. I normally notice it most when I first wake up in the morning. Now I'm feeling it throughout the day and especially when working out. Wondering if I should go ahead and have my son's doctor culture me to make sure I'm not exposing my son to something???

I have no other pneumonia symptoms- (I don't run fever with pneumonia anyway)... Thoughts?
 
M

Mommy2Zeke

Guest
My son was diagnosed with CF just last month, when he was 2 weeks old. Since then, in educating myself about CF and talking to my son's doctor I've come to realize I might have CF. We are going to start testing sometime in May. What worries me is that since my last bout with pneumonia (last year) I've had a permanent rattle in my left lung. But I've noticed in the past two weeks it has gotten worse. I normally notice it most when I first wake up in the morning. Now I'm feeling it throughout the day and especially when working out. Wondering if I should go ahead and have my son's doctor culture me to make sure I'm not exposing my son to something???
<br />
<br />I have no other pneumonia symptoms- (I don't run fever with pneumonia anyway)... Thoughts?
 
M

mom2lillian

New member
if you are having that rattle you should be evaluated for treatment asap. As for exposing your son to something I would not worry about that unless you have a flu/virus but what you are describing doesnt sound like that. As for if you culture any bugs you will not be able to keep your son from it. In sibling sets with CF sometimes they will culture the same bugs and other times not, there is no way to avoid transmission of lung bugs whne living in the same house.

I am sorry you are having to go through this during an already stressful time. I was diagnosed as an adult and have a 2 year old (though I was dx before having her) so feel free to PM me any time. Also you may want to check out the thread that is up right now called 'is it cf' there is alot interesting perspectives there.
 
M

mom2lillian

New member
if you are having that rattle you should be evaluated for treatment asap. As for exposing your son to something I would not worry about that unless you have a flu/virus but what you are describing doesnt sound like that. As for if you culture any bugs you will not be able to keep your son from it. In sibling sets with CF sometimes they will culture the same bugs and other times not, there is no way to avoid transmission of lung bugs whne living in the same house.

I am sorry you are having to go through this during an already stressful time. I was diagnosed as an adult and have a 2 year old (though I was dx before having her) so feel free to PM me any time. Also you may want to check out the thread that is up right now called 'is it cf' there is alot interesting perspectives there.
 
M

mom2lillian

New member
if you are having that rattle you should be evaluated for treatment asap. As for exposing your son to something I would not worry about that unless you have a flu/virus but what you are describing doesnt sound like that. As for if you culture any bugs you will not be able to keep your son from it. In sibling sets with CF sometimes they will culture the same bugs and other times not, there is no way to avoid transmission of lung bugs whne living in the same house.

I am sorry you are having to go through this during an already stressful time. I was diagnosed as an adult and have a 2 year old (though I was dx before having her) so feel free to PM me any time. Also you may want to check out the thread that is up right now called 'is it cf' there is alot interesting perspectives there.
 
M

mom2lillian

New member
if you are having that rattle you should be evaluated for treatment asap. As for exposing your son to something I would not worry about that unless you have a flu/virus but what you are describing doesnt sound like that. As for if you culture any bugs you will not be able to keep your son from it. In sibling sets with CF sometimes they will culture the same bugs and other times not, there is no way to avoid transmission of lung bugs whne living in the same house.

I am sorry you are having to go through this during an already stressful time. I was diagnosed as an adult and have a 2 year old (though I was dx before having her) so feel free to PM me any time. Also you may want to check out the thread that is up right now called 'is it cf' there is alot interesting perspectives there.
 
M

mom2lillian

New member
if you are having that rattle you should be evaluated for treatment asap. As for exposing your son to something I would not worry about that unless you have a flu/virus but what you are describing doesnt sound like that. As for if you culture any bugs you will not be able to keep your son from it. In sibling sets with CF sometimes they will culture the same bugs and other times not, there is no way to avoid transmission of lung bugs whne living in the same house.
<br />
<br />I am sorry you are having to go through this during an already stressful time. I was diagnosed as an adult and have a 2 year old (though I was dx before having her) so feel free to PM me any time. Also you may want to check out the thread that is up right now called 'is it cf' there is alot interesting perspectives there.
 
