Do you have one of those cf books with the centers across the world listed in the back? I'm not sure if they have email addy's for the doctors but at least a name and snail mail address. Why not make form letter and blast it out to all of them simply asking for anyone with aspgilloma experience to contact you. Then you can get that doctor to consult yours or better yet make a visit to that doctor. If you don't hear from anyone you can follow up with each to confirm they don't have experience but in the meantime a doctor or a few might be in touch with you. Also, you could look up doctors online on cff.org. Seems like a time investment but I would say your health is worth it and don't bank on the doctor having time to undertake a project this size....unfortunately.
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Feeling like a guinea pig
- Thread starter Diane
- Start date
Do you have one of those cf books with the centers across the world listed in the back? I'm not sure if they have email addy's for the doctors but at least a name and snail mail address. Why not make form letter and blast it out to all of them simply asking for anyone with aspgilloma experience to contact you. Then you can get that doctor to consult yours or better yet make a visit to that doctor. If you don't hear from anyone you can follow up with each to confirm they don't have experience but in the meantime a doctor or a few might be in touch with you. Also, you could look up doctors online on cff.org. Seems like a time investment but I would say your health is worth it and don't bank on the doctor having time to undertake a project this size....unfortunately.
Do you have one of those cf books with the centers across the world listed in the back? I'm not sure if they have email addy's for the doctors but at least a name and snail mail address. Why not make form letter and blast it out to all of them simply asking for anyone with aspgilloma experience to contact you. Then you can get that doctor to consult yours or better yet make a visit to that doctor. If you don't hear from anyone you can follow up with each to confirm they don't have experience but in the meantime a doctor or a few might be in touch with you. Also, you could look up doctors online on cff.org. Seems like a time investment but I would say your health is worth it and don't bank on the doctor having time to undertake a project this size....unfortunately.
Do you have one of those cf books with the centers across the world listed in the back? I'm not sure if they have email addy's for the doctors but at least a name and snail mail address. Why not make form letter and blast it out to all of them simply asking for anyone with aspgilloma experience to contact you. Then you can get that doctor to consult yours or better yet make a visit to that doctor. If you don't hear from anyone you can follow up with each to confirm they don't have experience but in the meantime a doctor or a few might be in touch with you. Also, you could look up doctors online on cff.org. Seems like a time investment but I would say your health is worth it and don't bank on the doctor having time to undertake a project this size....unfortunately.
Do you have one of those cf books with the centers across the world listed in the back? I'm not sure if they have email addy's for the doctors but at least a name and snail mail address. Why not make form letter and blast it out to all of them simply asking for anyone with aspgilloma experience to contact you. Then you can get that doctor to consult yours or better yet make a visit to that doctor. If you don't hear from anyone you can follow up with each to confirm they don't have experience but in the meantime a doctor or a few might be in touch with you. Also, you could look up doctors online on cff.org. Seems like a time investment but I would say your health is worth it and don't bank on the doctor having time to undertake a project this size....unfortunately.
Do you have one of those cf books with the centers across the world listed in the back? I'm not sure if they have email addy's for the doctors but at least a name and snail mail address. Why not make form letter and blast it out to all of them simply asking for anyone with aspgilloma experience to contact you. Then you can get that doctor to consult yours or better yet make a visit to that doctor. If you don't hear from anyone you can follow up with each to confirm they don't have experience but in the meantime a doctor or a few might be in touch with you. Also, you could look up doctors online on cff.org. Seems like a time investment but I would say your health is worth it and don't bank on the doctor having time to undertake a project this size....unfortunately.