Feeling alone

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Boser

New member
I can relate to everything your saying. My son was diagnoised at 3 weeks also. He was born June 8th. He started having seizures at 5 day old and was in the hospital 3 times by the time he was 2 months old.

It is really hard to comprehend that onone can tell u what will happen in the future with this aweful diagnosis. Then when u read all the bad on the net. I think that is the worst part about all this.

I know in my heart Cody will be the happiest child alive growing up (in the hospital or not) because I will make sure of it. That is the only thing getting me through this right now.
 
B

Boser

New member
I can relate to everything your saying. My son was diagnoised at 3 weeks also. He was born June 8th. He started having seizures at 5 day old and was in the hospital 3 times by the time he was 2 months old.

It is really hard to comprehend that onone can tell u what will happen in the future with this aweful diagnosis. Then when u read all the bad on the net. I think that is the worst part about all this.

I know in my heart Cody will be the happiest child alive growing up (in the hospital or not) because I will make sure of it. That is the only thing getting me through this right now.
 
B

Boser

New member
I can relate to everything your saying. My son was diagnoised at 3 weeks also. He was born June 8th. He started having seizures at 5 day old and was in the hospital 3 times by the time he was 2 months old.

It is really hard to comprehend that onone can tell u what will happen in the future with this aweful diagnosis. Then when u read all the bad on the net. I think that is the worst part about all this.

I know in my heart Cody will be the happiest child alive growing up (in the hospital or not) because I will make sure of it. That is the only thing getting me through this right now.
 
B

Boser

New member
I can relate to everything your saying. My son was diagnoised at 3 weeks also. He was born June 8th. He started having seizures at 5 day old and was in the hospital 3 times by the time he was 2 months old.

It is really hard to comprehend that onone can tell u what will happen in the future with this aweful diagnosis. Then when u read all the bad on the net. I think that is the worst part about all this.

I know in my heart Cody will be the happiest child alive growing up (in the hospital or not) because I will make sure of it. That is the only thing getting me through this right now.
 
B

Boser

New member
I can relate to everything your saying. My son was diagnoised at 3 weeks also. He was born June 8th. He started having seizures at 5 day old and was in the hospital 3 times by the time he was 2 months old.
<br />
<br />It is really hard to comprehend that onone can tell u what will happen in the future with this aweful diagnosis. Then when u read all the bad on the net. I think that is the worst part about all this.
<br />
<br /> I know in my heart Cody will be the happiest child alive growing up (in the hospital or not) because I will make sure of it. That is the only thing getting me through this right now.
 
K

Kimber1

New member
I completetly understand what you are saying too, my daughter was diagnosed at 3 weeks and is now nine months. We have definately had our ups and downs. The thing is family all sympathize and genuinely care but unless you are a parent you dont really get it. Use this forum to help you get through the tough times because the people on here have been where we both are. Somedays I enjoy my two beautiful girls to the max and otherdays i just think CF SUCKS for all of us, but what I do know is I wouldn't trade Charlotte for another healthy baby anyday. Just take one day at a time and dont be afraid to be pissed off with the whole situation but dont dwell on it too much. Life needs to be lived especially in our situation and just be the best you can be for your kids.
 
K

Kimber1

New member
I completetly understand what you are saying too, my daughter was diagnosed at 3 weeks and is now nine months. We have definately had our ups and downs. The thing is family all sympathize and genuinely care but unless you are a parent you dont really get it. Use this forum to help you get through the tough times because the people on here have been where we both are. Somedays I enjoy my two beautiful girls to the max and otherdays i just think CF SUCKS for all of us, but what I do know is I wouldn't trade Charlotte for another healthy baby anyday. Just take one day at a time and dont be afraid to be pissed off with the whole situation but dont dwell on it too much. Life needs to be lived especially in our situation and just be the best you can be for your kids.
 
K

Kimber1

New member
I completetly understand what you are saying too, my daughter was diagnosed at 3 weeks and is now nine months. We have definately had our ups and downs. The thing is family all sympathize and genuinely care but unless you are a parent you dont really get it. Use this forum to help you get through the tough times because the people on here have been where we both are. Somedays I enjoy my two beautiful girls to the max and otherdays i just think CF SUCKS for all of us, but what I do know is I wouldn't trade Charlotte for another healthy baby anyday. Just take one day at a time and dont be afraid to be pissed off with the whole situation but dont dwell on it too much. Life needs to be lived especially in our situation and just be the best you can be for your kids.
 
K

Kimber1

New member
I completetly understand what you are saying too, my daughter was diagnosed at 3 weeks and is now nine months. We have definately had our ups and downs. The thing is family all sympathize and genuinely care but unless you are a parent you dont really get it. Use this forum to help you get through the tough times because the people on here have been where we both are. Somedays I enjoy my two beautiful girls to the max and otherdays i just think CF SUCKS for all of us, but what I do know is I wouldn't trade Charlotte for another healthy baby anyday. Just take one day at a time and dont be afraid to be pissed off with the whole situation but dont dwell on it too much. Life needs to be lived especially in our situation and just be the best you can be for your kids.
 
