FAILED... (UPDATED)

sue35

New member
I will<img src="i/expressions/face-icon-small-smile.gif" border="0">

Can't wait to drink that FABULOUS drink (ick!)
 

sue35

New member
I will<img src="i/expressions/face-icon-small-smile.gif" border="0">

Can't wait to drink that FABULOUS drink (ick!)
 

ladybug

New member
Hmmm.... OK, I asked my CF doc this week if me being around 160-180 is bad 2 hours post meals and she said no, that's borderline normal. I also have read that a fasting glucose should be between 75-120. So, apparently the lab you went to is telling you something different. I think a diabetes doc who has worked specifically with CFRD is really the only person we can trust (aside from our CF docs) when getting info. on what is normal in CF patients. JMO though. You would not believe the variety of information (mostly incorrect) I get when I tell people I have diabetes.... They always think they know what I should and shouldn't do with high and low blood sugars cause they're basing it on "normal person" diabetes. CFRD does not follow the same rules as a type 1 or 2 diabetic. Its completely different in most regards.

Also, I wanted to mention a comment my CF doc made when looking at my glucose tolerance test from a few years ago. My 2 hour post was around 213 and she said that was "well, kinda borderline"... So, even though I do have CFRD and do take insulin, she said maybe, with those "low" numbers, I may not need the insulin very much or be better off without it. Weird that a glucose 2 hours post that is as low as yours would trigger alarm in the first place. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Either way, good luck everyone on their OGTT!!
 

ladybug

New member
Hmmm.... OK, I asked my CF doc this week if me being around 160-180 is bad 2 hours post meals and she said no, that's borderline normal. I also have read that a fasting glucose should be between 75-120. So, apparently the lab you went to is telling you something different. I think a diabetes doc who has worked specifically with CFRD is really the only person we can trust (aside from our CF docs) when getting info. on what is normal in CF patients. JMO though. You would not believe the variety of information (mostly incorrect) I get when I tell people I have diabetes.... They always think they know what I should and shouldn't do with high and low blood sugars cause they're basing it on "normal person" diabetes. CFRD does not follow the same rules as a type 1 or 2 diabetic. Its completely different in most regards.

Also, I wanted to mention a comment my CF doc made when looking at my glucose tolerance test from a few years ago. My 2 hour post was around 213 and she said that was "well, kinda borderline"... So, even though I do have CFRD and do take insulin, she said maybe, with those "low" numbers, I may not need the insulin very much or be better off without it. Weird that a glucose 2 hours post that is as low as yours would trigger alarm in the first place. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Either way, good luck everyone on their OGTT!!
 

ladybug

New member
Hmmm.... OK, I asked my CF doc this week if me being around 160-180 is bad 2 hours post meals and she said no, that's borderline normal. I also have read that a fasting glucose should be between 75-120. So, apparently the lab you went to is telling you something different. I think a diabetes doc who has worked specifically with CFRD is really the only person we can trust (aside from our CF docs) when getting info. on what is normal in CF patients. JMO though. You would not believe the variety of information (mostly incorrect) I get when I tell people I have diabetes.... They always think they know what I should and shouldn't do with high and low blood sugars cause they're basing it on "normal person" diabetes. CFRD does not follow the same rules as a type 1 or 2 diabetic. Its completely different in most regards.

Also, I wanted to mention a comment my CF doc made when looking at my glucose tolerance test from a few years ago. My 2 hour post was around 213 and she said that was "well, kinda borderline"... So, even though I do have CFRD and do take insulin, she said maybe, with those "low" numbers, I may not need the insulin very much or be better off without it. Weird that a glucose 2 hours post that is as low as yours would trigger alarm in the first place. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Either way, good luck everyone on their OGTT!!
 

ladybug

New member
Ok, this is from the National Institute of Health and here is what they say:

Normal Values

Normal blood values for a 75-gram oral glucose tolerance test used to check for type 2 diabetes:

Fasting: 60 to 100 mg/dL
1 hour: less than 200 mg/dL
2 hours: less than 140 mg/dL. Between 140-200 mg/dL is considered impaired glucose tolerance or pre-diabetes. This group is at increased risk for developing diabetes. Greater than 200 mg/dL is diagnostic of diabetes mellitus



** So, if the numbers mean the same for CFRD, then I have no idea why my doc would say the things I mentioned in my prior post. Perhaps it is because I am just inside the 200 mark. Unless these values are different for CFRD.

