Extraordinary Expenses

SaltyAndSweet · Mar 5, 2008

Hi everyone!

I am trying to compile an extensive list of the extraordinary expenses that we with CF (and/or CFRD) incur. For some reason I am having a hard time creating this list. There are the obvious things, like more medications (more co-pays), higher grocery bills, more trips to the doctor (more gas for the car)... but what else?

I would love to compile the list to help those without CF understand how quickly and how high our bills add up.

I appreciate your thoughts and comments!!
~aspen

SaltyAndSweet · Mar 5, 2008

Hi everyone!

I am trying to compile an extensive list of the extraordinary expenses that we with CF (and/or CFRD) incur. For some reason I am having a hard time creating this list. There are the obvious things, like more medications (more co-pays), higher grocery bills, more trips to the doctor (more gas for the car)... but what else?

I would love to compile the list to help those without CF understand how quickly and how high our bills add up.

I appreciate your thoughts and comments!!
~aspen

SaltyAndSweet · Mar 5, 2008

Hi everyone!

I am trying to compile an extensive list of the extraordinary expenses that we with CF (and/or CFRD) incur. For some reason I am having a hard time creating this list. There are the obvious things, like more medications (more co-pays), higher grocery bills, more trips to the doctor (more gas for the car)... but what else?

I would love to compile the list to help those without CF understand how quickly and how high our bills add up.

I appreciate your thoughts and comments!!
~aspen

SaltyAndSweet · Mar 5, 2008

Hi everyone!

I am trying to compile an extensive list of the extraordinary expenses that we with CF (and/or CFRD) incur. For some reason I am having a hard time creating this list. There are the obvious things, like more medications (more co-pays), higher grocery bills, more trips to the doctor (more gas for the car)... but what else?

I would love to compile the list to help those without CF understand how quickly and how high our bills add up.

I appreciate your thoughts and comments!!
~aspen

SaltyAndSweet · Mar 5, 2008

Hi everyone!
 
 I am trying to compile an extensive list of the extraordinary expenses that we with CF (and/or CFRD) incur. For some reason I am having a hard time creating this list. There are the obvious things, like more medications (more co-pays), higher grocery bills, more trips to the doctor (more gas for the car)... but what else?
 
 I would love to compile the list to help those without CF understand how quickly and how high our bills add up.
 
 I appreciate your thoughts and comments!!
 ~aspen

DarbSkull · Mar 5, 2008

*Excessive amounts of Gatorade. 
*Potential for loss of income from time off work due to illness. 
*You didn't specifically mention doctor visit copays and hospital expenses which can easily get out-of-hand with an extended stay. 
*When I was self-employed my health insurance rated us up the legal maximum every 6 months like clockwork. By the time I got a job with another company our health insurance was well over $1,000 a month for two people. 
*The real killer is how unbelievably expensive the medications are. Isn't Tobi $2,200 for a 28-day supply? The last anti-fungal I was on was $300 AFTER my insurance paid 80% - For 30 pills! My enzymes are $450 for a one-month supply AFTER my insurance pays. Without various forms of assistance the medicines would be unbearably expensive, and even with help they are quite a burden.

DarbSkull · Mar 5, 2008

*Excessive amounts of Gatorade. 
*Potential for loss of income from time off work due to illness. 
*You didn't specifically mention doctor visit copays and hospital expenses which can easily get out-of-hand with an extended stay. 
*When I was self-employed my health insurance rated us up the legal maximum every 6 months like clockwork. By the time I got a job with another company our health insurance was well over $1,000 a month for two people. 
*The real killer is how unbelievably expensive the medications are. Isn't Tobi $2,200 for a 28-day supply? The last anti-fungal I was on was $300 AFTER my insurance paid 80% - For 30 pills! My enzymes are $450 for a one-month supply AFTER my insurance pays. Without various forms of assistance the medicines would be unbearably expensive, and even with help they are quite a burden.

DarbSkull · Mar 5, 2008

*Excessive amounts of Gatorade. 
*Potential for loss of income from time off work due to illness. 
*You didn't specifically mention doctor visit copays and hospital expenses which can easily get out-of-hand with an extended stay. 
*When I was self-employed my health insurance rated us up the legal maximum every 6 months like clockwork. By the time I got a job with another company our health insurance was well over $1,000 a month for two people. 
*The real killer is how unbelievably expensive the medications are. Isn't Tobi $2,200 for a 28-day supply? The last anti-fungal I was on was $300 AFTER my insurance paid 80% - For 30 pills! My enzymes are $450 for a one-month supply AFTER my insurance pays. Without various forms of assistance the medicines would be unbearably expensive, and even with help they are quite a burden.

DarbSkull · Mar 5, 2008

*Excessive amounts of Gatorade. 
*Potential for loss of income from time off work due to illness. 
*You didn't specifically mention doctor visit copays and hospital expenses which can easily get out-of-hand with an extended stay. 
*When I was self-employed my health insurance rated us up the legal maximum every 6 months like clockwork. By the time I got a job with another company our health insurance was well over $1,000 a month for two people. 
*The real killer is how unbelievably expensive the medications are. Isn't Tobi $2,200 for a 28-day supply? The last anti-fungal I was on was $300 AFTER my insurance paid 80% - For 30 pills! My enzymes are $450 for a one-month supply AFTER my insurance pays. Without various forms of assistance the medicines would be unbearably expensive, and even with help they are quite a burden.

DarbSkull · Mar 5, 2008

*Excessive amounts of Gatorade. 
*Potential for loss of income from time off work due to illness. 
*You didn't specifically mention doctor visit copays and hospital expenses which can easily get out-of-hand with an extended stay. 
*When I was self-employed my health insurance rated us up the legal maximum every 6 months like clockwork. By the time I got a job with another company our health insurance was well over $1,000 a month for two people. 
*The real killer is how unbelievably expensive the medications are. Isn't Tobi $2,200 for a 28-day supply? The last anti-fungal I was on was $300 AFTER my insurance paid 80% - For 30 pills! My enzymes are $450 for a one-month supply AFTER my insurance pays. Without various forms of assistance the medicines would be unbearably expensive, and even with help they are quite a burden.

Rebjane · Mar 5, 2008