Fasle Negative Sweat Tests?

[cosmokramer]

My daughter had 2 sweat tests, the first one children's hospital only got enough sweat off of one arm, which came back at 29. The second test children's hospital got enough sweat off of both arms and her numbers were 29 and 36. Both which are in the "normal range" but still on the higher end. So we did genetic testing, because her numbers weren't where the doctors really thought they should be, and found two mutations.

I would definelty push for genetic testing.

 

[Augustmom0003]

Do you think that carriers can have higher sweat tests? My daughter had a sweat test after Ethan was diagnosed and her score was 38. This didn't sit well with me so I eventually had a genetic test done and she is a carrier. Just wondering....

 

[Augustmom0003]

Do you think that carriers can have higher sweat tests? My daughter had a sweat test after Ethan was diagnosed and her score was 38. This didn't sit well with me so I eventually had a genetic test done and she is a carrier. Just wondering....

 

[Augustmom0003]

Do you think that carriers can have higher sweat tests? My daughter had a sweat test after Ethan was diagnosed and her score was 38. This didn't sit well with me so I eventually had a genetic test done and she is a carrier. Just wondering....

 

[Alyssa]

RiRi,

If you think it might help, please feel free to copy my blog into a word document and send it to the mom (or send her the link if she's on the net) Maybe seeing the story for herself would make a difference -- Dr.'s aren't always right. Also cosmokramer's story sounds very similar to mine as well.

 

[Alyssa]

RiRi,

If you think it might help, please feel free to copy my blog into a word document and send it to the mom (or send her the link if she's on the net) Maybe seeing the story for herself would make a difference -- Dr.'s aren't always right. Also cosmokramer's story sounds very similar to mine as well.

 

[Alyssa]

RiRi,

If you think it might help, please feel free to copy my blog into a word document and send it to the mom (or send her the link if she's on the net) Maybe seeing the story for herself would make a difference -- Dr.'s aren't always right. Also cosmokramer's story sounds very similar to mine as well.

 

[RiRi]

Alyssa- I sent her your story and shared with her some other posts from this blog. She has an appt Thurs day with a md who specializes in lung issues. She going to push for another sweat test and a gentic one to back up the results. Thanks for the info. I, of course, am praying my hunches are wrong but if they are not we may have saved this little one some prescious time!!!

 

[RiRi]

Alyssa- I sent her your story and shared with her some other posts from this blog. She has an appt Thurs day with a md who specializes in lung issues. She going to push for another sweat test and a gentic one to back up the results. Thanks for the info. I, of course, am praying my hunches are wrong but if they are not we may have saved this little one some prescious time!!!

 

[RiRi]

Alyssa- I sent her your story and shared with her some other posts from this blog. She has an appt Thurs day with a md who specializes in lung issues. She going to push for another sweat test and a gentic one to back up the results. Thanks for the info. I, of course, am praying my hunches are wrong but if they are not we may have saved this little one some prescious time!!!