FAO Nightwriter

J

JennifersHope

New member
Oddly enough.. I just went back and read your post, you and I are in a similiar position.. I have decreased lung function too.. and I really feel like a lot of my problem is asthma related.....

I was lucky enough to get to my CF clinic this time when I went back to NJ and I feel like they are going to help me get back on track.. they are a whole team so they are able to treat me way better then a single doctor can....

I am curious.. I am hoping to start some inhaled steroids soon so I can decrease my prednisone because right now I can't breath good off of it.. Are you trying Singular or Pulmocort? Those to were just suggested to me for asthma?

Let me know what you find out
 
J

JennifersHope

New member
Oddly enough.. I just went back and read your post, you and I are in a similiar position.. I have decreased lung function too.. and I really feel like a lot of my problem is asthma related.....

I was lucky enough to get to my CF clinic this time when I went back to NJ and I feel like they are going to help me get back on track.. they are a whole team so they are able to treat me way better then a single doctor can....

I am curious.. I am hoping to start some inhaled steroids soon so I can decrease my prednisone because right now I can't breath good off of it.. Are you trying Singular or Pulmocort? Those to were just suggested to me for asthma?

Let me know what you find out
 
J

JennifersHope

New member
Oddly enough.. I just went back and read your post, you and I are in a similiar position.. I have decreased lung function too.. and I really feel like a lot of my problem is asthma related.....

I was lucky enough to get to my CF clinic this time when I went back to NJ and I feel like they are going to help me get back on track.. they are a whole team so they are able to treat me way better then a single doctor can....

I am curious.. I am hoping to start some inhaled steroids soon so I can decrease my prednisone because right now I can't breath good off of it.. Are you trying Singular or Pulmocort? Those to were just suggested to me for asthma?

Let me know what you find out
 
J

JennifersHope

New member
Oddly enough.. I just went back and read your post, you and I are in a similiar position.. I have decreased lung function too.. and I really feel like a lot of my problem is asthma related.....

I was lucky enough to get to my CF clinic this time when I went back to NJ and I feel like they are going to help me get back on track.. they are a whole team so they are able to treat me way better then a single doctor can....

I am curious.. I am hoping to start some inhaled steroids soon so I can decrease my prednisone because right now I can't breath good off of it.. Are you trying Singular or Pulmocort? Those to were just suggested to me for asthma?

Let me know what you find out
 
J

JennifersHope

New member
Oddly enough.. I just went back and read your post, you and I are in a similiar position.. I have decreased lung function too.. and I really feel like a lot of my problem is asthma related.....
<br />
<br />I was lucky enough to get to my CF clinic this time when I went back to NJ and I feel like they are going to help me get back on track.. they are a whole team so they are able to treat me way better then a single doctor can....
<br />
<br />I am curious.. I am hoping to start some inhaled steroids soon so I can decrease my prednisone because right now I can't breath good off of it.. Are you trying Singular or Pulmocort? Those to were just suggested to me for asthma?
<br />
<br />Let me know what you find out
 
N

Nightwriter

New member
Hi Jersey,

I'm back. The search engine isn't cooperating with me. So I will give you few threads and I hope you can find them. Sorry if they will start to sound redundant after a while.


So put each one into the search box.

1) C.F. doc. gives negative survival rate for 9 yr. old.
2)Pro Active Tuneups
3)PICC before Sinus Surgery?? Please help!
4)Info on Zinc
5)What is preventative care? posted by anneop86 8/12/08
6)How do you know? 11/7/2008 posted by Ladybug
7)Night-time coughing, asthma? inflammation? posted by sdelorenzo 9/17/2008

Start with those. If you can't find them, let me know.
 
N

Nightwriter

New member
Hi Jersey,

I'm back. The search engine isn't cooperating with me. So I will give you few threads and I hope you can find them. Sorry if they will start to sound redundant after a while.


So put each one into the search box.

1) C.F. doc. gives negative survival rate for 9 yr. old.
2)Pro Active Tuneups
3)PICC before Sinus Surgery?? Please help!
4)Info on Zinc
5)What is preventative care? posted by anneop86 8/12/08
6)How do you know? 11/7/2008 posted by Ladybug
7)Night-time coughing, asthma? inflammation? posted by sdelorenzo 9/17/2008

Start with those. If you can't find them, let me know.
 
N

Nightwriter

New member
Hi Jersey,

I'm back. The search engine isn't cooperating with me. So I will give you few threads and I hope you can find them. Sorry if they will start to sound redundant after a while.


So put each one into the search box.

1) C.F. doc. gives negative survival rate for 9 yr. old.
2)Pro Active Tuneups
3)PICC before Sinus Surgery?? Please help!
4)Info on Zinc
5)What is preventative care? posted by anneop86 8/12/08
6)How do you know? 11/7/2008 posted by Ladybug
7)Night-time coughing, asthma? inflammation? posted by sdelorenzo 9/17/2008

Start with those. If you can't find them, let me know.
 
N

Nightwriter

New member
Hi Jersey,

I'm back. The search engine isn't cooperating with me. So I will give you few threads and I hope you can find them. Sorry if they will start to sound redundant after a while.


So put each one into the search box.

1) C.F. doc. gives negative survival rate for 9 yr. old.
2)Pro Active Tuneups
3)PICC before Sinus Surgery?? Please help!
4)Info on Zinc
5)What is preventative care? posted by anneop86 8/12/08
6)How do you know? 11/7/2008 posted by Ladybug
7)Night-time coughing, asthma? inflammation? posted by sdelorenzo 9/17/2008

Start with those. If you can't find them, let me know.
 
N

Nightwriter

New member
Hi Jersey,
<br />
<br />I'm back. The search engine isn't cooperating with me. So I will give you few threads and I hope you can find them. Sorry if they will start to sound redundant after a while.
<br />
<br />
<br />So put each one into the search box.
<br />
<br />1) C.F. doc. gives negative survival rate for 9 yr. old.
<br />2)Pro Active Tuneups
<br />3)PICC before Sinus Surgery?? Please help!
<br />4)Info on Zinc
<br />5)What is preventative care? posted by anneop86 8/12/08
<br />6)How do you know? 11/7/2008 posted by Ladybug
<br />7)Night-time coughing, asthma? inflammation? posted by sdelorenzo 9/17/2008
<br />
<br />Start with those. If you can't find them, let me know.
 
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