Family Chat time

K

kayleesgrandma

New member
I am not sure but I think this (the "family hour") was conceived because of what happened to Tara??? Sometimes chat can be inclusive, or exclusive. I thought that was why there were chat rooms within the chat room...if you need to talk privately with other cfrs, why not go to the chat room(s)?

I can understand wanting to talk about cf with other cfrs, when I feel that happening in chat I usually just linger and let the talk happen, because I haven't much more than a clue about what it is like...I try not to intrude. Then the conversation will turn and we talk about something else...

You cfrs can't even begin to understand how important you are to those of us trying to understand how this disease affects you--and therefore those we love. At the same time, I feel that there is a need to respect your privacy...I imagine you don't need ONE more chain around your neck...(I heard that groan--*"great, now I have to be an example on top of everything else I go through...!!!"*)

I think of all the things this disease does to you--even above the physical crap it puts you through--is what it does to you emotionally. I wonder if that was a factor in the chat that caused some people to be upset when Tara talked about her kids--some people CAN'T have kids, or don't want kids, or MAY want kids, but HAVE to choose not to have them due to their health...It is a reminder of one more thing that cf robs you off...Plus, people w/o kids don't understand what it is like...

I may be way off the mark here...I wasn't in the chat room that night. As far as I'm concerned, and from what I understand, there are other sites that are for CF on the net. If you want to only talk to cfrs--you may go there.

THIS site is for ALL of us, cfrs, caregivers, grandma's, grandpa's...It has literally changed my life, and my outlook on life...I feel like I was stumbling in the darkness, before I found all of you...
 
K

kayleesgrandma

New member
I am not sure but I think this (the "family hour") was conceived because of what happened to Tara??? Sometimes chat can be inclusive, or exclusive. I thought that was why there were chat rooms within the chat room...if you need to talk privately with other cfrs, why not go to the chat room(s)?

I can understand wanting to talk about cf with other cfrs, when I feel that happening in chat I usually just linger and let the talk happen, because I haven't much more than a clue about what it is like...I try not to intrude. Then the conversation will turn and we talk about something else...

You cfrs can't even begin to understand how important you are to those of us trying to understand how this disease affects you--and therefore those we love. At the same time, I feel that there is a need to respect your privacy...I imagine you don't need ONE more chain around your neck...(I heard that groan--*"great, now I have to be an example on top of everything else I go through...!!!"*)

I think of all the things this disease does to you--even above the physical crap it puts you through--is what it does to you emotionally. I wonder if that was a factor in the chat that caused some people to be upset when Tara talked about her kids--some people CAN'T have kids, or don't want kids, or MAY want kids, but HAVE to choose not to have them due to their health...It is a reminder of one more thing that cf robs you off...Plus, people w/o kids don't understand what it is like...

I may be way off the mark here...I wasn't in the chat room that night. As far as I'm concerned, and from what I understand, there are other sites that are for CF on the net. If you want to only talk to cfrs--you may go there.

THIS site is for ALL of us, cfrs, caregivers, grandma's, grandpa's...It has literally changed my life, and my outlook on life...I feel like I was stumbling in the darkness, before I found all of you...
 
K

kayleesgrandma

New member
I am not sure but I think this (the "family hour") was conceived because of what happened to Tara??? Sometimes chat can be inclusive, or exclusive. I thought that was why there were chat rooms within the chat room...if you need to talk privately with other cfrs, why not go to the chat room(s)?

I can understand wanting to talk about cf with other cfrs, when I feel that happening in chat I usually just linger and let the talk happen, because I haven't much more than a clue about what it is like...I try not to intrude. Then the conversation will turn and we talk about something else...