I am very shocked that 60 is a normal fasting level... that seems extremely low to me (I get faint when I get that low during the day and cannot imagine waking from that low number and even being able to get out of bed!) It also says that fasting should only get up to 100, which is much lower than I thought.
 

ladybug

New member
Ok, this is from the National Institute of Health and here is what they say:

Normal Values

Normal blood values for a 75-gram oral glucose tolerance test used to check for type 2 diabetes:

Fasting: 60 to 100 mg/dL
1 hour: less than 200 mg/dL
2 hours: less than 140 mg/dL. Between 140-200 mg/dL is considered impaired glucose tolerance or pre-diabetes. This group is at increased risk for developing diabetes. Greater than 200 mg/dL is diagnostic of diabetes mellitus



** So, if the numbers mean the same for CFRD, then I have no idea why my doc would say the things I mentioned in my prior post. Perhaps it is because I am just inside the 200 mark. Unless these values are different for CFRD.

I am very shocked that 60 is a normal fasting level... that seems extremely low to me (I get faint when I get that low during the day and cannot imagine waking from that low number and even being able to get out of bed!) It also says that fasting should only get up to 100, which is much lower than I thought.
 

ladybug

New member
Ok, this is from the National Institute of Health and here is what they say:

Normal Values

Normal blood values for a 75-gram oral glucose tolerance test used to check for type 2 diabetes:

Fasting: 60 to 100 mg/dL
1 hour: less than 200 mg/dL
2 hours: less than 140 mg/dL. Between 140-200 mg/dL is considered impaired glucose tolerance or pre-diabetes. This group is at increased risk for developing diabetes. Greater than 200 mg/dL is diagnostic of diabetes mellitus



** So, if the numbers mean the same for CFRD, then I have no idea why my doc would say the things I mentioned in my prior post. Perhaps it is because I am just inside the 200 mark. Unless these values are different for CFRD.

I am very shocked that 60 is a normal fasting level... that seems extremely low to me (I get faint when I get that low during the day and cannot imagine waking from that low number and even being able to get out of bed!) It also says that fasting should only get up to 100, which is much lower than I thought.
 

Jennifer1981

New member
Sonia,

Those numbers that you presented from the National Institute of Health are close to the ones I was instructed. But again, I think too that they are more directed towards a "normal person" not someone with CF. In think that is where the lab went wrong. They know I have CF but didn't know how that would relate to the "normal values".

I completely agree with the 60 being too low. I tend to crash like that a few times a week right before lunch. That was one of the reasons I was taken off of the Pandin and Amaryl 6 years ago. I was still a little high 2 hours post then bang. One time it dropped to 42 while on the Amaryl. I was in Walmart. Thankfully, my mom was with me. I immediately sat down and drank soda like there was no tomorrow. That is why they stopped the insulin pills. Back then, my A1C was 6.3 (not bad). I was only taking Amaryl 1 mg (which was nothing). Now without insulin, it still drops to like 65-60 right before lunch. I just eat and that's it. My sugars are fine the rest of the day. I can eat pasta or pizza and have a close to normal (150) blood sugar two hours post. I don't seem to have such the dropping effect after any other meal. My only problem ever and still is between breakfast and lunch. My old diabetes doctor said I had "dumping syndrome". That bascially where your pancreas doesn't release enough insulin then bang resulting in the sudden drop. For me, the drop occurred within 15 minutes. I'd feel dizzy and sweaty. By the time, I had soda, OJ, or anything with sugar, it was 60 or less.