T

Tumbleweed

New member
If it were me I would just wait to get tested for CF. You already suspect you might have CF. I agree with Nicole because whether you do culture something or not you can't keep your son away from you forever. There is some debate about this, but generally doctors say that when you culture something once it is there, it is always there. You could not be quarantined from your baby son forever- he needs his mommy! I have a sister with CF. We don't always share the same bugs, but we see each other and hug and everything because it's worth it to us. Quality of life vs. quantity. I don't think I could live with not going to my sisters house and her coming to mine. I don't share drinks or toothbrushes with her etc. but I don't ostracize her from my life either. That is the way I view things anyway. Hope it clears up! And I hope you find out you don't have CF!
 
T

Tumbleweed

New member
If it were me I would just wait to get tested for CF. You already suspect you might have CF. I agree with Nicole because whether you do culture something or not you can't keep your son away from you forever. There is some debate about this, but generally doctors say that when you culture something once it is there, it is always there. You could not be quarantined from your baby son forever- he needs his mommy! I have a sister with CF. We don't always share the same bugs, but we see each other and hug and everything because it's worth it to us. Quality of life vs. quantity. I don't think I could live with not going to my sisters house and her coming to mine. I don't share drinks or toothbrushes with her etc. but I don't ostracize her from my life either. That is the way I view things anyway. Hope it clears up! And I hope you find out you don't have CF!
 
T

Tumbleweed

New member
If it were me I would just wait to get tested for CF. You already suspect you might have CF. I agree with Nicole because whether you do culture something or not you can't keep your son away from you forever. There is some debate about this, but generally doctors say that when you culture something once it is there, it is always there. You could not be quarantined from your baby son forever- he needs his mommy! I have a sister with CF. We don't always share the same bugs, but we see each other and hug and everything because it's worth it to us. Quality of life vs. quantity. I don't think I could live with not going to my sisters house and her coming to mine. I don't share drinks or toothbrushes with her etc. but I don't ostracize her from my life either. That is the way I view things anyway. Hope it clears up! And I hope you find out you don't have CF!
 
T

Tumbleweed

New member
If it were me I would just wait to get tested for CF. You already suspect you might have CF. I agree with Nicole because whether you do culture something or not you can't keep your son away from you forever. There is some debate about this, but generally doctors say that when you culture something once it is there, it is always there. You could not be quarantined from your baby son forever- he needs his mommy! I have a sister with CF. We don't always share the same bugs, but we see each other and hug and everything because it's worth it to us. Quality of life vs. quantity. I don't think I could live with not going to my sisters house and her coming to mine. I don't share drinks or toothbrushes with her etc. but I don't ostracize her from my life either. That is the way I view things anyway. Hope it clears up! And I hope you find out you don't have CF!
 
T

Tumbleweed

New member
If it were me I would just wait to get tested for CF. You already suspect you might have CF. I agree with Nicole because whether you do culture something or not you can't keep your son away from you forever. There is some debate about this, but generally doctors say that when you culture something once it is there, it is always there. You could not be quarantined from your baby son forever- he needs his mommy! I have a sister with CF. We don't always share the same bugs, but we see each other and hug and everything because it's worth it to us. Quality of life vs. quantity. I don't think I could live with not going to my sisters house and her coming to mine. I don't share drinks or toothbrushes with her etc. but I don't ostracize her from my life either. That is the way I view things anyway. Hope it clears up! And I hope you find out you don't have CF!
 
M

Melissa75

Administrator
I hope this isn't redundant to other conversations/threads, but here's what I think. You need a high resolution CT scan, which may identify bronchiectasis: areas damaged by infection/inflammation that collect mucus. Then you need CPT, either manual or a percussor or a Vest to help you shake and cough out the mucus. You may also need an inhaler with a steriod and bronchodilator to help with this. W/o the CF diagnosis, getting coverage for a Vest is very hard.