K

Kimber1

New member
I completetly understand what you are saying too, my daughter was diagnosed at 3 weeks and is now nine months. We have definately had our ups and downs. The thing is family all sympathize and genuinely care but unless you are a parent you dont really get it. Use this forum to help you get through the tough times because the people on here have been where we both are. Somedays I enjoy my two beautiful girls to the max and otherdays i just think CF SUCKS for all of us, but what I do know is I wouldn't trade Charlotte for another healthy baby anyday. Just take one day at a time and dont be afraid to be pissed off with the whole situation but dont dwell on it too much. Life needs to be lived especially in our situation and just be the best you can be for your kids.
 
M

mom2cameron

New member
I know exactly what you are going through. I think these same thoughts daily. My son was born May 4, 2009 and diagnosed at 1 month old. Its been really tough. He is not on much now just enzymes, salt and cpt 2 times a day for 15 mins each time. He has started his first antibiotics for a cold his lovely preschool brother brought home the first week of school. He has been sick for 7 weeks now. Im freaking out. I dont know how to deal with it all. Sorry Im not much help but you are not alone in your being so worried. How do people work full time jobs and take care of everything? I am at some kinda appt every week. I only work 2 days a week and go to college 2 days and I feel overwhelmed most of the time. I ask myself all the time am I going to school for nothing. Will I be able to work a real job and be able to take off if Cameron gets sick without getting fired?
 
M

mom2cameron

New member
I know exactly what you are going through. I think these same thoughts daily. My son was born May 4, 2009 and diagnosed at 1 month old. Its been really tough. He is not on much now just enzymes, salt and cpt 2 times a day for 15 mins each time. He has started his first antibiotics for a cold his lovely preschool brother brought home the first week of school. He has been sick for 7 weeks now. Im freaking out. I dont know how to deal with it all. Sorry Im not much help but you are not alone in your being so worried. How do people work full time jobs and take care of everything? I am at some kinda appt every week. I only work 2 days a week and go to college 2 days and I feel overwhelmed most of the time. I ask myself all the time am I going to school for nothing. Will I be able to work a real job and be able to take off if Cameron gets sick without getting fired?
 
M

mom2cameron

New member
I know exactly what you are going through. I think these same thoughts daily. My son was born May 4, 2009 and diagnosed at 1 month old. Its been really tough. He is not on much now just enzymes, salt and cpt 2 times a day for 15 mins each time. He has started his first antibiotics for a cold his lovely preschool brother brought home the first week of school. He has been sick for 7 weeks now. Im freaking out. I dont know how to deal with it all. Sorry Im not much help but you are not alone in your being so worried. How do people work full time jobs and take care of everything? I am at some kinda appt every week. I only work 2 days a week and go to college 2 days and I feel overwhelmed most of the time. I ask myself all the time am I going to school for nothing. Will I be able to work a real job and be able to take off if Cameron gets sick without getting fired?
 
M

mom2cameron

New member
I know exactly what you are going through. I think these same thoughts daily. My son was born May 4, 2009 and diagnosed at 1 month old. Its been really tough. He is not on much now just enzymes, salt and cpt 2 times a day for 15 mins each time. He has started his first antibiotics for a cold his lovely preschool brother brought home the first week of school. He has been sick for 7 weeks now. Im freaking out. I dont know how to deal with it all. Sorry Im not much help but you are not alone in your being so worried. How do people work full time jobs and take care of everything? I am at some kinda appt every week. I only work 2 days a week and go to college 2 days and I feel overwhelmed most of the time. I ask myself all the time am I going to school for nothing. Will I be able to work a real job and be able to take off if Cameron gets sick without getting fired?
 
M

mom2cameron

New member
I know exactly what you are going through. I think these same thoughts daily. My son was born May 4, 2009 and diagnosed at 1 month old. Its been really tough. He is not on much now just enzymes, salt and cpt 2 times a day for 15 mins each time. He has started his first antibiotics for a cold his lovely preschool brother brought home the first week of school. He has been sick for 7 weeks now. Im freaking out. I dont know how to deal with it all. Sorry Im not much help but you are not alone in your being so worried. How do people work full time jobs and take care of everything? I am at some kinda appt every week. I only work 2 days a week and go to college 2 days and I feel overwhelmed most of the time. I ask myself all the time am I going to school for nothing. Will I be able to work a real job and be able to take off if Cameron gets sick without getting fired?
 