The interesting point to note, though, was that my highest A1C (6.3) was diagnosed right when I started working as a Medical Assistant. I worked as one for nearly 4 years and each year I was diabetic. After I caught MRSA and lost my job, the diabetes calmed back down to "borderline". I'm sure that if I was still working, I'd be on insulin by now. I lost my job 3 years ago this month, March. So actually, I would say I had the positive A1C around 18-19. It was immediately after I started my career. I think by me stopping working, I saved myself the diabetes - at least bought more time.

Thank you for the information! Yes, my doc overreacted but at least it ended well.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Jennifer1981

New member
Sonia,

Those numbers that you presented from the National Institute of Health are close to the ones I was instructed. But again, I think too that they are more directed towards a "normal person" not someone with CF. In think that is where the lab went wrong. They know I have CF but didn't know how that would relate to the "normal values".

I completely agree with the 60 being too low. I tend to crash like that a few times a week right before lunch. That was one of the reasons I was taken off of the Pandin and Amaryl 6 years ago. I was still a little high 2 hours post then bang. One time it dropped to 42 while on the Amaryl. I was in Walmart. Thankfully, my mom was with me. I immediately sat down and drank soda like there was no tomorrow. That is why they stopped the insulin pills. Back then, my A1C was 6.3 (not bad). I was only taking Amaryl 1 mg (which was nothing). Now without insulin, it still drops to like 65-60 right before lunch. I just eat and that's it. My sugars are fine the rest of the day. I can eat pasta or pizza and have a close to normal (150) blood sugar two hours post. I don't seem to have such the dropping effect after any other meal. My only problem ever and still is between breakfast and lunch. My old diabetes doctor said I had "dumping syndrome". That bascially where your pancreas doesn't release enough insulin then bang resulting in the sudden drop. For me, the drop occurred within 15 minutes. I'd feel dizzy and sweaty. By the time, I had soda, OJ, or anything with sugar, it was 60 or less.

The interesting point to note, though, was that my highest A1C (6.3) was diagnosed right when I started working as a Medical Assistant. I worked as one for nearly 4 years and each year I was diabetic. After I caught MRSA and lost my job, the diabetes calmed back down to "borderline". I'm sure that if I was still working, I'd be on insulin by now. I lost my job 3 years ago this month, March. So actually, I would say I had the positive A1C around 18-19. It was immediately after I started my career. I think by me stopping working, I saved myself the diabetes - at least bought more time.

Thank you for the information! Yes, my doc overreacted but at least it ended well.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Jennifer1981

New member
Sonia,

Those numbers that you presented from the National Institute of Health are close to the ones I was instructed. But again, I think too that they are more directed towards a "normal person" not someone with CF. In think that is where the lab went wrong. They know I have CF but didn't know how that would relate to the "normal values".

I completely agree with the 60 being too low. I tend to crash like that a few times a week right before lunch. That was one of the reasons I was taken off of the Pandin and Amaryl 6 years ago. I was still a little high 2 hours post then bang. One time it dropped to 42 while on the Amaryl. I was in Walmart. Thankfully, my mom was with me. I immediately sat down and drank soda like there was no tomorrow. That is why they stopped the insulin pills. Back then, my A1C was 6.3 (not bad). I was only taking Amaryl 1 mg (which was nothing). Now without insulin, it still drops to like 65-60 right before lunch. I just eat and that's it. My sugars are fine the rest of the day. I can eat pasta or pizza and have a close to normal (150) blood sugar two hours post. I don't seem to have such the dropping effect after any other meal. My only problem ever and still is between breakfast and lunch. My old diabetes doctor said I had "dumping syndrome". That bascially where your pancreas doesn't release enough insulin then bang resulting in the sudden drop. For me, the drop occurred within 15 minutes. I'd feel dizzy and sweaty. By the time, I had soda, OJ, or anything with sugar, it was 60 or less.