You cfrs can't even begin to understand how important you are to those of us trying to understand how this disease affects you--and therefore those we love. At the same time, I feel that there is a need to respect your privacy...I imagine you don't need ONE more chain around your neck...(I heard that groan--*"great, now I have to be an example on top of everything else I go through...!!!"*)

I think of all the things this disease does to you--even above the physical crap it puts you through--is what it does to you emotionally. I wonder if that was a factor in the chat that caused some people to be upset when Tara talked about her kids--some people CAN'T have kids, or don't want kids, or MAY want kids, but HAVE to choose not to have them due to their health...It is a reminder of one more thing that cf robs you off...Plus, people w/o kids don't understand what it is like...

I may be way off the mark here...I wasn't in the chat room that night. As far as I'm concerned, and from what I understand, there are other sites that are for CF on the net. If you want to only talk to cfrs--you may go there.

THIS site is for ALL of us, cfrs, caregivers, grandma's, grandpa's...It has literally changed my life, and my outlook on life...I feel like I was stumbling in the darkness, before I found all of you...
 
K

kayleesgrandma

New member
I am not sure but I think this (the "family hour") was conceived because of what happened to Tara??? Sometimes chat can be inclusive, or exclusive. I thought that was why there were chat rooms within the chat room...if you need to talk privately with other cfrs, why not go to the chat room(s)?

I can understand wanting to talk about cf with other cfrs, when I feel that happening in chat I usually just linger and let the talk happen, because I haven't much more than a clue about what it is like...I try not to intrude. Then the conversation will turn and we talk about something else...

You cfrs can't even begin to understand how important you are to those of us trying to understand how this disease affects you--and therefore those we love. At the same time, I feel that there is a need to respect your privacy...I imagine you don't need ONE more chain around your neck...(I heard that groan--*"great, now I have to be an example on top of everything else I go through...!!!"*)

I think of all the things this disease does to you--even above the physical crap it puts you through--is what it does to you emotionally. I wonder if that was a factor in the chat that caused some people to be upset when Tara talked about her kids--some people CAN'T have kids, or don't want kids, or MAY want kids, but HAVE to choose not to have them due to their health...It is a reminder of one more thing that cf robs you off...Plus, people w/o kids don't understand what it is like...

I may be way off the mark here...I wasn't in the chat room that night. As far as I'm concerned, and from what I understand, there are other sites that are for CF on the net. If you want to only talk to cfrs--you may go there.

THIS site is for ALL of us, cfrs, caregivers, grandma's, grandpa's...It has literally changed my life, and my outlook on life...I feel like I was stumbling in the darkness, before I found all of you...
 
K

kayleesgrandma

New member
I am not sure but I think this (the "family hour") was conceived because of what happened to Tara??? Sometimes chat can be inclusive, or exclusive. I thought that was why there were chat rooms within the chat room...if you need to talk privately with other cfrs, why not go to the chat room(s)?
<br />
<br />I can understand wanting to talk about cf with other cfrs, when I feel that happening in chat I usually just linger and let the talk happen, because I haven't much more than a clue about what it is like...I try not to intrude. Then the conversation will turn and we talk about something else...
<br />
<br />You cfrs can't even begin to understand how important you are to those of us trying to understand how this disease affects you--and therefore those we love. At the same time, I feel that there is a need to respect your privacy...I imagine you don't need ONE more chain around your neck...(I heard that groan--*"great, now I have to be an example on top of everything else I go through...!!!"*)
<br />
<br />I think of all the things this disease does to you--even above the physical crap it puts you through--is what it does to you emotionally. I wonder if that was a factor in the chat that caused some people to be upset when Tara talked about her kids--some people CAN'T have kids, or don't want kids, or MAY want kids, but HAVE to choose not to have them due to their health...It is a reminder of one more thing that cf robs you off...Plus, people w/o kids don't understand what it is like...
<br />
<br />I may be way off the mark here...I wasn't in the chat room that night. As far as I'm concerned, and from what I understand, there are other sites that are for CF on the net. If you want to only talk to cfrs--you may go there.
<br />
<br />THIS site is for ALL of us, cfrs, caregivers, grandma's, grandpa's...It has literally changed my life, and my outlook on life...I feel like I was stumbling in the darkness, before I found all of you...
<br />
<br />
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kayleesgrandma</b></i>