S

samm08

New member
I'm 19, and was diagnosed when I was 4. The main thing you can do, is be strong for your son, and keep high spirits for yourself. Times will get hard, there will also be amazing times, but dont look at it as a death sentence. My parents are my number 1 fans, and without their support and encouragement to push me each and everyday I wouldn't of made it this far. It's going to be hard sometimes, and your going to feel alone, some days you'll cry, a lot. But you always look at the situation as it could always be worse. There will be times that he wont understand why he cant play with his friends because he has to do his treatments, but thats when you explain. Try to help him understand as best you can. I had a feeding tube all through elementary and some jr. high. But I still did the things I wanted. I was a cheerleader, played basketball, even coached soccer for 5th and 6th graders. When I went into kindergarten I weighed 25 pounds. So you could only imagine what people thought. Also I know it's hard but don't think to much into the future, because no one knows what it will bring. Take it one day at a time, because thats all you can do. Always keep your head up, and hope for the best in any situation.
Hope I helped :)
 
S

samm08

New member
I'm 19, and was diagnosed when I was 4. The main thing you can do, is be strong for your son, and keep high spirits for yourself. Times will get hard, there will also be amazing times, but dont look at it as a death sentence. My parents are my number 1 fans, and without their support and encouragement to push me each and everyday I wouldn't of made it this far. It's going to be hard sometimes, and your going to feel alone, some days you'll cry, a lot. But you always look at the situation as it could always be worse. There will be times that he wont understand why he cant play with his friends because he has to do his treatments, but thats when you explain. Try to help him understand as best you can. I had a feeding tube all through elementary and some jr. high. But I still did the things I wanted. I was a cheerleader, played basketball, even coached soccer for 5th and 6th graders. When I went into kindergarten I weighed 25 pounds. So you could only imagine what people thought. Also I know it's hard but don't think to much into the future, because no one knows what it will bring. Take it one day at a time, because thats all you can do. Always keep your head up, and hope for the best in any situation.
Hope I helped :)
 
S

samm08

New member
I'm 19, and was diagnosed when I was 4. The main thing you can do, is be strong for your son, and keep high spirits for yourself. Times will get hard, there will also be amazing times, but dont look at it as a death sentence. My parents are my number 1 fans, and without their support and encouragement to push me each and everyday I wouldn't of made it this far. It's going to be hard sometimes, and your going to feel alone, some days you'll cry, a lot. But you always look at the situation as it could always be worse. There will be times that he wont understand why he cant play with his friends because he has to do his treatments, but thats when you explain. Try to help him understand as best you can. I had a feeding tube all through elementary and some jr. high. But I still did the things I wanted. I was a cheerleader, played basketball, even coached soccer for 5th and 6th graders. When I went into kindergarten I weighed 25 pounds. So you could only imagine what people thought. Also I know it's hard but don't think to much into the future, because no one knows what it will bring. Take it one day at a time, because thats all you can do. Always keep your head up, and hope for the best in any situation.
Hope I helped :)
 
S

samm08

New member
I'm 19, and was diagnosed when I was 4. The main thing you can do, is be strong for your son, and keep high spirits for yourself. Times will get hard, there will also be amazing times, but dont look at it as a death sentence. My parents are my number 1 fans, and without their support and encouragement to push me each and everyday I wouldn't of made it this far. It's going to be hard sometimes, and your going to feel alone, some days you'll cry, a lot. But you always look at the situation as it could always be worse. There will be times that he wont understand why he cant play with his friends because he has to do his treatments, but thats when you explain. Try to help him understand as best you can. I had a feeding tube all through elementary and some jr. high. But I still did the things I wanted. I was a cheerleader, played basketball, even coached soccer for 5th and 6th graders. When I went into kindergarten I weighed 25 pounds. So you could only imagine what people thought. Also I know it's hard but don't think to much into the future, because no one knows what it will bring. Take it one day at a time, because thats all you can do. Always keep your head up, and hope for the best in any situation.
Hope I helped :)
 
S

samm08

New member
I'm 19, and was diagnosed when I was 4. The main thing you can do, is be strong for your son, and keep high spirits for yourself. Times will get hard, there will also be amazing times, but dont look at it as a death sentence. My parents are my number 1 fans, and without their support and encouragement to push me each and everyday I wouldn't of made it this far. It's going to be hard sometimes, and your going to feel alone, some days you'll cry, a lot. But you always look at the situation as it could always be worse. There will be times that he wont understand why he cant play with his friends because he has to do his treatments, but thats when you explain. Try to help him understand as best you can. I had a feeding tube all through elementary and some jr. high. But I still did the things I wanted. I was a cheerleader, played basketball, even coached soccer for 5th and 6th graders. When I went into kindergarten I weighed 25 pounds. So you could only imagine what people thought. Also I know it's hard but don't think to much into the future, because no one knows what it will bring. Take it one day at a time, because thats all you can do. Always keep your head up, and hope for the best in any situation.
<br />Hope I helped :)
 
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