I have a lower left lobe rattle most of the time, but do not currently culture anything. When it gets really plugged up, I get fatigue and/or pleurisy. When I get sick, it can become pneumonia again since the gunk is ready to rot. CPT and heavy breathing exercise and having a nice run of no colds and being far from my period in the month can make the rattle disappear for a few weeks.
__________
Melissa, 34, bronchiectasis (no CF)
 
M

Melissa75

Administrator
I hope this isn't redundant to other conversations/threads, but here's what I think. You need a high resolution CT scan, which may identify bronchiectasis: areas damaged by infection/inflammation that collect mucus. Then you need CPT, either manual or a percussor or a Vest to help you shake and cough out the mucus. You may also need an inhaler with a steriod and bronchodilator to help with this. W/o the CF diagnosis, getting coverage for a Vest is very hard.

I have a lower left lobe rattle most of the time, but do not currently culture anything. When it gets really plugged up, I get fatigue and/or pleurisy. When I get sick, it can become pneumonia again since the gunk is ready to rot. CPT and heavy breathing exercise and having a nice run of no colds and being far from my period in the month can make the rattle disappear for a few weeks.
__________
Melissa, 34, bronchiectasis (no CF)
 
M

Melissa75

Administrator
I hope this isn't redundant to other conversations/threads, but here's what I think. You need a high resolution CT scan, which may identify bronchiectasis: areas damaged by infection/inflammation that collect mucus. Then you need CPT, either manual or a percussor or a Vest to help you shake and cough out the mucus. You may also need an inhaler with a steriod and bronchodilator to help with this. W/o the CF diagnosis, getting coverage for a Vest is very hard.

I have a lower left lobe rattle most of the time, but do not currently culture anything. When it gets really plugged up, I get fatigue and/or pleurisy. When I get sick, it can become pneumonia again since the gunk is ready to rot. CPT and heavy breathing exercise and having a nice run of no colds and being far from my period in the month can make the rattle disappear for a few weeks.
__________
Melissa, 34, bronchiectasis (no CF)
 
M

Melissa75

Administrator
I hope this isn't redundant to other conversations/threads, but here's what I think. You need a high resolution CT scan, which may identify bronchiectasis: areas damaged by infection/inflammation that collect mucus. Then you need CPT, either manual or a percussor or a Vest to help you shake and cough out the mucus. You may also need an inhaler with a steriod and bronchodilator to help with this. W/o the CF diagnosis, getting coverage for a Vest is very hard.

I have a lower left lobe rattle most of the time, but do not currently culture anything. When it gets really plugged up, I get fatigue and/or pleurisy. When I get sick, it can become pneumonia again since the gunk is ready to rot. CPT and heavy breathing exercise and having a nice run of no colds and being far from my period in the month can make the rattle disappear for a few weeks.
__________
Melissa, 34, bronchiectasis (no CF)
 
M

Melissa75

Administrator
I hope this isn't redundant to other conversations/threads, but here's what I think. You need a high resolution CT scan, which may identify bronchiectasis: areas damaged by infection/inflammation that collect mucus. Then you need CPT, either manual or a percussor or a Vest to help you shake and cough out the mucus. You may also need an inhaler with a steriod and bronchodilator to help with this. W/o the CF diagnosis, getting coverage for a Vest is very hard.
<br />
<br />I have a lower left lobe rattle most of the time, but do not currently culture anything. When it gets really plugged up, I get fatigue and/or pleurisy. When I get sick, it can become pneumonia again since the gunk is ready to rot. CPT and heavy breathing exercise and having a nice run of no colds and being far from my period in the month can make the rattle disappear for a few weeks.
<br />__________
<br />Melissa, 34, bronchiectasis (no CF)
 
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