...I feel like I was stumbling in the darkness, before I found all of you...</end quote></div>


On certain drinking nites you still are <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kayleesgrandma</b></i>


...I feel like I was stumbling in the darkness, before I found all of you...</end quote></div>


On certain drinking nites you still are <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kayleesgrandma</b></i>


...I feel like I was stumbling in the darkness, before I found all of you...</end quote></div>


On certain drinking nites you still are <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kayleesgrandma</b></i>


...I feel like I was stumbling in the darkness, before I found all of you...</end quote>


On certain drinking nites you still are <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kayleesgrandma</b></i>
<br />
<br />
<br />...I feel like I was stumbling in the darkness, before I found all of you...</end quote>
<br />
<br />
<br />On certain drinking nites you still are <img src="i/expressions/face-icon-small-tongue.gif" border="0">
<br />
 
V

vmhoward

New member
I will be honest,

I didnt go to the "family chat time" last night simply because I forgot about it. I was busy with evening meds for G-Man and getting other kids in bed.

I havent been in chat consistantly for quite a while. But I have to say that sometimes things can be said in jest that can be taken the wrong way. I have been the victim of such comments in the past and instead of blowing up about them I just blew them off and figured 'you know I will probably never meet any of these people, what difference does it make what they think of me.'

Yeah words can hurt and yes if cought in one of my depressed/frustrated/angry moods, I might just say 'scr&w you' to who ever is saying them. But would that be the right thing to do? I dont know.

For the most part the general chat has been a blessing to many people here and has given me much insight into things that my son and I have yet to encounter, and has helped me through some real tough times as well.

I know that there are people that come to chat that can not have children or who chose not to for various reasons. This has never been an issue between me and them.

That all being said I leave you all with the words of a famous american "why can't we all just get along?!"
 
V

vmhoward

New member
I will be honest,

I didnt go to the "family chat time" last night simply because I forgot about it. I was busy with evening meds for G-Man and getting other kids in bed.

I havent been in chat consistantly for quite a while. But I have to say that sometimes things can be said in jest that can be taken the wrong way. I have been the victim of such comments in the past and instead of blowing up about them I just blew them off and figured 'you know I will probably never meet any of these people, what difference does it make what they think of me.'

Yeah words can hurt and yes if cought in one of my depressed/frustrated/angry moods, I might just say 'scr&w you' to who ever is saying them. But would that be the right thing to do? I dont know.

For the most part the general chat has been a blessing to many people here and has given me much insight into things that my son and I have yet to encounter, and has helped me through some real tough times as well.

I know that there are people that come to chat that can not have children or who chose not to for various reasons. This has never been an issue between me and them.

That all being said I leave you all with the words of a famous american "why can't we all just get along?!"
 
V

vmhoward

New member
I will be honest,

I didnt go to the "family chat time" last night simply because I forgot about it. I was busy with evening meds for G-Man and getting other kids in bed.

I havent been in chat consistantly for quite a while. But I have to say that sometimes things can be said in jest that can be taken the wrong way. I have been the victim of such comments in the past and instead of blowing up about them I just blew them off and figured 'you know I will probably never meet any of these people, what difference does it make what they think of me.'

Yeah words can hurt and yes if cought in one of my depressed/frustrated/angry moods, I might just say 'scr&w you' to who ever is saying them. But would that be the right thing to do? I dont know.

For the most part the general chat has been a blessing to many people here and has given me much insight into things that my son and I have yet to encounter, and has helped me through some real tough times as well.

I know that there are people that come to chat that can not have children or who chose not to for various reasons. This has never been an issue between me and them.

That all being said I leave you all with the words of a famous american "why can't we all just get along?!"
 
V

vmhoward

New member
I will be honest,

I didnt go to the "family chat time" last night simply because I forgot about it. I was busy with evening meds for G-Man and getting other kids in bed.

