I'm a fairly new poster to the site but have been a lurker for some time. I haven't made a formal introduction yet so here it is. My name is Sherri, I have a beautiful 3 year old daughter, Abby with CF. She was diagnosed at 5 months, she has the Delta F508 gene and the other is 1898+1GA. I would be interested in knowing if anybody else has that combination and what kind of severity levels they have.
Abby's health has been good, with one hospitalization at 18 months and another this past January. She was in great shape after leaving the hospital, then came down with a cold 2 weeks afterward and has been battling a cough ever since. We are now trying Tobi along with Bactrim and Cipro. I was told she cultured staph and 3 strains of pseudomonas. If that doesn't work, it's back to the hospital.
How many others on on Tobi and how long does it take in your nebulizer and what kind of compressor do you have? I'm not sure if she's in need of a new compressor (it's 3 yrs old and has been dropped a few times) or if tobi is just that slow, but it's taking over 30 minutes. Just curious to see if there are faster machines out there.
Abby's health has been good, with one hospitalization at 18 months and another this past January. She was in great shape after leaving the hospital, then came down with a cold 2 weeks afterward and has been battling a cough ever since. We are now trying Tobi along with Bactrim and Cipro. I was told she cultured staph and 3 strains of pseudomonas. If that doesn't work, it's back to the hospital.
How many others on on Tobi and how long does it take in your nebulizer and what kind of compressor do you have? I'm not sure if she's in need of a new compressor (it's 3 yrs old and has been dropped a few times) or if tobi is just that slow, but it's taking over 30 minutes. Just curious to see if there are faster machines out there.