The interesting point to note, though, was that my highest A1C (6.3) was diagnosed right when I started working as a Medical Assistant. I worked as one for nearly 4 years and each year I was diabetic. After I caught MRSA and lost my job, the diabetes calmed back down to "borderline". I'm sure that if I was still working, I'd be on insulin by now. I lost my job 3 years ago this month, March. So actually, I would say I had the positive A1C around 18-19. It was immediately after I started my career. I think by me stopping working, I saved myself the diabetes - at least bought more time.

Thank you for the information! Yes, my doc overreacted but at least it ended well.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

ladybug

New member
Jennifer...

Interesting... I crash every day before lunch too! If I even go 2 hours between breakfast and lunch, I get into the 60s and can really feel it! At night, I rarely crash at all, but my sugars do go up to around 180 after a big pasta dinner without insulin. I just try to balance the carbs with lots of meaty proteins or nuts, etc...

I also wanted to mention that my docs have told me pills do absolutely nothing for CFRD. They say if you have CFRD, it is proven you MUST take insulin (I inquired about it this past week cause I thought maybe if I were on something that stayed in my system longer, it would regulate my sugars). Since they are conducting a HUGE CFRD study at my center along with 7-8 other centers, I'm not sure if that is where they're getting their info. or what, but it was interesting. I know a ton of people with CFRD on this forum are on pills and do well with them, so I don't understand their reaction. I guess every CF doc is as different as CF itself!!! lol
 

ladybug

New member
Jennifer...

Interesting... I crash every day before lunch too! If I even go 2 hours between breakfast and lunch, I get into the 60s and can really feel it! At night, I rarely crash at all, but my sugars do go up to around 180 after a big pasta dinner without insulin. I just try to balance the carbs with lots of meaty proteins or nuts, etc...

I also wanted to mention that my docs have told me pills do absolutely nothing for CFRD. They say if you have CFRD, it is proven you MUST take insulin (I inquired about it this past week cause I thought maybe if I were on something that stayed in my system longer, it would regulate my sugars). Since they are conducting a HUGE CFRD study at my center along with 7-8 other centers, I'm not sure if that is where they're getting their info. or what, but it was interesting. I know a ton of people with CFRD on this forum are on pills and do well with them, so I don't understand their reaction. I guess every CF doc is as different as CF itself!!! lol
 

ladybug

New member
Jennifer...

Interesting... I crash every day before lunch too! If I even go 2 hours between breakfast and lunch, I get into the 60s and can really feel it! At night, I rarely crash at all, but my sugars do go up to around 180 after a big pasta dinner without insulin. I just try to balance the carbs with lots of meaty proteins or nuts, etc...

I also wanted to mention that my docs have told me pills do absolutely nothing for CFRD. They say if you have CFRD, it is proven you MUST take insulin (I inquired about it this past week cause I thought maybe if I were on something that stayed in my system longer, it would regulate my sugars). Since they are conducting a HUGE CFRD study at my center along with 7-8 other centers, I'm not sure if that is where they're getting their info. or what, but it was interesting. I know a ton of people with CFRD on this forum are on pills and do well with them, so I don't understand their reaction. I guess every CF doc is as different as CF itself!!! lol
 

Jennifer1981

New member
Hey Sonia,

We have more in common than we think! LOL!

The pills, like I said, did nothing for me. They had me stop them and then repeated the A1C. That is when it had come down to 5.7. At one point, it even dropped to 5.1. Then 1.5 years ago, it went back up to 5.7. And now, 5.8. I too watch my diet. When I worked, my meals were always messed up. You NEVER had a lunch without interruptions. We didn't turn off the phones so people were always calling while I was trying to eat. Or not one patient would check-in and then all of a sudden a ton came. Sometimes, my lunch was in two shifts. I ate more junk food too than I should have. When I was working it was hard to eat right. I admire those who manage to fit it all in.