I havent been in chat consistantly for quite a while. But I have to say that sometimes things can be said in jest that can be taken the wrong way. I have been the victim of such comments in the past and instead of blowing up about them I just blew them off and figured 'you know I will probably never meet any of these people, what difference does it make what they think of me.'

Yeah words can hurt and yes if cought in one of my depressed/frustrated/angry moods, I might just say 'scr&w you' to who ever is saying them. But would that be the right thing to do? I dont know.

For the most part the general chat has been a blessing to many people here and has given me much insight into things that my son and I have yet to encounter, and has helped me through some real tough times as well.

I know that there are people that come to chat that can not have children or who chose not to for various reasons. This has never been an issue between me and them.

That all being said I leave you all with the words of a famous american "why can't we all just get along?!"
 
V

vmhoward

New member
I will be honest,
<br />
<br />I didnt go to the "family chat time" last night simply because I forgot about it. I was busy with evening meds for G-Man and getting other kids in bed.
<br />
<br />I havent been in chat consistantly for quite a while. But I have to say that sometimes things can be said in jest that can be taken the wrong way. I have been the victim of such comments in the past and instead of blowing up about them I just blew them off and figured 'you know I will probably never meet any of these people, what difference does it make what they think of me.'
<br />
<br />Yeah words can hurt and yes if cought in one of my depressed/frustrated/angry moods, I might just say 'scr&w you' to who ever is saying them. But would that be the right thing to do? I dont know.
<br />
<br />For the most part the general chat has been a blessing to many people here and has given me much insight into things that my son and I have yet to encounter, and has helped me through some real tough times as well.
<br />
<br />I know that there are people that come to chat that can not have children or who chose not to for various reasons. This has never been an issue between me and them.
<br />
<br />That all being said I leave you all with the words of a famous american "why can't we all just get along?!"
<br />
<br />
 
E

Emily65Roses

New member
Yeah dude... uhm... I don't care either. If it turns to kids or whatever, I kind of do what Terri does when it goes to CF stuff. I just pay more attention to my TV, float in and out. And then when it goes back to general conversation, I return. There are enough parents here, I don't really mind. As long as it's not KIDS EVERY DAY ALL DAY (which it has never struck me as), I don't give a damn.

Buuuuuuuuttt that's me.
 
E

Emily65Roses

New member
Yeah dude... uhm... I don't care either. If it turns to kids or whatever, I kind of do what Terri does when it goes to CF stuff. I just pay more attention to my TV, float in and out. And then when it goes back to general conversation, I return. There are enough parents here, I don't really mind. As long as it's not KIDS EVERY DAY ALL DAY (which it has never struck me as), I don't give a damn.

Buuuuuuuuttt that's me.
 
E

Emily65Roses

New member
Yeah dude... uhm... I don't care either. If it turns to kids or whatever, I kind of do what Terri does when it goes to CF stuff. I just pay more attention to my TV, float in and out. And then when it goes back to general conversation, I return. There are enough parents here, I don't really mind. As long as it's not KIDS EVERY DAY ALL DAY (which it has never struck me as), I don't give a damn.

Buuuuuuuuttt that's me.
 
E

Emily65Roses

New member
Yeah dude... uhm... I don't care either. If it turns to kids or whatever, I kind of do what Terri does when it goes to CF stuff. I just pay more attention to my TV, float in and out. And then when it goes back to general conversation, I return. There are enough parents here, I don't really mind. As long as it's not KIDS EVERY DAY ALL DAY (which it has never struck me as), I don't give a damn.

Buuuuuuuuttt that's me.
 
E

Emily65Roses

New member
Yeah dude... uhm... I don't care either. If it turns to kids or whatever, I kind of do what Terri does when it goes to CF stuff. I just pay more attention to my TV, float in and out. And then when it goes back to general conversation, I return. There are enough parents here, I don't really mind. As long as it's not KIDS EVERY DAY ALL DAY (which it has never struck me as), I don't give a damn.
<br />
<br />Buuuuuuuuttt that's me.
 
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