What concerned me the most was for 1.5 years I was trying to conceive. Not that I was ever lower than 60 but that couldn't possibly be good for the baby. Those drops are almost daily. They are worse depending on my menstral cycle. At least that would be bypassed while pregnant but still... My doc wasn't concerned as long as I ate right after 2 hours. But I knew how I got. I don't know. I didn't conceive so I guess that didn't hurt...<img src="i/expressions/heart.gif" border="0">
 

Jennifer1981

New member
Hey Sonia,

We have more in common than we think! LOL!

The pills, like I said, did nothing for me. They had me stop them and then repeated the A1C. That is when it had come down to 5.7. At one point, it even dropped to 5.1. Then 1.5 years ago, it went back up to 5.7. And now, 5.8. I too watch my diet. When I worked, my meals were always messed up. You NEVER had a lunch without interruptions. We didn't turn off the phones so people were always calling while I was trying to eat. Or not one patient would check-in and then all of a sudden a ton came. Sometimes, my lunch was in two shifts. I ate more junk food too than I should have. When I was working it was hard to eat right. I admire those who manage to fit it all in.

What concerned me the most was for 1.5 years I was trying to conceive. Not that I was ever lower than 60 but that couldn't possibly be good for the baby. Those drops are almost daily. They are worse depending on my menstral cycle. At least that would be bypassed while pregnant but still... My doc wasn't concerned as long as I ate right after 2 hours. But I knew how I got. I don't know. I didn't conceive so I guess that didn't hurt...<img src="i/expressions/heart.gif" border="0">
 

Jennifer1981

New member
Hey Sonia,

We have more in common than we think! LOL!

The pills, like I said, did nothing for me. They had me stop them and then repeated the A1C. That is when it had come down to 5.7. At one point, it even dropped to 5.1. Then 1.5 years ago, it went back up to 5.7. And now, 5.8. I too watch my diet. When I worked, my meals were always messed up. You NEVER had a lunch without interruptions. We didn't turn off the phones so people were always calling while I was trying to eat. Or not one patient would check-in and then all of a sudden a ton came. Sometimes, my lunch was in two shifts. I ate more junk food too than I should have. When I was working it was hard to eat right. I admire those who manage to fit it all in.

What concerned me the most was for 1.5 years I was trying to conceive. Not that I was ever lower than 60 but that couldn't possibly be good for the baby. Those drops are almost daily. They are worse depending on my menstral cycle. At least that would be bypassed while pregnant but still... My doc wasn't concerned as long as I ate right after 2 hours. But I knew how I got. I don't know. I didn't conceive so I guess that didn't hurt...<img src="i/expressions/heart.gif" border="0">
 

Jennifer1981

New member
Sonia...

I wanted to ask - What was your lowest BS ever?

Mine was 32. I was sick in the hospital sleeping. Luckly, a nurse awoke me at 6:00 am for a BS. She flew out of the room so fast and returned with 4 containers of OJ. I must admit that was the deepest sleep of my life. I was out. I never slept so good in my life - or course - a few more minutes and I wouldn't have woken up!
 

Jennifer1981

New member
Sonia...

I wanted to ask - What was your lowest BS ever?

Mine was 32. I was sick in the hospital sleeping. Luckly, a nurse awoke me at 6:00 am for a BS. She flew out of the room so fast and returned with 4 containers of OJ. I must admit that was the deepest sleep of my life. I was out. I never slept so good in my life - or course - a few more minutes and I wouldn't have woken up!
 

Jennifer1981

New member
Sonia...

I wanted to ask - What was your lowest BS ever?

Mine was 32. I was sick in the hospital sleeping. Luckly, a nurse awoke me at 6:00 am for a BS. She flew out of the room so fast and returned with 4 containers of OJ. I must admit that was the deepest sleep of my life. I was out. I never slept so good in my life - or course - a few more minutes and I wouldn't have woken up!
 
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